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My 4 year old has CP. Not walking yet.

My son Charlie was born at 26 weeks and 5 days. We were told early on that he had PVL found on his head ultrasounds. And this could manifest itself as CP.
Charlie was officially diagnosed from a MRI when he was about 18 months. He was late in meeting his milestones. He can four point crawl and is able to cruise but only for very short distances. He also sits up by kneeling but often adopts the W leg position. After a discussion with his Physio she feels he will be unlikely to walk independently but may become proficient with a K walker for short distances.
I wanted to ask advice could the Physio be wrong? Charlie will be 4 next month. I was hopeful that Charlie would be able to walk independently around the house allowing him to take himself to the toilet. But am beginning to think I am being naive about this. His speech is great.
Charlie was officially diagnosed from a MRI when he was about 18 months. He was late in meeting his milestones. He can four point crawl and is able to cruise but only for very short distances. He also sits up by kneeling but often adopts the W leg position. After a discussion with his Physio she feels he will be unlikely to walk independently but may become proficient with a K walker for short distances.
I wanted to ask advice could the Physio be wrong? Charlie will be 4 next month. I was hopeful that Charlie would be able to walk independently around the house allowing him to take himself to the toilet. But am beginning to think I am being naive about this. His speech is great.
Replies
As someone has already said hang on in there. I'm now 39, as a child I didn't reach any of my milestones on time except talking!!
My parents were originally told I'd never walk, talk or sit up.
But I proved everyone wrong it just took me longer to reach those points other children do.
I now live independently, am getting married next year, I have worked in the past and hope to go back to work sometime soon.
I hope my post helps you to think positively for your son I know my parents said it was hard work getting me to do my physio etc but give your son time he might surprise you all yet.
It's natural to worry about the future but try and take each day as it comes. Although my CP is mild, I live a perfectly normal life for a 17 year old. I'm fiercly independent, went through mainstream school and I'm also now in mainstream college studying a levels and I've always been of above average intelligence apparently (dont mean to blow my own trumpet!) Sure there have been some low points where I've really struggled but you get through then, you're only human. But the thing to remember is that your son, like me, doesn't know any different. To you it must seem harder than it is because you've led life perfectly able bodied I assume, but to me I dont know any different and I adapt to find different ways of doing things I otherwise can't.
Hope this helps in some way and good luck
i have a son who is 3 years of age nearly 4 he cant do anything by him self he cant sit up unaided he cant walk he cant talk but dose make sound but when owen was born i was told he would basicly be bed bound and that he wouldnt move any of his limbs BUT owen proved every body wrong he can move his arms and legs he smiles he giggles he holds his head by himself he looks around he does all the things that the doctors said he wouldnt. i have every bit of faith in my son he has proved so many people wrong you just have to encourage and show them you beleive in them its amazing how strong such young children are they are fighters and it will take time maybe a lot of time but who knows maybe one day you will be shocked and your little boy may walk and if he never does whats it matter aslong as he knows that his mum has all the faith in him he will keep trying thats how i get on day by day my son is at school and uses a standingf frame on a daily basis and the diffrence i see in him his amazing it just takes time i hope this makes sense and helps in some way
good luck
I just want to say don't give up, he will continue to amaze you with what he can do, there are so many amazing experiences out there of people with CP that go on to live extraordinary lives and prove many of the professionals wrong. I know when I was young and wasn't reaching milestones, my mum never gave up, and also didn't believe in wrapping me in cotton wool either, which I think was a very good thing.
just a few possible ideas....which are worth looking up online, things that I would have liked to have discovered earlier.
Dance movement therapy - its amazing how music can help stimulate movement.
Swimming - Water helps support the body upright
Using the wii board to help improve balance and coordination.
Its great his speech is good, that makes a huge difference, also sounds like you are doing all the right things and he is developing the qualities that will take him very far and help him be successful.
Keep us posted
Noah
Even without him hitting his milestones he has came a long way but just like many of your doctors told me he won’t walk or talk and it’s so discouraging at times feeling hopeless. I believe in my baby boy!!
But I’m just curious about other tips and tricks I can do to help my baby boy!!
A very warm welcome to the Community!
It is great to read about the progress that your boy is making and your positive attitude!
It sounds as though you have many of the bases covered but I will include some links here that may help.
Our Parents and Carers discussions:
https://community.scope.org.uk/categories/carers-of-disabled-children-and-adults
The Bobath Centre:
https://www.bobath.org.uk/about-us/welcome
Bobath is a specialist treatment and training centre, and a charity dedicated to supporting children and families living with cerebral palsy and similar neurological conditions.
I hope that helps.
We would love to hear how your boy progresses. Stay in touch.
Specialist Information Officer - Cerebral Palsy