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salivary gland duct surgery

darcydarcy Posts: 42Member
edited June 2014 in Parents and carers
My 7 year old son, Nathan has spastic quadraplegic cp and has a drooling problem. We have tried hyosine patches, kwells and currently he is taking an unlicenced drug called glycopyrrolate, which helps but doesn't eliminate the problem.

I have recently been to the see the oral surgeon to weigh up the options of 'submandibular salivary gland duct repositioning', (reversing the gland, making drooling less by 50%) and am trying to find more information out.

If anybody knows of any info. at all. Success rates, etc. please write back.



Thanks

Catherine

Replies

  • suzisuzi Posts: 129Member
    Hi Catherine

    You might like to take a look at the following references:

    Australian research on saliva management http://www.scopevic.org.au/therapy_crc_res...a_research.html

    Surgery of the salivary ducts, article in Atlas of the oral and maxillofacial surgery clinics of North America, 1998 http://www.ncbi.nlm.nih.gov/entrez/query.f...itool=iconabstr

    Submandibular duct repositioning after excision of floor of mouth cancer. article in Journal of Oral Maxillofacial Surgery, 1996 http://www.ncbi.nlm.nih.gov/entrez/query.f...itool=iconabstr

    Outcomes of submandibular duct relocation: a 15-year experience, article in Journal of laryngology and otology.,2003 http://www.ncbi.nlm.nih.gov/entrez/query.f...itool=iconabstr

    Bilateral submandibular duct relocation for drooling: an evaluation of results for the Birmingham Children's Hospital, article in European archives of oto-rhino-laryngology , 2003
    http://www.ncbi.nlm.nih.gov/entrez/query.f...itool=iconabstr

    Bilateral parotid-duct diversion using autologous vein grafts for the management of chronic drooling in cerebral palsy, article in British Journal of Plastic Surgery, 2002 http://www.ncbi.nlm.nih.gov/entrez/query.f...itool=iconabstr

    Management of drooling in individuals with neurodisability: a surgical experience, article in Developmental Medicine & Child Neurology, 2001
    http://www.ncbi.nlm.nih.gov/entrez/query.f...itool=iconabstr

    The surgical management of drooling--a 15 year follow-up, article in Clinical Otolaryngology and allied sciences, 1997 http://www.ncbi.nlm.nih.gov/entrez/query.f...itool=iconabstr



    Those with an interest in issues to do with drooling may also like to take a look a the messages titled "Botox in saliva glands for drooling" that can be found in the "Talk to Scope" room of this forum.

    There have been other interesting posts on this topic in a thread started by Cathy on May 26 titled "Surgery for Drooling" that can be also be found in this room of the forum.
  • JenniferJennifer Posts: 1Member
    I have a 5 year old girl with spastic diplegia, she has always drooled a lot, we tried hyoscine patches but they caused a very severe skin reaction so we had to stop. After having her dry for 3 weeks it is very hard to go back to where we were. But having discussed it with my Gp (WHo is amazing) he feels that any other medication may cause digestion issues (Which we have just managed to get under control with diet and massage etc.) I have been researching botox as an alternative and the scope helpline team have given me some great info as mentioned above. I see our neurologist on october 18th so will put it to her then, and keep you posted.
  • BarbaratBarbarat Posts: 3Member
    Hi Catherine,

    I don't have any info that you asked for, but my 3yr old boy has spastic cp, he too excessively drools, apparantly he is to young for any professional's to offer me any advice, as I've been told that "normal" children aged 3 can drool alot! But his drooling seems to be getting worse not better.

    Can you keep me posted about your son's progress? It will be really helpful if Jack has to go through this operation.

    Im sorry I can't offer you advice, but I wanted to let you know you are not alone.

    I really hope everything works out well for your son.

    Sarah x
  • darcydarcy Posts: 42Member
    I know how you feel. My son is 7, and as you can imagine it draws attention to him when he is dribbing. Other kids are horrified. And it just outrages me when they stare!

    Something I use, is a sweat band. They're a fashion item so it doesn't stand out. He wears it and I encourage to wipe his chin with it. And he likes wearing it too, because it usually has some trendy picture on. I am constantly on at him to swallow,hoping that one day he will get the message.
  • AnnieAnnie Posts: 4Member
    Hi Cathy

    Looking thru the old posting I see you have had experience of glycopyrrolate. What did you think of it, did it have any adverse side-effects?

    Many thanks
  • darcydarcy Posts: 42Member
    Hello Bears mum

    Initially we had problems with the GP prescribing the tablets, as they are an unlicensed drug for children. Even when we provided info on the tablets he still weren
  • AnnieAnnie Posts: 4Member
    Hi Cathy

    Thanks for that. Of the potential side effects the constipation and irritability would be of most concern as Matthew is prone to both at times! Maybe a connection?!

    They have just upped his baclofen which can make him drool until he adjusts to it so I think I'll wait and see what happens. It was our community nurse who suggested it so we shouldn't have a problem with the prescription but just do a bit of organising to get it delivered or us collect it from somewhere a bit more convenient than the hospital pharmacy!

    Thanks again
  • Senmum123Senmum123 Posts: 1Member
    Hi Cathy,

    Not sure when you last looked at this site but I can say that my 7 year old daughter has had the submandibular salivary gland duct repositioning operation and to be honest I can't see a real difference.

    Luckily there were no side effects to the op and it was a total success but whilst on some days she hardly drools; there are other days (especially if she has a cold) when she seems to drool like a tap.

    My daughter hasn't got CP. She has learning difficulties and oral motor dyspraxia (low oral muscle tone).

    I too have tried patches and even the hyoscine medicine but all to no avail.

    What I'm working on now is her "behaviour". Thats what the consultant told me. She has learned to have an open mouth posture and now I need to teach her to:

    close her mouth
    Swallow
    wipe

    Now that she is 7 she is starting to understand what swallow means and the consultant said I need to go for "swallowing rehabilitation" whatever that means. Mind you, she can eat for Britain and has no problems swallowing her food allbeit a bit messy though.

    I'm glad I discovered this site. I know my daughter doesn't have CP but she does drool alot and I'm keen to know what I can do about it.

    I'll try and update on how she gets on with the above 3 things I'm teaching her - all of which she can do but not spontaneously which is the problem.

    I too looked on Ebay to get some funky bandanas and wristbands. You can get some really pretty ones on this website called ebid which I think is part of ebay.

    Anyway, we're all in this together so I'd love to hear from someone soon.

    regards
    Megan
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