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I'd like to hear other people's experiences of medical support with CP

Hi my name is Emma and I am 40 years old, I have a husband and three young and beautiful children. I am also a speech and language therapist. I should also mention I have cerbral palsy (a right sided hemi)
As you can image my life is very busy and up until last year I was a very active working mum. I have always walked with out aids and apart from a limp some poor coordination and not much balance I was doing ok. Unfortunately last year the ageing process caught up with me and the hip and back pain I experienced got worse and after many false starts I was diagnosed with hip dysphasia and needed major surgery. It has been a long and painful recovery. I now walk with crutches and my hips are deteriorating.
I need to to be honest that one of the reasons for joining today is to find out about your experiences accessing medical support
As you can image my life is very busy and up until last year I was a very active working mum. I have always walked with out aids and apart from a limp some poor coordination and not much balance I was doing ok. Unfortunately last year the ageing process caught up with me and the hip and back pain I experienced got worse and after many false starts I was diagnosed with hip dysphasia and needed major surgery. It has been a long and painful recovery. I now walk with crutches and my hips are deteriorating.
I need to to be honest that one of the reasons for joining today is to find out about your experiences accessing medical support
Replies
Senior online community officer
The reason for going online is
our immediate need us for a neuro psychologist for my nephew and also family therapy counselling.. These services are not a nice to have, but rather have been ordered by the Court of Protection to be in place. After a long inquiry and evaluation period, we were told that the council will not provide family therapy as they deemed the need as not serious enough despite the court ruling otherwise. We are on a waiting list for a psychologist.. Goodness knows how long we will wait. It took over a year for services such as OT,SLT, physiotherapy etc
We are facing new challenges for next year as the college will not be available and we have don't have any alternatives lined up that can both be stimulating and provide the extensive support my needs. He is non verbal yet fully intellectually aware.
So, I support your initiative to raise awareness of the plight of adults with cp and their families.
Amy Dadarria