If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Reasons for wanting a diagnosis in adult life

What were your reasons for wanting a diagnosis as an adult and how have you felt your life has changed since getting the diagnosis


  • kkeegan92kkeegan92 Posts: 3 Listener
    Totally agree with Ariel. I was 38 when diagnosed in 2015. It's changed my life! It's given understanding to my life and let me be easier on myself and to take steps to make my life easier for me. 
  • joannarashellejoannarashelle Posts: 134 Chatterbox
    Agree completely with both @Ariel and @kkeegan92!

    The most important thing was to allow myself to be free and not restrict my passions in life, to be kind to myself for once instead of berating myself for being 'different', I've actually started feeling proud of myself for the first time in my life instead of wanting to hide away because now I know why I struggle with overwhelming stimuli and it's not because I'm "over reacting".

     if we on the spectrum have lived in what can be a frenetic noisy aggressive confusing challenging world without knowing why we feel so scared 'freaked out' depressed (over and over I was told by professionals my social struggles were down to depression.. ) and we can survive then we can GET THROUGH ANYTHING. 

    In fact I've turned a huge obsession of mine into a career well actually it's more of a way of life hehe.. 
    I was told oh so many times not to put animals first, that my dogs got too much of my time my attention.. yet I never knew why I've always felt at ease completely safe around animals yet struggled to maintain this feeling of safety with (some) people. 

    I've always rehabilitated and cared for troubled dogs (and animals in general) now I just get paid for it. 
    Which is amazing for me. 

    So with with all those recently diagnosed later in life, embrace your passions.

    It will bring you inner peace HURRAH xxx
  • DannyMooreDannyMoore Posts: 267 Chatterbox
    I agree with everyone, it's another part of knowing yourself. Always asking the question, why do I have uncommon differences and struggles?
    Once you learn that you have autism you can learn how to use it to your advantage. Reshape your life to fit your new self without wondering why you're so different to the majority around you.
    Don't Fear Your True Self
  • joannarashellejoannarashelle Posts: 134 Chatterbox
  • bendigedigbendigedig Posts: 257 Chatterbox
    I didnt think that I needed a diagnosis.

    I'm not sure that if it makes any difference to me personally.

    It makes a whole lotta difference to other interested parties though.

    I suspect the merits (or lack of them) of a diagnosis are largely dependant on your personal circumstances.  I think its  a case of weighing up the pros and cons.

    Predictable outcomes have been people treating me as if there is somthing wrong with me now.  Although I live in a fairly backward, backwoods, backwater so I suppose thats to be expected.  

    Speaking from my own perspective.  I dont think that it has helped or bennefitted me in any way.

    My wife would probably disagree with me though.

    I havent felt the same since recieving a diagnosis.  It has not been a positive experience for me.   

  • lonewarriorlonewarrior Posts: 13 Whisperer
    I have mixed feelings if I were now diagnosed at 54 years old, I am pretty sure I am high functioning autistic and that's fine, it was very emotional when the reality kicked in, the feeling of sadness followed by anger and then crying my eyes out! I had suddenly found out who I am, I had found the reason I had such a bad time in school, I found out why I constantly have to "act" in a certain way to fit the situation. All the strange thoughts and behaviours every second of every minute of every day, learning to cope so that I appear normal. I don't feel I need a label especially as most people who know me have said " I think your right and it certainly explains a lot about you", And here's the BUT, As much as it has allowed me to be me at last instead of trying to be someone else, there are those that come out with the statement "well if you will go looking then you can fit any condition, you should stop reading so much"  and "well I do this or that so I must be autistic also" they really don't get me or it! I don't feel I need to justify it to them but I feel they belittle autism and me, this condition has controlled my life and still does so how dare they snipe at me as if it's a joke or a minor thing. I always assumed I had mild dyslexia but looking back it wasn't. I just didn't understand the rules for reading and writing, I refused to accept it all, once I had been given the help to understand the rules I got extremely angry that they(everyone) had not explained to me how I should think? I accepted the rules and could read and write almost straight away. Only today I told my boss I thought I was autistic! We were discussing why I get so stressed out. I told him all that I do is for my fellow workers and the better ment of the company. I am very passionate about rules, health and safety, and caring about others. He straight away agreed and could see all the quirky things I do are part of being autistic. I think he was relieved as it allowed him to understand me more as a person.he thinks I should get diagnosed.
    Anyway I just realised how much I have gone on, sorry I get a bit obsessed and over explain everything, I'm off for a rest, thank you for listening.brian.
  • lonewarriorlonewarrior Posts: 13 Whisperer
    How funny is that? I have just read the link Ariel posted in her post above.her more in depth reasoning for being diagnosed. I thought she was writing my life story? And then coming back to this section spotted her post.

    It says " but in brief", 52 lines of writing and my 45 lines of writing to get across a simple answer. Really funny to use so much dialogue for something that could be got across so quickly. Ok so I smiled and feel happy and love that Ariel is as passionate as I am no matter what the subject. I am trying to say it feels good to go on and on, because that is who WE are. And yes I counted the lines and this is in no way me having a dig. Lovely to know there are lots of wonderful caring intelligent people like US. Brian.
  • NystagmiteNystagmite Posts: 116 Talkative
    I was hoping that a diagnosis would lead to me getting the help I need. But no, social services are utterly clueless and I was pretty told there's no help for adults who have been diagnosed. But everyone wants me to get back to work. Just how when I can't cope with people, I really have no idea.
Sign in or join us to comment.