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Community member Posts: 207 Courageous
*Posted by Forums Moderator on behalf of a parent*
I have a daughter who is 7 years old and has quadriplegic cerebral palsy. My main concerns are that the muscles in her legs are very tight especially when she is walking with her frame and her communication has not progressed at all this past year. Although she is receiving some physio and speech and language therapy at school I feel it is not enough and I am concerned that time is slipping away for my daughter and the opportunity to learn these skills will be lost.
I have been looking around for extra physio and an assessment of her communication. It all seems very expensive - what extra therapies and assessments have other families used I am looking at Bobath and Candle - but assessments are so expensive and I want to make sure that it will benefit my daughter before I start to try and raise funds for it. I'd really welcome your views. Many thanks
I have a daughter who is 7 years old and has quadriplegic cerebral palsy. My main concerns are that the muscles in her legs are very tight especially when she is walking with her frame and her communication has not progressed at all this past year. Although she is receiving some physio and speech and language therapy at school I feel it is not enough and I am concerned that time is slipping away for my daughter and the opportunity to learn these skills will be lost.
I have been looking around for extra physio and an assessment of her communication. It all seems very expensive - what extra therapies and assessments have other families used I am looking at Bobath and Candle - but assessments are so expensive and I want to make sure that it will benefit my daughter before I start to try and raise funds for it. I'd really welcome your views. Many thanks
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Hi. My daughter attends a conductive education centre. I am not sure however if the age limit is 5, but it may be worth looking at. There are a few across the country I think. You should find info via google. Good luck xxx
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Try contacting BIBBIC.
Because it is a charity they are not expensive and may be of help to you?
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Have you looked at The Scotson Technique at Advance (www.advancecentres.org.uk - case histories on blog). Advance can also put you in touch with charities that fund children for their therapies. You can always phone Advance to discuss: 01342 311137. The recent local news report may be of interest to you:
http://www.facebook.com/video/video.php?v=403048513129&ref=mf
Best wishes,
Sarah
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