Helpline 0808 800 3333 or contact us
For disability information call free
0808 800 3333 or contact us
0808 800 3333
Anything else? Other ways to contact us
Hi, I'd be interested to hear from people that have got their diagnosis as an adult and how they went about that. I've been trying for apx. 3 years via my GP and haven't got anywhere. Is going private the only option as an adult ?
It is worth noting that NAS do not fund assessment as a rule, although they may do it on rare occasions. Your GP is always your best point of contact to start with, obviously - if you are lucky enough to live in an area with a good assessment pathway for adults you can be assessed through the NHS. Many areas offer this, but some do not. NAS can advise on other routes to take.
not aware that NAS do fund assessments, as there is no mention of this at all
on their website.
both the child and adult section, you need to get a referral
from your GP, or go privately. We spoke to the Cambridge
branch and the lady we spoke to confirmed that NAS is
in the same building as the PCT – and NAS do not do the actual diagnosis, but
they share facilities in the same building and offer various clinics after diagnosis.
diagnosis is available on the NHS, there can be quite a long wait – hence
someone going privately, which is suggested on the NAS website.
I cant see any reference on their website about raising funds for
do a lot of work to raise awareness by supporting various professionals, but I
can’t see that they offer medical training to make such a diagnosis.
The NAS may run the diagnostic centres but I can't find any information to say they pay for the assessments. They charge the NHS for the assessment and it is
up to individual CCG to decide if they will pay.
Hope this helps, we can see from members posting that the diagnosis process can be difficult, confusing and quite different for people depending on where they live.
What do you do if you believe you have a disability other than autism?
Hi All, thank you for your input.
@davidj49, thanks for the pointers. I didn't know about the AQ test. I scored 37! I don't think it's all doom and gloom, but I do think your story is exceptional and amazing and I'm so glad your GP listened to you. For me it is very wearing. Like Violet I only started put 2 and 2 together when researching to help my two neuro diverse sons. A definite light bulb moment.
SFP - I think NAS is still a good place to start. There is so much overlap and co-existence between ASD/ADHD/Aspergers/Dyspraxia to name but a few, that they may still be able to point you in the right direction, if your GP can't. I do get really wound up with doctors that ask me 'so what do you think it is?' .
Sam - I have the NAS form for my local diagnostic centre. I will complete it and take it to my GP who will hopefully refer me now I've done the research for him, even if he doesn't, I'll still send it off. I am realistic that I think I am still looking at costs but at least I'll know how much. Of course I will first suggest that my local CCG pay for it but don't hold out much hope.
I'll keep you all posted.
I'm still on the NHS waiting list. I called them last month to make sure my name was still there and to see if the list was still as long. They think 9-12 months waiting so I'll call again at the end of March for an update. Still hopeful I'll get there eventually.
The 'coping' thing drives me nuts. There was no diagnosis for the things I find difficult when I was younger. I knew I perceived things differently from other people. I learnt some things through trial and error, some awful relationships, and some 'curl up and die' social situations. That doesn't mean those same things aren't still really difficult, and if anything the need for the answers to why I feel the way I do is even more important to me now than ever. I don't think any health professional should be allowed to 'write you off' because in their opinion you are 'coping'. Whether you are a child or an adult, you should still have access to a diagnosis.