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  • Dan2019 earned the Photogenic badge.
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    2:58PM
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  • Dan2019, PolyphonicJuniper, ymg, bex80, Grandalise and 7 others joined.
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    11:40AM
  • lvlama, lynzjoe, Pobbins12, krailton61, karenat35 and 7 others earned the First comment badge.
    Well done on your first comment, keep going!
    October 15
  • I had thyroid problems for about 9 year then last year I had to had my left parathyroid removed nearly a year after op I went downhill again and my parathyroid levels high again it has took over my life I like a old ladie and only 39 would I qualify for pip if I work 16 hours thanks 
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    12:57PM
  • Pobbins12, rebel11 and mrbuttons earned the Name dropper badge.
    Mentioning someone in a discussion (do so by putting an @ before the user name) is a great way to encourage dialog and let them know who you’re talking to.
    October 15
  • elizabethk, Lulo, chlobliviate and mousey earned the Photogenic badge.
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    October 15
  • 19681989 earned the 10 replies badge.
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    11:50AM
  • 19681989 and Mum1490 were promoted to Level 2.
    October 15
  • Hi, I'm new to the community and have only just discovered SCOPE, despite being disabled for over 3 years after major spinal surgery. No one tells you where to go for help and advice, they just say sorry you can't stand and walk like you used to!
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    11:44AM
  • KME82, Lulo, ILSStudents, Funnyman, shelleyw67 and 29 others joined.
    Welcome Aboard!
    October 15
  • karenat35
    Hi Sam I am sorry but this is a long...… long …… long story. I had been on high rate DLA since 2001 after an accident left me with RSD. I had been seen by a DWP doctor to get this award. I was seen by a compliance officer in 2006 and then again in 2016. Then in July 2017 after my RSD causing many different heath problems after an infected sympathectomy I had a hospital admittance for pneumonia in both lungs and fluid on my lungs and a partially collapsed lung. On physio advice I was told to try and mobilize more to try and expand my lung capacity.
    I told my (ex ) friend  I was too ill to keep taking in her daily postal deliveries so she reported me to DWP.
    I saw the PIP health officer at home in early November 2017 and told her I could walk, ( as I have always said on my dla and pip forms ) but not without severe pain or anxiety. I have to take dihydrocodeine, fentanyl patches and oramorph , gabapentin and acupan to be able to move.  So I was dropped to standard rate PIP
    I was interviewed under caution by the fraud office  in JAnuary 2018 I was sent home to get a letter from my GP to say I could be interviewed  and saw them again in March 2018 dropped the case in December 2018.  anyway long story short I was filmed in aldi and going for a hospital appointment, inside the hospital. I was out for no more than 15 mins  (not carrying anything) so now, after a first tier tribunal, I was classed as a liar and told I had to repay £43,600 . I am beside myself with worry, the DWP sent a letter that said if I did not agree to start repaying this amount it would be passed to a debt collecting agency even though our only income is my ESA  now they stopped any PIP payments.
     I did have a rep from local advice centre but he didn't hand in all my medical records or support my appeals when asked by the judge if he had anything to add.Because they are self funded and work from two offices trying to get hold of him and my medical records back is like knitting fog. 

    I have asked for a statement of reasons why I lost my appeals. But  recently I found letters to all my friends to say why I had to leave them,( I cannot remember writing these at all). I have seen a solicitor but they can't help ( as it isn't their area ) and suggested I saw another solicitor who charges £245 for first meeting. But next to what I owe, it is nothing. Do you have any idea how long the statement of reasons will take to get back to me and is it worth taking it any further It is making me so, so ill , without my friends support telling me how appalled they all are how I have been treated , I don't  think I would still be here. Sorry to sound so melodramatic but being in so much pain Is driving me mad,
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    10:44AM
  • markf87 earned the Second Anniversary badge.
    Thanks for being part of the community for 2 years.
    7:17AM
  • markf87, mrbuttons and 66Mustang were promoted to Level 3.
    October 15
  • Hi , I'm new to all this, so , not sure how to go about this. Last year (2018. )  I was diagnosed with a benign meningioma that is on my brainstem, I applied for pip as soon as I found out I could. Having had a face - face with whom I presumed was a person who new what they where talking about, then went on their merry little way, few weeks later recieved my results and guess what? , yep you have all got it, my score was a whopping. 2 , and thats only because I am going deaf. Now after all the usual appeals it's gone to a tribunal, tha has6taken almost 12. months to come through, I will keep one and all informed of how it goes, now thats all said, thank you6for listening
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    October 15
  • Mentioning someone in a discussion (do so by putting an @ before the user name) is a great way to encourage dialog and let them know who you’re talking to.
    October 14
  • exdvr earned the 100 likes badge.
    You received 100 Likes. You are helping others and we all appreciate you!
    October 15
  • Noir123
    Hi all I'm currently living in a damp house I privately rent. My landlord wont fix the issue despite numerous complaints. I currently am single I get esa, hb, pip, disability premium. A best friend suggested that I invest in a property with her instead of paying rent for a damp house. She works full time with a good wage and said she would take the mortgage in her name but put me on the deed. I am worried I would lose all my benefits if I went ahead. I know I would lose the housing benefit. Does anyone know about income related esa and being on a deed? Need advice. Or I will just look another private rent. Confused. 🤔 Thanks
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    October 15
  • Misscleo earned the 250 likes badge.
    You received 250 Likes. Looks like you're popular!
    October 15
  • April2018mom
    I emailed back today. Will find out if we are eligible for free prescriptions. 
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    11:06AM
  • starbuck and emmabuzzy earned the Second Anniversary badge.
    Thanks for being part of the community for 2 years.
    October 14
  • APHRODITEAC2
    I HAVE JUST STARTED XBOX. 360 LIFE IS STRANGE. SPECIALEFFECT.ORG.UK HELPED WITH CONTROLLER.I PROJECT GAME ON WALL AT LEAST 1.5 METER IMAGE.MAKES NAVIGATING EASIER WITH PARTIAL VISION. ONLY SET BACK IS ROOM HAS TO BE DARK. GOOD LUCK WITH SOURCING TECH. YOU CAN TWEAK COLOURS TO MAKE MOVEMENT EASIER TO SEE..
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    October 15
  • Philippa1961 and mrbuttons earned the 5 likes badge.
    You received 5 Likes. We like that.
    October 15
  • 66Mustang, Philippa1961 and filly earned the 5 awesomes badge.
    You received 5 Awesomes. Good work!
    October 15
  • MaHu
    Many thanx amber for your kind reply
    My son is 6yrs mild autistic he is verbal but not communicative,
    What I understood the dosage is
    Carcinosin 30c (monday to friday after breakfast)
    Baryta carb 30c (only saturday after breakfast)
    but you wrote baryta 200 in your post?
    and No Carcinosin on saturday and sunday?
    And for how many months I give this medicine to my son?
    ·
    October 14
    • Adrian_Scope
      Adrian_Scope
      Hi both of you. I'm really glad you've been able to support each other. I just wanted to say that as none of us on the community are medical professionals, we don't allow discussions and recommendations of particular medications and dosages, as we can't verify their accuracy. As well as finding out the experience of others, it's really important to get medical advice from a trained professional.

      Best of luck and I hope you're both well,
      Adrian
    • amber2019
      amber2019
      Hi Adrian
      Thankyou for your response. I understand I’m not a medical dr, however the vitamins I’m advising are over the counter and do not need a prescription hence they are not pharmaceutical drugs.
      It’s very difficult to get alternative medicine advice in our situation so I’m just trying to help and guide a desperate mom as I have been in the same situation
      Thankyou
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    October 15
  • Petef, twosticks, deerp, jayuk, Mr_Wobble and 2 others earned the First comment badge.
    Well done on your first comment, keep going!
    October 14
  • Petef, deerp, hullbridge, lynnieb, StarryShapes and 21 others joined.
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    October 14
  • piotrjablonski01 and mrbuttons earned the 10 replies badge.
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    October 14
  • Hello! I’m Emily, pleased to meet you all. How’s everyone doing? x 
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    October 14