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  • Felixx earned the 10 replies badge.
    Thank you for getting involved!
    8:55PM
  • Felixx and Suzanned were promoted to Level 2.
    6:54PM
  • Noahoscar986, Lisa5676, agnesdoris, SS1997, lg1982 and 5 others joined.
    Welcome Aboard!
    3:03PM
  • Rosie1640, lg1982, Francie, Georgem1994, Robinirish and 10 others earned the First comment badge.
    Well done on your first comment, keep going!
    8:43AM
  • Gerald and Adam_Scope earned the 5 likes badge.
    You received 5 Likes. We like that.
    February 21
  • Gerald, timmyy22 and hellsbells42 were promoted to Level 2.
    February 21
  • coolbreeze989, sonia18, steve34, jesai, patbateman and 45 others joined.
    Welcome Aboard!
    February 21
  • Mentioning someone in a discussion (do so by putting an @ before the user name) is a great way to encourage dialog and let them know who you’re talking to.
    February 21
  • Letty1
    Hello Ankyiespon.
    I suffered a prolapse disc 12 years ago and been in constant pain ever since. 
    I've had 3 MRI scans over the years but I've been told I can't have another because they don't prove anything.
    I know have swelling in my shoulder down to my elbow in my right arm. The swelling I have had for at least a year the pain more recently. All I've been offered is physio for my arm but the exercises I do have definitely made the pain worse, I don't even know what is causing the pain and swelling. I haven't been offered a x-ray or anything. 
    February 20
    • AnkyieSpon
      AnkyieSpon
      Hi there sorry only just seen you message. I think what I have learnt over past 5 years is you tell doctors what you want. My GP is great but sometimes he doesn't take in everything I say I think. So I've learnt to say how I feel and say this is what I want, so tell your gp you want an xray. Unfortunately I think sometimes surgeries do what they can to save money.
      For swelling try alternating ice and heat. Ice helps inflamation and heat pain. Two minutes each and for about 10 minutes but definatly ask for xray. Have physios not given any idea of cause?

      Keep fighting...... speak soon.
  • Uploading a profile picture makes the community a better place. Thanks!
    February 21
  • haveacigar earned the 5 awesomes badge.
    You received 5 Awesomes. Good work!
    8:49AM
  • wullmcg and fossoux earned the First Anniversary badge.
    Thanks for being part of the community for a full year.
    February 21
  • Tiddler, SteveSmith111, Bronwen, Fitznspatz, Eloner and 15 others earned the First comment badge.
    Well done on your first comment, keep going!
    February 21
  • Dotty123
    Do you no fone number jobcentre wallsend plzx
    February 21
  • Dotty123
    Do you know fone number sdp and job centre wallsend
    February 21
  • Roddy
    Hi Sam, Is here a way for me to send another member my email address without it being seen by everybody? For example, is this message safe between you and I? If so, can I use this via the other member's profile page, safely & securely please? 
    February 21
  • timmyy22, Roddy and Guardian9622 earned the 10 replies badge.
    Thank you for getting involved!
    February 21
  • janeyb66
    Hi Lyn
    i just joined yesterday not really sure  how all this works, I am a double bk amputee; hope you get this ☺️
    February 21
  • mandora changed their profile picture.
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    February 21
  • It's ironic perhaps that for a large part of my life I was a carer for my Son who has Autistic Spectrum Disorder, and also for my late mother of 97 years who was housebound due to severe depression and fragility. I also worked as a Marketing Director for a company with clients from Help The Aged; Children of a Dying Parent; The National Autistic Society; The Royal British Legion and The Queen Elizabeth Foundation for The Disabled, and numerous others. I mention this as I am now reliant upon care & support myself due to chronic illness and mobility issues which effect my everyday existence. I am passionate about period antique glass and have been an avid collector for 45+ years... Although I am relatively housebound myself now, I am never bored despite having no friends, visitors or family within a 200 mile radius of my Sheltered Accommodation facility. I am a young man of 61 years living in Suffolk, but originated from Surrey until I became ill. I am not expected to get better as such, but I'm responding remarkably well to my treatments and I don't allow my limitations to prevent me from enjoying myself as best that I am able... Zzzzz

    My profile pic is from St. Mathews Church, Jersey, and is a detail from a large installation altarpiece created by Rene Lalique, circa 1934. It is of course, priceless.  
    February 21
  • Roddy changed their profile picture.
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    February 21
  • SMW83 earned the Second Anniversary badge.
    Thanks for being part of the community for 2 years.
    February 21
  • SMW83 and jenn2008 were promoted to Level 3.
    February 21
  • hellsbells42 changed their profile picture.
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    February 21
  • clare_1, Beverley_Scope, werock, Sarac_Scope, Emma_Scope and 3 others earned the Name dropper badge.
    Mentioning someone in a discussion (do so by putting an @ before the user name) is a great way to encourage dialog and let them know who you’re talking to.
    February 20
  • SteveSmith111
    Hi Lilly,

    I've been reading your posts on Scope and I would really like to have conversation with you for  help. What's the best way to speak to you as I want to discuss my PIP assessment and results. The results are exactly the same as yours.

    Thanks,
    Steve
    February 21
  • Hi everyone my name is lejo I'm 67 and been widowed for 3 years have a few disabilities and struggle sometimes but try to cope x
    February 21
    • Sam_Scope
      Sam_Scope
      Hi Lejo you can start a new post by sharing it here - https://community.scope.org.uk/post/discussion/welcome
  • Hello everyone love how helpfull everyone is 
    February 20
    • Sam_Scope
      Sam_Scope
      Great to hear! If you have any questions, do let us know :)
  • ROLLERBALL
    hello there.ave just joined this scope community forum thing today and am mooching about trying to navigate round the site.james.jb.
    February 20
    • LeanneF33
      LeanneF33
      Welcome to scope i joined yesterday and am also trying to work it out
    • lizbar54
      lizbar54
      Hi James jb and Leanne I’m here a year and still not to sure but my own fault not spending enough time trying 👍 but welcome folks x
    • Sam_Scope
      Sam_Scope
      For members who are struggling to navigate the site, take a look at our How to Guide here - https://www.scope.org.uk/online-community-guidelines

      If you have any questions, let us know :)
  • Hi all at scope. I see I missed the discussion on rare diseases :-( but would like to say that I have been diagnosed with KLEINE LEVIN SYNDROME ( KLS ) . It s a neurological sleep disorder, which has been referred to previously in the media as 'sleeping beauty syndrome' but believe me....that is a far cry from the reality of it! Are there any others with KLS on here? We have a fab community online which are so supportive and informative. I also have athritis in jaw, hands and spine, scoliosis and sclerosis of spine, dropped foot with numbness from knee down on left leg...and a few other little medical ailments. I must admit too that I have not been engaging with scope as I should and will try to be more involved in the future.....
    February 20
    • izy
      izy
      Hi topcat1

      I've never heard of your syndrome so I went and looked it up. You're right, nothing beautiful about it! I just joined today and have my own list of "Stuff Wrong" but one good thing, browsing about sure makes you feel less sorry for yourself.

      Great that you've got a good online community for your KLS.

      All the best

      Izy
    • Sam_Scope
      Sam_Scope
      Hi Topkat - this post is only on your profile, so I have moved it to a new post where more members will see it and be able to respond - you can find it here - https://community.scope.org.uk/discussion/56387/kleine-levin-syndrome-kls
      Best wishes
      Sam