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What disability issues need addressing most in 2017?

Chris_ScopeChris_Scope Posts: 695Member Pioneering
Twitter user (at)lifewithability has recently posted a poll which asks, "what issue do you think needs addressing the most in 2017 for disabled people?"

What would be at the top of your list?

Replies

  • MatildaMatilda Posts: 2,616Member Disability Gamechanger
    PIP assessment reports and DWP decision makers' reports.  Clearly, many of both are unfair, full of inaccuracies, heavily biased to make the claimant appear to be far less dsabled than their How Your Disability Affects You form indicates.

  • Angel40Angel40 Posts: 34Member Connected
    Same as above. Assessments and decision makers reports. The departments/people responsible need to have a shake up. Its not fair for so many people to be treated so unfairly when they are genuinely entitled to the money. This major problem of assessors reports and decision makers lies and " bended truth" needs urgent addressing. Sorry to be so blunt but why should the disabled have to accept such treatment?
  • izaiza Posts: 435Member Pioneering
    Disrespect of all disability conditions. Not recognising rare medical conditions as disabilities.
  • chasnbonschasnbons Posts: 60Member Courageous
    MDonoghue said:
    Lets be absolutely clear. The DWP carries out it's duties set by Government ministers. These ministers are fully briefed, indeed their priority appears one that besets all, chiefly money and cost. Disabled people appear to be way down the list, when it comes to human rights. Our society, one that encompasses our rights to have care and provision under the Welfare State, is under attack.
    We must have the courage to both raise awareness, and fight for our previous hard fought rights. Acts of civil disobedience are at this point in time , perfectly legitimate. Grab the paint.
    ''Lets be absolutely clear. The DWP carries out it's duties set by Government ministers''

    The above statement edited for truthfulness.....

    Lets be absolutely clear. The DWP SHOULD carry out it's duties set by Government ministers.

    Unfortunately speaking from personal experience..... THEY DON'T!!......

    Both myself and my MP have pointed this point out on numerous occasions to Penny Mordaunt giving exact instances with dates, times and even recorded phone calls, yet all she does is deny everything and spout the usual rubbish we have come to expect from her and her cronies.  Stating that rules are in place and the DWP follow them.  Even with the incontrovertible truth we have sent her, she STILL denies there is anything wrong and refuses to believe the facts!

    A simple Google search will also show the hundreds of thousands of people who have encountered the same problems, yet still she refuses to admit there is a problem with the 'system'.

    In my honest opinion, until the person in charge of this joke of a 'system' is actually disabled themselves, how is anything ever going to get better?  

    How can an able bodied person ever know what it is truly like to be disabled?  

    The simple answer is THEY CAN'T!

    THEY are fit and well and don't actually care about people less fortunate (though they pretend otherwise) and see them as less worthy of having the help they so obviously need, and as drain on society which needs to be removed!


  • MatildaMatilda Posts: 2,616Member Disability Gamechanger
    edited February 2017
    The present Government are determined to be ruthless in cutting costs, honestly or dishonestly, regardless of how many vulnerable people they hurt.  My MP, after receiving a large volume of concerns about PIP and ESA, wrote to the then Employment Minister, Pritti Patel.  Pritti Patel's reply in effect said that the Government intend to carry on cutting PIP and ESA because taxpayers shouldn't have to fund lifestyles that they themselves couldn't afford!  The Government seem to forget that benefit recipients are also taxpayers, if only indirect taxpayers in some cases.  And the Government appear to think that disabled people are living lives of luxury on PIP and ESA!

    Yes, chasbons, the Government don't have a clue what it is like for disabled people to have to cope with life.
  • MDonoghueMDonoghue Posts: 11Member Connected

    Let me attempt to clarify my original contention. Ask yourself, do the DWP lie, cheat, ignore, and abuse people, I can only speak for myself, and it's a sad yes, to all of these charges. They must accept responsibility, and be held accountable. However they have undoubtedly been given the green light, from the higher echelons of government. The buck shouldn't stop merely at the doors of DWP, rather it should fall into the arms of those in number 10. As far as representative form of government goes, it's abundantly clear that it fails to work in the democratic interest of the people.






  • FundamentalistFundamentalist Posts: 134Member Courageous
    MDonoghue said:
    Lets be absolutely clear. The DWP carries out it's duties set by Government ministers. These ministers are fully briefed, indeed their priority appears one that besets all, chiefly money and cost. Disabled people appear to be way down the list, when it comes to human rights. Our society, one that encompasses our rights to have care and provision under the Welfare State, is under attack.
    We must have the courage to both raise awareness, and fight for our previous hard fought rights. Acts of civil disobedience are at this point in time , perfectly legitimate. Grab the paint.

    Hi from Fm. There could be some truth in that. I too agree that we might need to protest again like other disabled folk had to in the past. But if we do there must be absolute unity, we mustn't let anyone divide us because they would try. I am sick and tired of far too many things going the wrong way for folk who are severely disabled like me with severe misophonia and severe heat intolerance. At the moment we have the so-called "equality" act. And misophonia and severe heat intolerance easily meet the criteria in the equality act for what constitutes a disability but instead of things being made more equally accessible for such people it's only going the wrong way, i.e. far too many things are being done which only make things WORSE for people like me and the countless others in a similar state which in this age is totally unacceptable, The office for national statistics don't even bother to count how many folk there are like me in the UK. Folk like me are being completely ignored which is appalling especially as misophonia and severe heat intolerance can completely destroy entire lives. Near to where I live there is a shopping centre with a roof like a greenhouse and in the summer it heats up to an appalling temperature inside making it inaccessible to folk like me at such times, and to make it even worse the local shopmobility shop is in there too. Yet it's still described as "accessible to everyone" just because it level access and automatic doors etc. which is not enough, it also needs heat reflective coating on the roof to be truly equally accessible as do other similar places and there's far too many of them. Heat reflective coating alone does not make a building "too cold" as some suggest, only an overpowered air conditioning system would do that. Heat reflective coating is a simple solution which uses no energy. We need to raise more awareness of conditions like I have so I would like to urge anyone else like me to speak out and not just accept the situation as it is which is no good at all. It seems that some folk's idea of "equality" means that you have to "like what everyone else likes" and "be the same" etc. which is no good at all. Equality means fair for all. Folk can't help what they're born with. Fm.
  • mossycowmossycow Posts: 486Community champion Pioneering
    1. Benefits need to be less terrifying and  towards those in need and not just away from those who don't.

    2. Abuse based on disability

    3. Toilets and good changing places

    4. Getting a broader range of people on TV, media etc. if people see us, it proves we exist!

    "I'm trying to live like a random poem I read that ended 'to bloom where we are planted"

  • FundamentalistFundamentalist Posts: 134Member Courageous
    Hi from Fm. I couldn't agree more, no-one can ever properly judge anything without experiencing it for themselves, just as I being a bloke can't possibly judge something like pregnancy or pmt. Also in my experience the DWP have been fairly good to me. I think it's a bit of a postcode lottery, how well they perform possibly depends where you live. At one point they grossly over estimated how much I had in savings and they cut my benefit by £10 a week for ages and they ended up owing me over £300 and I got it all paid back but it took some doing. Apparently they got some figures mixed up because my bank took over another and the other problem I've had with the DWP is their return postal system, I now never use their reply paid envelope because it nearly always gets lost in the post so I have to use the normal postal service at my own expense. One thing I learnt from this experience is always keep all your bank statements so you can prove your transactions as you'll need to if they make a foul up like they did with me. Rather than the DWP it's some dreadfully anti-social locals who won't be told that I'm severely disabled and unable to work. Where I live there is some folk who keep balling abuse out of their vehicle windows as they're passing calling me "lazy" and telling me to go and get a job. It's them who won't be told because they're so grossly pig-ignorant. There was also a form I had to fill in for the "re-assessment" of disability and one of the things they asked me was "how does my behaviour affect others?" only that way round, there wasn't any mention of how other's behaviour affects me, oh no! So I turned it around and I told them other folk's behaviour affects me, that one works both ways! And if they ever secretly film me anywhere they'll see for themselves how appalling my situation is. And another thing they did which really wound me up was insisting that I go to a jobcentre to have my documents photocopied, they wouldn't accept my own copies. I tried to tell them that I can't go to a jobcentre because of the absolutely excruciating noise in such a place but the person on the phone at their call centre just wouldn't be told! If they ever try that again I'll demand to talk to someone in charge and I'll get them told why do you think I'm claiming this benefit?, go and look up misophonia online. Fm.
  • MDonoghueMDonoghue Posts: 11Member Connected
    Fm. Yes there many instances - that correctly teach that experience - is primary in our concept of understanding. Whereas a great artist may paint a perfect apple, if they have never touched, smelled or tasted can they truly claim too know the apple. As far as the anti social behaviour directed at you is concerned, report it to the police. The chances are high that nothing will come of this, however it will be documented as evidence. I find this too be really quite shocking. Thanks for teaching me the meaning of misophonia.


  • FundamentalistFundamentalist Posts: 134Member Courageous
    Hi from Fm. There's only one problem with reporting anti-social cr#p to the police, they just don't want to know, even if the culprit is only yards away! And this has gone on for decades with me. And if the government decide to "reassess" me, what are they going to do? I bet I can be about 99.999% sure that whoever carries out the so-called "reassessment" will have never heard of misophonia, or 4S syndrome or severe heat intolerance, oh no! And they can't "measure" it with any fancy meters or scans etc. Why doesn't someone from the govt.'s benefits department spend a week with me and they'll get a heck of a shock as would anyone normal when they see the appalling restrictions and absolutely dreadful disruption it causes me. And the TV news report so-called "disruption" when something like the southern rail strike happens or a big bank of fog grounding the planes so the normal crowd can't get to their favourite frying hot resorts, and they think they're suffering disruption, they don't know what disruption is! they should see what happens to ME every DAY! Fm.
  • MDonoghueMDonoghue Posts: 11Member Connected
    Fm. You may consider attempting to record any harassment and presenting this to the police. This of course carries some degree of risk, however if you can raise the stakes, the greater the chance of harassment, the police response and the opportunity to raise awareness amongst the general public of your plight . I can't help but notice the distinctions being made, disabled, normal crowd etc, perhaps such distinctions only serve too further isolate.
  • FundamentalistFundamentalist Posts: 134Member Courageous
    Hi again from Fm. I am going to get a portable recording device of some kind at some stage if I can find the right one which is proving well nigh impossible as now they're nearly all either USB or HDMI only which I don't need, I need one with an old CVBS output as I still use an old British TV which I refuse to part with. And even if I did gather hard evidence I bet they still wouldn't want to know, but they'll pounce on ME straight away if I fully justifiably get someone told when they started it as they always do. And I take it you've never suffered anything like really extreme misophonia like I have otherwise you would know that it means I absolutely cannot "integrate". Which is why I've lived in the same house for over 30 years and never once had any personal company round, which in my place is a virtually impossible task as I have to have white noise on nearly all the time. It really infuriates me when I read about other folk supposedly "suffering" with what they regard as really serious misophonia and then they mention they have a decent job that pays enough to support a car and then they mention their partner and going out for entertainment etc. Well how on EARTH CAN THEY?! I can't have anything like that! They obviously don't have it anywhere near like what I've got. And with some people it's no good trying to be all "diplomatic" etc. as they only see it as a weakness to be exploited for their own sick and perverted pleasure and with that sort aggression is the only thing they understand. And in my experience with authority when it comes to dealing with anti-social types it's all "defend the enemy and pick on the victim". Instead of trying to solve the problem they just become part of it.  When you're like me total isolation is a must and it absolutely infuriates me. And I read somewhere today on another "disability" site that they have a bar which they regard as a so-called "safe" environment for disabled folk. Well what absolute contradictory nonsense! How on earth can a bar be a safe place when it will be full of absolutely appalling and excruciating noise! Such a place is totally inaccessible to me as are libraries now too. This just shows how massively out of touch some people in the disability field are with reality. It's about time misophonia like I have was more well known. Fm.
  • anaqianaqi Posts: 54Member Courageous
    What issues need addressing most?

    Acess to public transport and public places, including suitable toilets.

    A fairer benefits system that looks at the person rather than a set of tick box questions.

    Public perception of disabled people.  We are not all paralympians, we are not all sad cases to be pitied and cared for, and not all people on mobility scooters are fakers and benefit cheats.

    Acess to appropriate mobility equipment without having to pay over the odds.

    Appropriate support from Social services based on needs rather than limited by budgets.

    Improvements in the NHS, better communications between hospitals and GPs. It takes seconds to send an email to the other side of thr world, why does it take 6 weeks for a consultant letter?  Better access to services such as physiotherapy and mental health services. Shorter waiting lists, 12 months to see a consultant and 5 weeks to see a GP is too long.
  • FundamentalistFundamentalist Posts: 134Member Courageous
    anaqi said:
    What issues need addressing most?

    Acess to public transport and public places, including suitable toilets.

    A fairer benefits system that looks at the person rather than a set of tick box questions.

    Public perception of disabled people.  We are not all paralympians, we are not all sad cases to be pitied and cared for, and not all people on mobility scooters are fakers and benefit cheats.

    Acess to appropriate mobility equipment without having to pay over the odds.

    Appropriate support from Social services based on needs rather than limited by budgets.

    Improvements in the NHS, better communications between hospitals and GPs. It takes seconds to send an email to the other side of thr world, why does it take 6 weeks for a consultant letter?  Better access to services such as physiotherapy and mental health services. Shorter waiting lists, 12 months to see a consultant and 5 weeks to see a GP is too long.

    Hi, from Fm. Dead right, couldn't agree more. I'm no cheat, I depend on benefits. And I don't want pity, just proper official recognition of the appalling conditions forced on me which are currently ignored even by disability organisations who don't seem to realise such folk even exist. And there needs to be far more and better education in our schools and other institutions about more hidden and more extreme disabilities like I have, like misophonia which is not even recognised by this message field and also severe heat intolerance which makes you far too hot all the time even in the freezing British winter! I've had it so bad that there's been many a time when I literally couldn't walk more than about 100 yards or even less without burning up and absolutely pouring with extreme profuse sweat which is absolutely excruciating. Sometimes when I've gone to visit someone who lived well away from the bus stop I had to go miles early so I could sit outside their place for up to an hour to try and cool down before going inside their home. This is the kind of disability that needs to be properly and officially recognised as disability on it's own and not just as a side effect, and it's the same with misophonia which can be absolutely brutal, it's not just disability, it's absolute torture! And the Paralympics is so totally unrealistic in it's representation of disability, it only shows those with "white sticks and wheelchairs" or prosthetics etc. but absolutely no mention whatsoever of anyone remotely like me, oh no! And it's the same with the "undateables", that is so totally unrealistic and narrow. I tried writing to the makers of that show but needless to say they just didn't want to know and just totally ignored me as far too many do. And more public transport like trams, trains and planes need segregated proper quiet areas for folk who are autistic or have misophonia. It's not all about mobility and sensory problems. And of course the "tick boxes" never cover anyone like me and those in the offices have never heard of anyone like me either which is appalling. This is the kind of thing which needs dealing with in 2017! Fm.
  • Sam_ScopeSam_Scope Posts: 7,732Administrator Scope community team
    Julie on twitter says:
    The lack of support for 18 yr old ASD pupils leaving school.
    Scope
    Senior online community officer
  • FundamentalistFundamentalist Posts: 134Member Courageous
    iza said:
    Disrespect of all disability conditions. Not recognising rare medical conditions as disabilities.

    Hi from Fm. Dead right! I couldn't agree more. Both severe heat intolerance and severe misophonia continue to be unrecognised as disabilities which they certainly are, even a company director I once knew agreed with me on that point. And another thing that really winds me up with the DWP is the point in their letters about textphones. It usually says something like "textphone number for the deaf and hard of hearing ONLY!" Well to me that is aggressively discriminatory. What if someone who is severely autistic or someone with really severe misophonia needs to contact them and they absolutely can't stand having to listen to any of the often excruciating noise in the background at the call centre which often happens at call centres. Someone once phoned me from a call centre and the noise of the absolutely raucous hysterics in the background was so appalling that I had to tell them I can't possibly talk to them with all that appalling noise going on. So textphones should be made available to more disabled folk, not just the "deaf and hard of hearing" only. This is just one reason why more conditions and disorders urgently need to be properly and officially recognised as disabilities on their own and not just as side effects. Fm.
  • MDonoghueMDonoghue Posts: 11Member Connected
    Fm. It's difficult to know where to begin, I had never heard of these appalling restrictive conditions, I find it almost incomprehensible. When I was physically fit, I would often leave the city and camp on the remote west coast of Scotland. Noise from the wind, and the waves crashing or lapping, birds calling and the occasional passing car.  We spent ten nights on this deserted beach, on our return to the city, we found the noise almost unbearable, strange as it never bothered us before. It took a couple of days to readjust to painful noise. Do people who are deaf - suffer from misophonia ?
  • FundamentalistFundamentalist Posts: 134Member Courageous

    Hi from Fm. Do the deaf suffer from misophonia? I don't know, they certainly wouldn't be affected by noise, that's for sure but it does also have visual effects too making some visual things unbearable. So I suppose some deaf folk could be affected that way. Whenever anything badly affects me it makes me really furiously angry and it constantly happens so I never get to properly unwind. How can I when it's the so-called "feelgood" stuff that causes the aggro in the first place. Most people who have a dreadful time with something can go and watch some comedy or socialise with friends or family but that's just not possible with me, it would only massively exacerbate it and furiously wind me up even more and provoke me to really serious aggression which is what frequently happens and I'm sick and tired of it absolutely every day. And it really infuriates me when I see just how many so-called "professionals", including lots of disability specialists have never heard of such conditions when they should, it's their job to know. Just what kind of training do these people have? Have those that train them never heard of it either? This is why I joined this site and I've just written a rather long and detailed email to another disability outfit the other day to explain it to them. And believe it or not even one so-called "approved professional" that the police use when they arrest someone on a 136 order had never heard of it either and he of all people should, they really need to. I'm just a nobody and I shouldn't have to try and explain it to such people, it should be in their training, that is absolutely crucial!. So far I've only met one such person who has heard of misophonia so this is why it really needs to be properly recognised as disability and so does being far too hot as this latter condition can seriously immobilise a person as it often has with me. Sometimes I've been so brutally and massively overheated I literally couldn't move for absolutely ages. In fact I once went out this time of year in 1999 when it was only 4 degrees C and I had to strip to the waist and sit on a bench for absolutely ages and I STILL absolutely could NOT cool down! Eventually I managed to put my T shirt back on but I couldn't wear any more until the sun went down! How about that!? Yet far too many keep referring to frying HOT climates as "paradise", they must be out of their tree!. That is deadly serious extreme disability and stupid transparent roofing only massively exacerbates it, it's definitely NOT all white sticks and wheelchairs as far too many still think. Fm.

  • MDonoghueMDonoghue Posts: 11Member Connected
    It's hardly surprising you feel angry, particularly with professionals who should know better. As for cooling down, surely someone out there can help in some way. When I become overheated I put a couple of ice cubes on my wrists, although I'm pretty confident that you have tried all sorts. I can only wish you luck. Perhaps someone could design a flag that one could identify with, and associate with Misophonia.
     
  • Chris_ScopeChris_Scope Posts: 695Member Pioneering
    Sinead on Twitter has commented: "Lack of support and how hard it is to get the support you need and funding for it."
  • bendigedigbendigedig Posts: 254Member Pioneering
    edited March 2017
    Ive been reading a lot of peoples posts.

    I'm noticing that there are a lot of peopke out there like me that have been [email protected]@ on by the establishment.

    I have also noticed that there are others like me that feel very pasionately about the wrongs that we are not only having perpetrated against ourselves personally but also those perpetrated against others. 

    I kind of knew how bad things were getting by what my family alone has been through.  Hearing other peoples issues with the establishment has served to crystalise my desire to try and do somthing to demonstrate my oposition to what we are being subjected to.

    I am nowhere near London but I am Mobile...   I am willing to protest, take direct action etc.  If anybody has connections to activist groups or wishes like me to speak out or even take action then please let me know.  I know some are more able to do more than others.  Im willing to do what I can.. Id be proud to stand in solidarity with anyone who wishes to stand up to the errosion of our rights and qualitiy of life because of the greed and ignorance of our glorious leaders.

    I would be delighted to hear from you. I dont have any ideas or suggestions but Im willing to speak out and take action in some way.  I have probably now become subject to eaves dropping from GCHQ be warned! :)
  • SAMW112SAMW112 Posts: 6Member Listener
    I MOVED FROM LIFE LONG DLA HIGHEST RATE ON BOTH TO PIP HIGHEST RATE ON BOTH ,AS I HAD NO CHOICE THEY THREATENED TO STOP MY DLA IF I DIDN'T SWITCH THEY SAID MY INCOME SUPPORT WOULD NOT BE STOPPED THEN MY INCOME SUPPORT STOPPED NOW MY HOUSING BENEFIT I AM NOW WITHOUT MONEY EXCEPT PIP WHAT SHOULD I DO I AM EXREAMLY ANGRY AND LOST NO MATTER WHAT I DO IT GETS WORSE HELP !

  • bendigedigbendigedig Posts: 254Member Pioneering
    @SAMW112

    Im so sorry that you are in this situation.  I, like you am very angry at what is going on.

    What we need is sombody to speak out.  Sombody who is respected and has a bit of clout.  

    This is happening to too many vulnerable people!  People are dying because of bennefit cuts for Gods sake!

    What the Hell is going on?
  • SAMW112SAMW112 Posts: 6Member Listener
    edited August 2017
    @bendigedig
    know i got a kidney trasplant and coz i aint on i.s now i cant get medication to stop my body regecting my new kindney so i am f**ked 
  • MatildaMatilda Posts: 2,616Member Disability Gamechanger

    @SAMW112

    Why has income support and housing benefit been stopped?  Suggest you re-post in the Ask a benefits advisor category.
  • SAMW112SAMW112 Posts: 6Member Listener
    edited March 2017
  • basiclee08basiclee08 Posts: 71Member Courageous
    One fair system were all disabled can claim and get benefits without being made to feel a drain on society. But for that we need a decent government and politicians never going to happen not in my life time thou. 
  • bendigedigbendigedig Posts: 254Member Pioneering
    @basiclee08

    My friend none of us are a drain on society :)

    We are society!  This countries wealth was not made by you and/or I alone but for generations our ancestors have worked, fought and suffered under the yolk of whichever regime there was at the time.

    Never consider yourself as a drain on society!  Anybody that thinks this or says this is very wrong.

    A civilisation is only as good as the way that it cares for those that can not fully care for themselves.  Besides collectively, we "disabled" people make more than a valid contribution to our society on many levels.

    We may not believe it is possible to achieve fair and proper governance in our life times but we would be foolish not to expect it, if not demand it :)

    Fight the good fight :)
  • bendigedigbendigedig Posts: 254Member Pioneering
    @SAMW112 What you are going through sounds to me like a complete travesty? What the hell are the health care profesionals doing in your part of the world? Is your GP aware of your predicament? If they are why arent they creating merry hell to ensure that you are in a "safe financial environment" conducive with recieving the proper care and medication that you require? You need an advocate and fast. You shouldnt be putting up with this bloody ridiculous situation in your circumstances! Find out if there are any advocacy services in your area. This situation is totally messed up? This sounds all wrong!
  • SAMW112SAMW112 Posts: 6Member Listener
    @bendigedig
    No there aint none of that theres a help number but they work for the benifit agancey so dont help ether all they do is try to catch u out by twisting your words against you its hopeless
  • wildlifewildlife Posts: 1,316Member Pioneering
    SAMW112
    If you've got higher rate of PIP your Housing Benefit should not be stopped you should get more if not all your rent paid. Ring the council and try to get your PIP decision letter to them to sort it out... 
  • bendigedigbendigedig Posts: 254Member Pioneering
    @SAMW112

    Have you had any proper adviced from a well informed specialist from this online community?

    Im not qualified to give you any advice, Im just a concerned fellow forum member :)

    Have alook at your Local Authority website.  See if you can find any information on organisations that offer support and advice in your area?

    you could simply GOOGLE your local town or region (etc) and add the words "advice" and/or "advocacy".

    In this day and age I cant believe what you are saying is happening to you!  Its utterly scandalous!

    There seems to be a closed shop mentality with local services these days.  There are no effective National Bodies ensuring accountability.  Nobody seems to want to take responsibility for anything!  When you try and get some sort of help or resolution to an issue with a service provider the cop out is that they mire you down in an organisational complaints process.  If you survive that then the expectaition is that you will go to a governing body or an Ombudsman.

    THE WHOLE THING IS A SHAM.  Its a series of blind alleys to chase a white rabbit around.

    The only people getting any justice in The UK Today are THOSE THAT CAN AFFORD IT.

    What we are experiencing is the increasing widening of the CLASS DEVIDE.

    I really feel for you....  I wish you luck.  There must be somone here that can direct you to a source of help?


  • NystagmiteNystagmite Posts: 609Member Pioneering
    - my councils' inability to make a small reasonable adjustment of sending me letters in a format that I can read. Their arguments include "because it costs us money" & "there isn't enough demand"
    - support for adults with Autism. I've received no support since my diagnosis. I was pretty much told to get over it... 
    - Educating people on invisible disabilities. I'm stared at if I've got my mobility cane or walked into or accused of faking it if I use disabled facilities. (disabled toilets, seats on buses, my disabled persons bus pass, etc)
  • htlcyhtlcy Posts: 132Member Pioneering
    1) accessibility. It's 2017, and we've still got a terribly long way to go. Accessibility is always an afterthought. It'd also be useful for venues to list what makes them accessible; having a wheelchair ramp may be useful for a wheelchair user, but what about heavy doors/steep steps/noisy atmospheres? I think we need to expand upon what accessibility means. It's as varied as the disabilities that exist!
    2) inclusions, particularly for those at schools and universities. Again, students with disabilities aren't often the top of the list priority-wise, and as a teacher in a Learning Support dept of a sixth form college, I can attest to this. 
    3) More info on 'invisible disabilities'. I have hemiparesis (cerebral palsy) and a severe spinal curvature, but for some reason I always have to justify needing to sit at the front of buses/using disabled toilets. 
    4) More authentic, true-to-life portrayals of disability that don't perpetuate the 'disability as tragedy' narrative, in both literature and other forms of media.

    Just a few ideas! Thanks for sharing, everyone. It's so important
  • izaiza Posts: 435Member Pioneering
    Hi I agree with statement that indeed "invisible disability " just exist as word only. There are big numbers who even does not know what does it mean. 

  • bendigedigbendigedig Posts: 254Member Pioneering
    @SAMW112
    how are you getting on?
  • Hudo53Hudo53 Posts: 9Member Listener
    I think mobility needs to be looked at for the over 65s.   We are finding it really difficult to go anywhere because I have arthritis in my hands and lifing the chair into my car is really difficult, dropped the wheelchair loads of times as just cannot lift it.  Also the disability as it is with mobility, why are 65s not even allowed the reduced car tax?  So once you get 65 and disabiled you are really penalised.

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