If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Having difficulties logging in or resetting your password?
Please email [email protected]
Jejunostomy after 11 years of feeding orally..
My eleven year old daughter has just recovered from a very serious and terrifying bout of pneumonia. After 11 years of general good health, considering the degree of her CP. She is now considered to have an unsafe swallow and a peg was suggested as a solution. Unfortunately an attempt to insert a gastostomy failed in theatre as she has a scholiosis which impeded access to her stomach wall as her ribs were in the way. A jejunostomy appears to be the only alternative as she is being currently fed nasogastrically which obviously is not a long tern option. I have no real information on the day to day management of a jejunostomy so would appreciate any information anyone might have, Thanks.