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Valuing the lives of our disabled children
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Ros
Community member Posts: 12 Connected
How many people have also had this experience? I am repeatedly invited to write "Do Not Resuscitate" on my daughter's medical notes. I keep being told that asking the question is an NHS requirement. The thing is that, like her 2 sisters, she is in good health and has a normal life expectancy. Because her sisters don't have a disability, no one would dream of saying this about them. So why are they saying it about her, just because she has a disability? I feel very strongly that this is the ultimate in disability discrimination. We're not talking about someone with a limited life expectancy, or near the end of their life, we're talking about a healthy young person who happens to have cerebral palsy. I feel so strongly about it that I started this petition: https://www.change.org/p/health-secretary-stop-asking-families-of-disabled-young-people-to-discuss-do-not-resuscitate-directives
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I have had many medical treatments and have never been asked to do this. I have cerebral palsy as well. When was the last time you were asked to do this Ros?Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Hello Speedincaesar and sorry for the delay in replying - I've been away. I get asked this every year at my daughter's annual review. Several social workers and a couple of residential home managers have told me it's a NHS requirement to put it on the agenda. And last December when I took my daughter away on a Revitalise holiday, a nurse from the organisation rang me beforehand and asked me the same question, very apologetically, saying she knows how much it upsets people, but it's a NHS requirement that she has to ask it.
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