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a year after diagnosis

trickydtrickyd Member Posts: 3
edited September 2014 in Parents and carers
i still feel lost , does anyone else feel this way??????????????????


  • AmberAmber Member Posts: 6
    Hello there.

    So you have been diagnosed one year, its still relatively new for you to get used to.
    I still get scared and nervous about what the next few years wil bring. I'm 20 was disagnosed at 5 and am still getting used to the fact that I'm going to be the 'big' 21 at the end of the month and have CP. I just cant imagine it.

    I think it does get better and you do get used to your own situation (how CP affects you) but i dont think you are properly happy until you can happily tell folks you have a disability and you be fully happy with that.

    Take care
  • trickydtrickyd Member Posts: 3
    im sorry i should have explained that it is my daughter that was diagnosed with quad cp a year ago.
    but i would really like to thank you for your reply. xxxx
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