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No freedom of choice
My 28 yr old son has CP. I shared care with my husband until his unexpected death in December.we had help at night with hoisting and 9 hrs soc support. Soc Services are now trying to take over my sons life and saying if he does not do as they say they can apply for a protection order. He is put to bed at 9.15 (and watches dvd's until 3am) as this fits in with the care agency. He's now been told he should be got up and personal care and breakfast given by carers at 9.30 as he should develop a "routine". He' does not want this and wants the freedom to choose when he gets up as he's a night person. Soc Services refuse to let me hoist and do personal care in the morning ir hoist at night though it's been classified as a one person job. Soc services say he needs a mental capacity assessment (he holds a degree) and should see a speech therapist - he has a high level of non-verbal communication skills inc gestures and ipad/keyboard and communications program. This is degrading and upsetting to him as he will never speak and has worked hard to become good at communicating . What do we do? He is losing control over his life and says he wants to run away. Soc Services seem to have no understanding if CP. Yes, he needs help but not his choice taken away. Direct payments didn't work as we live in a rural area and couldn't get a support assistant.