Help with diagnosis — Scope | Disability forum
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Help with diagnosis

suzi
suzi Community member Posts: 3 Listener
edited October 2016 in Autism and neurodiversity
I have a son who is 20 years old from the bristol area who i know as aspergers but he wont admit he as a problem and wont go to appointments because of this,I really would like a diagnosis can anyone help please.

Comments

  • GinaS
    GinaS Community member Posts: 35 Connected
    edited September 2015
    Hi Suzi,

    I recently started working with people with Asperger's syndrome. I'm not familiar with the Bristol area but I've heard of two specialist services in greater London (part of NHS) that carry out assessments for diagnosis purposes.
    For one of them you can get more info here: http://www.national.slam.nhs.uk/services/adult-services/adultautism/

    It's important to consider what the benefits are of a formal diagnosis; sometimes people can access services because of a certain diagnosis, or get further help in their work environment. The post diagnosis support is very important.

    What are the areas your son is struggling (ie work, college, personal relationships) ? And what does his GP think?
  • Yiman60
    Yiman60 Community member Posts: 95 Connected
    edited October 2016
    suzi said:
    I have a son who is 20 years old from the bristol area who i know as aspergers but he wont admit he as a problem and wont go to appointments because of this,I really would like a diagnosis can anyone help please.
    I was reading about your sons illness. Has anyone ever suggested PDA, Pathological Demand Avoidance Syndrome. It's a rare form of Autism , it can be recognised on its own or with Asbergers, ADHD. It's been recognised since the 1980s , it's also known as Newsons Syndrome. It's a Jeckyl and Hyde personality , some have violent outbursts , there is also the Role Play. If you look on the PDA website there is a questionnaire and loads of information.

    http://www.pdasociety.org.uk/what-is-PDA/about-pda

    The normal Stratagies with Autism Spectrum don't work. It's the lengths they go to to avoid stressful situations. The anxiety is off the scale.

    I hope your son has amaged to get help and support. xx

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