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Microcephaly

whitelilywhitelily Posts: 2Member
edited May 2015 in Parents and carers
My baby girl has a diagnosis of microcephaly and quad CP. She's now 9 months old and 4SD below the mean. Her brain isn't growing at the top on either side so her skull fused. I'm aware of the life expectancy being low for this but looking for others with experience of this whatever the outcome.

Replies

  • sarahprattensarahpratten Posts: 83Member
    Microcephaly was a problem for my son too, but at 20 months old we started The Scotson Technique (TST) after which he had huge improvements all round, including head growth. We also take him to a cranial osteopath which helps a lot.
  • RockyRocky Posts: 76Member Listener
    Hi,

    Microcephaly is a condition where the circumference of the head is smaller than normal. Often due to the brain not developing properly which can be caused by genetic abnormalities, infection or other problems during early pregnancy.

    There are no treatments that can return the child's head to a normal size or shape so paediatric neurologists will usually recommend a programme of different therapies to aid the child in achieving maximum function. The prognosis and what the child will achieve will vary with each individual. Depending on the severity some children will have a mild disability and maybe experience seizures and learning difficulties but others will have normal intelligence, continue to develop and meet milestones and their head will grow and can return to a normal size in relation to the child's age.

    I think it is very important that if you want to explore alternative therapies, you check them out first and ensure they are based on clinical evidence and clinical trials. The Scotson Technique suits some children but not others so it can be quite expensive trying out different techniques that may or may not help your child.

    Scope publishes a list of questions that parents should ask before embarking on any treatment or therapy. You can find this information on http://www.scope.org.uk/support/families/therapies/faqs


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