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Late diagnosis of Cerebral Palsy - is it common to find out in later life?

scotthulinscotthulin Posts: 1Member Listener
edited February 2017 in Cerebral Palsy
Hi , I'm a 43 yr old male nurse . I have always had a 'left sided weakness' as my mum explained it. Also epilepsy since childhood. Lately my Dexterity has deteriorated. Seen the GP today who thinks I may have cerebral palsy! Shocked to say the least. Is this common to find out so late in life? 

Replies

  • Sam_ScopeSam_Scope Posts: 7,732Administrator Scope community team
    Hi @scotthulin welcome to the community, I have moved your post to the CP category where I am sure other members will be able to give you their experiences.

    There's quite a bit of information on CP here that you can read but also do have a search of discussions here on the community as we have lots of members with CP.
    Scope
    Senior online community officer
  • AlexAlex Posts: 1,325Scope Team Scope community team
    Hi @scotthulin

    There have been a couple of posts from people in a similar situation which you might find interesting:

    https://community.scope.org.uk/discussion/27986/newly-diagnosed-with-mild-cerebral-palsy 

    https://community.scope.org.uk/discussion/30180/ive-just-been-diagnosed-with-spastic-cerebral-palsy-at-age-21-i-need-guidance-and-support 

    This bit from @Rocky is interesting:

    Hi, Strange as it seems, it is quite common for people to receive a diagnosis as an adult. This does not mean the cerebral palsy has just occurred, just that this is the first time the official diagnosis has been mentioned. Cerebral Palsy is caused by damage to the immature brain so before, during or shortly after birth. The brain matures at around 6 years of age. Obviously most people are diagnosed as children and that is why the information you have read mainly relates to children. However, for a number of people who are now in their 30s, 40s, 50s or older, the first they know about having CP is when they visit their doctor for something and it is mentioned because the diagnosis is on their medical notes. Often parents did not want to accept the label of cerebral palsy or felt that it may adversely affect their children especially with education so a child could grow up just thinking they had a developmental delay or that their arms or legs did not work properly. Getting the medical diagnosis later in life is then quite a shock. So although you have only recently been given this diagnosis, you will always have had a form of cerebral palsy. There is information about cerebral palsy on the Scope website and your neurologist should be able to tell you more.

  • RutaRuta Posts: 2Member Listener
    Hi to Rocky,I have cerebral palsy I am 45. I want to tell that I am born healthy child, but got cp when I was 6 year old.
    So with cp it's not all that easy and clearly.
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