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different types of CP
I'm really confused about the different types of CP, my daughter has not officially been diagnosed. When I mention it to her Physio she just gives me a sympathetic smile & says "she's so young yet & had a traumatic start to life", but I know it's more than that. She has calcification to her basal Ganglia caused by a congenital viral infection called CMV..(Cytomeglio virus or similar spelling!!!!) All 4 limbs are stiff ( have loosened with physio) she is fed by N.G tube, her head will always go to same side & cannot yet hold her head at nearly 6 months. Limbs are very relaxed when in a deep sleep, she does'nt suffer from involuntary movements but does dribble a little bit, but she also suffers from reflux & dribbles most when refluxing. I know she is young for a diagnoses but feel frustrated that can't get a straight answer from anyone, I need to get my head around it & know a little about what to expect in the future. What type of CP is worse?? What type do you think Lucy has?? Is there anyway of knowing now if she'll be a wheelchair user?? The most upsetting thing for me would be if she cannot speak is there a warning sign for that?? I know by now I should have come to terms with it all but I can't seem to pull myself togther, I'm sad all of the time. I feel angry at the world & ashamed to say feel very little love for her, I'm sure it will come but at the moment i'm struggling. Been invited to take her too a special needs nursery it's brand new & lovely I'm sure but I don't think I can handle seeing the children there, it's like a glimpse into my future which scares me, so sick of putting on a brave face only to fall apart when I'm on my own. I'm sorry I sound so pathetic, she's lucky compared to some kids. What sort of age did your children start to achieve things like rolling over, sitting up etc??