Parents and carers
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Any one out there using Sinemet?

FoxyFoxy Member Posts: 1
edited June 2014 in Parents and carers
We saw a doctor yesterday who would like my son to use Sinemet to try and help distonia. Anyone using this medication? My son Charlie is 6.

Replies

  • gemgems79gemgems79 Member Posts: 3
    hi my little boy has just started on levodopa i think this mayby the same is siminet given for dopa responsive dystonia sorry if i have confused the drugs if they are the same would love to chat gemmax
  • gemgems79gemgems79 Member Posts: 3
    hi its me again yes its simenet that my 2 year old has just started so would love to chat x
  • tontorhystontorhys Member Posts: 1
    hi,my son has been useing this medicine for the last 2 years,& ive got to say its the best decision i done was put him on it,because of the side effects.but to this day my son has'nt had any of them,it has helped a great deal.
  • emilymillyemilymilly Member Posts: 1
    Hi again,as the Sinemet was not preventing the distonia we have stopped using it. Charlie has a fear of high ceilings especially when he is laid on his back. We try our best now not to expose him to this fear.

    Sorry I am not much help!
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