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  • Welcome Aboard!
    November 23
  • BillyG, jackdean2007, Halima and Anaaspie earned the Photogenic badge.
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    November 23
  • Well done on your first comment, keep going!
    November 23
  • Hi everyone...
    November 23
  • My assessor has lied.I have been given zero points on both components.even the stright forward comment that I need help washing and dressing (which they mentioned in their refusal) 
    Has still given me zero points along with lots of other issues that they have totally ignored.what's going on !!
    November 23
  • Golfjay earned the First Anniversary badge.
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    November 23
  • Golfjay earned the Second Anniversary badge.
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    November 23
  • WrinklySphynx
    Dear Gervelle I need some advice on certain matters but cannot to scared to call Social Services as I don’t want anything to effect my current situation at the Mobile. It is very fragile but stable at least for the moment. Can you help me with some questions I have? I understand that you’ll only be talking possibly from experience. In short I will not hold you to your advice as I realise that people are not in a position to give advice unless specially trained in that field. Hope to hear from you soon. Also that your day is going well so far. Take care and talk soon hopefully. WS
    November 23
  • WrinklySphynx, missblaylock, Jules57, sara021, tj50 and 84 others joined.
    Welcome Aboard!
    November 22
  • Sounds good Louise, my e-mail is gervele3@gmail.com.Best wishes,Ger




    November 23
  • Jules57, annja, Littlelady12345, Chronic1, Tracyjane50 and 7 others earned the First comment badge.
    Well done on your first comment, keep going!
    November 22
  • Jean_Scope was promoted to Level 3.
    November 23
  • bevvyp
    Am I entitled to disability, my sister has to do everything for me as I'm so depressed and anxious and exhausted from grief and depression but also have fibromialgia and enfasema exacerbated by everything
    November 23
  • bobtweenie, Ella1976 and freckles earned the 10 replies badge.
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    November 22
  • Alex earned the 1000 replies badge.
    1000 comments! Amazing work!
    November 23
  • gh49 earned the Name dropper badge.
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    November 23
  • gh49 was promoted to Level 2.
    November 23
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    November 22
  • Hi I'm Beth 
    I am a mother of 2 (daughter 30 and son 27)  and a grandmother of 2 boys 4yrs and 14mths.
    My daughter 'T' was born at 28wks gestation resulting in cerebral palsy mostly on her right side x
    She has had botox and tendon stretch and tendon transfers, she was on epilepsy medicationwhen she was very young as it was thought that shehad petit marle.
    She has scoliosis of the spine and suffers from a lot of pain, discomfort and numbness all over her body but mostly from the waist down x
    She has days when she has no energy at all and no enthusiasm or drive x she suffers grom complete exhaustion both physical and mental x
    I don't know much about ME and chronic fatigue syndrome but i understand that there could possibly be a link to cerebral palsy x
    I would like to know how we find out if T is suffering from cfs. How do we approach her Dr and suggest that we think she might be? 
    Can anyone give us advise please x
    Thank you x
    November 22
  • luna61ue
    Hi Gervelle, 

    I read the blog. It's very amazing! I think you must be an advanced lady :) 
    I am a design master in London. My name is Louise. Nowadays I am doing a project of inflatable and adjustable wheelchair. And I find out if people want to design a good inclusive product. The  users should be involved in the design process. I think you are the right person I really wantn to talk with. Would you like me to share my concept with you and get some feedback by any chance? 

    Hope you have a nice day!

    Best,
    Louise
    November 22
  • I am still waiting to hear from Capita about my complaint.  i sent the email on 17th November & one of their people was supposed to get back within 2 days.  There was a  missed call from an unknown number on my mobile but could not get to the phone in time & no message was left so whether that was Capita I do not know.  I am sending a letter to them if I have not heard anything by the weekend.  I am seeing my GP on Friday & propose the do the correspondence to them & the DWP after that. 
    November 22
  • What benefits will my daughter be entitled to if suffering from korsekoff syndrom
    November 22
  • Hi I'm wendy I live on my own I have 2 children son and daughter  and 4 granddaughters  . I suffer from fibromyalgia I've had it since 2012 it' quite debilitating. 
    November 22
  • kirstyedgar1, Budgie2, juliealice, mariastone, leon64 and 8 others earned the First comment badge.
    Well done on your first comment, keep going!
    November 21
  • Uploading a profile picture makes the community a better place. Thanks!
    November 21
  • I finally had my PIP refusal letter today.  The Decision Maker has just used the Assessment which shows I was miraculously cured of all my health problems by going to the Assessment. Obviously the place to go is Capita Healthcare who do miracle cures. Have the various experience Professionals I have dealt with over the years been lying to me & there has never been anything wrong with me?  Did I need 2 spinal operations & foot operations if there was nothing wrong with me?  Maybe the Consultants had nothing too do those days.  Should I sue the NHS for wrongful diagnosis & making me do things like physiotherapy when I was not necessary.  The letter was just laughable.  I have drafted a letter for the Mandatory Review but I have an appointment on Friday with my GP to get a report from her about my health to send with the letter.  
    I was also supposed to go for a Healthcare Review yesterday for my ESA.  I have a cold/virus & just being up & about for a few minutes first thing yesterday made me feel sick & dizzy & weak & felt I would not even make it to the bus stop let alone sit on a bus for an hour & face a walk to the Assessment Centre.  It was the same area of the city as the PIP one but in a different building with a different Provider.  I had already changed the appointment once as it was at a completely unsuitable time.  I spoke to a sympathetic person who warned me I would get a form from the DWP about the non-attendance but she noted on my record why I was not going.  If this form comes before Friday I will take it to the GP to see if she can fill it in.  Interestingly when I cancelled the appointment the first time the person had to look for a long time to find a suitable appointment as apparently as I have complex health needs so can only see a Doctor not a Nurse but PIP seem to thing it is ok for me to see a nurse.
    I think if I did not laugh about the absurdity of the whole situation I would cry.  Not that I have any mental problems anymore.   :D :D :D :D :D :D :D :D :D :D
    November 22
  • Budgie2, Barber1964, franko, mariastone, nossienohead and 85 others joined.
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    November 21
  • I received the assessors report today, she does actually say that I was in the wheelchair but goes on to say that I say I cannot walk more than 20 metres but the muscular skeletal examination done tells her that "functional History reports that I would be able to walk 60m and would have to stop halfway and walk with a stick" not sure what this means, the reason I cannot walk that far is because I have constant sciatica from nerve damage and the pain worsens if I try to walk further than my limitations which will then leave me having to rest and take strong meds for the next day or two. Can anyone please advise ?
    November 22
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    November 22
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    November 22