PIP, DLA and AA
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is it worth applying for pip

valleylass88valleylass88 Member Posts: 6 Listener
hiya all very newbee to this site .

i suffer from lupus anticoaglant,factor v5 , vascular disease, had mastiod surgery , on warfarin for life , awaiting rematolgy, spine bifida occulta , arthritus , water odema both legs ,  livedo reticularis upper partof legs and arms , 

i get days were i got no energy , where body just aches cant remember a day when i didnt have no pain of sorts .

i did try to claim pip;astyrgot turned down and didnt bother trying 

my son gets pip and i claim care allowance , 

i know i not going to get any better and what i have noone can see 

Replies

  • BenefitsTrainingCoBenefitsTrainingCo Member Posts: 2,692 Pioneering
    Hello valleylass88

    When was PIP refused? Was it a recent decision?

    If PIP was not refused recently I would encourage you to try and claim PIP again.  Although not said in your post, from the list of your illnesses i expect that you struggle with all aspects of daily life and mobility. 

    You are probably aware that for PIP you need to score at least 8 points on the assessment to be awarded benefit. The Scope website has a PIP self test, and a great explanation of this benefit. The link is below;
    http://www.scope.org.uk/support/disabled-people/benefits/personal-independence-payment-pip

    It may also be worth seeing if an adviser for example at a Citizens Advice Bureau, or independent advise center can help you fill out the form.  

    Maria
    The Benefits Training Co:
    Paul Bradley
    Michael Chambers
    Will Hadwen
    Sarah Hayle
    Maria Solomon
    David Stickland
  • valleylass88valleylass88 Member Posts: 6 Listener
    sorry i applied last aug/ sept turned down october 

    yes i do stuggle with mobility , might get good day where i dont but then i try and make up for my bad days then following day i regreat it 

    but to look atlupus person we look well , which annoys me as im not 
  • jose2jose2 Member Posts: 128 Pioneering
    hello @valleylass88,I too have Lupus, can't understand why you were turned down for a PIP or did you not take it any further after an assessment,did you have an assessment?.
    Lupus is a very debilitating illness and as you know it will never get any better ,this is what I told the drs at ATOS,it affects me every day from morning to night,the pain is unremitting/unrelenting,that I can walk about 5/10  steps then have to stop,then try to start walking again.I went on lots of Lupus sites,they are very helpful.Could your Rheumatologist or Lupus nurse help you with your claim again
  • BenefitsTrainingCoBenefitsTrainingCo Member Posts: 2,692 Pioneering
    Hi @valleylass88


    If you were turned down in October of last year, then you could ask the DWP to look at your decision again, (you can do this up to a maximum of 13 months after the original decision date) but you would have to have really strong reasons why you had not challenged the decision within the usual 'one calendar month' period. My experience is that unless people have had periods in hospital where they can show they were unable to submit a challenge then the longer you are from the original decision date, the harder it is to have your challenge accepted.

    As we are now 8 months on from October I would strongly echo Maria's comments and suggest you contact a local advice service / centre who can help you through the PIP claiming process again.

    Please don't be disheartened and please try again. Find as much medical evidence as you can and if possible get a supporting letter or two from any medical professionals who see you.

    All the best,

    Laura
    The Benefits Training Co:
    Paul Bradley
    Michael Chambers
    Will Hadwen
    Sarah Hayle
    Maria Solomon
    David Stickland
  • valleylass88valleylass88 Member Posts: 6 Listener
    thank you all 

    i am not under anyone , but in april 17 , i referred to see a consultant about pittng water odeama in both legs , who was really understanding and im on waiting list for rehmatologist , also mentioned i have vasuclar diease ,  said iwould propebly need water tablet long term 
    i dont see lupus nurse  

    i didnt mr or take it further as i was only under gp 

    will phone now and redo claim and phone cab to ask them with form filling 
  • BenefitsTrainingCoBenefitsTrainingCo Member Posts: 2,692 Pioneering
    valleylass88,

    I agree with my colleagues that you probably should be getting PIP. Getting the CAB to help you is a good idea. Although evidence from a consultant is ideal, your GP may also be willing to write a short statement. Remember that what is important is the effects of your condition - what you can and cannot do - not the diagnosis itself.

    Good luck!

    Will
    The Benefits Training Co:
    Paul Bradley
    Michael Chambers
    Will Hadwen
    Sarah Hayle
    Maria Solomon
    David Stickland
  • valleylass88valleylass88 Member Posts: 6 Listener
    0 points again rhumy has done bloods so will wait for outcome before i try for 3rd time cant be bothered at mo as son got his review pending and i have shingles , so no energry 

    thanks for support 
  • poppy123456poppy123456 Community champion Posts: 21,187 Disability Gamechanger
    Hi,
    I'm sorry to hear this. Have you thought of asking for a MR then Tribunal appeal instead of all those new claims? All these new claims you're most likely going to keep being refused. What DWP want is for clamaints to give up and not go down the appeal route. This is exactly what you're doing and exactly what they want.

    CAB are very good at helping with letter for MR's and Tribunals. I advice you to do this rather than start a new claim again.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • valleylass88valleylass88 Member Posts: 6 Listener
    i keep thinking its coz i claim caeers but its more mental care for my son promting to bathe , promiting to wear coat , trying to keep him carm if appointments get cancelled , write plan of whats happening if busy day

    but will ask for mr or explaing what f2f said report 
  • poppy123456poppy123456 Community champion Posts: 21,187 Disability Gamechanger
    Plenty of people claim Carers Allowance and have a PIP award theirself. As you're PIP claim doesn't contradict the reason you're claiming CA then that wouldn't be why.

    Have you rang PIP and asked for a copy of the assessment report? If you haven't then i'd advice you do this. This report will help you to know exactly what was written during your assessment. For the MR you'll need to point out where you think you should have scored those points and the reasons why. You only have 1 month from the date of the decision to ask for the MR, so please don't delay the process.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • CockneyRebelCockneyRebel Community champion Posts: 5,259 Disability Gamechanger
    All good advice, please come back when you have the report and we will try to help you with your MR

    CR
    Be all you can be, make  every day count. Namaste
  • BenefitsTrainingCoBenefitsTrainingCo Member Posts: 2,692 Pioneering
    Hello valleylass88

    I would encourage you to request a Mandatory Reconsideration as detailed in previous posts.  It would be helpful if a specialist can provide evidence or you can see your PIP medical assessment but please do not let this prevent you from lodging an in time Mandatory reconsideration request.  You have one month from the decision letter date to lodge your request.  In addition, you can always provide additional evidence and information once you have lodged your Mandatory Reconsideration.

    Please post again if you need support and help with your Mandatory reconsideration.

    Maria


    The Benefits Training Co:
    Paul Bradley
    Michael Chambers
    Will Hadwen
    Sarah Hayle
    Maria Solomon
    David Stickland
  • valleylass88valleylass88 Member Posts: 6 Listener
    well missed date for mr and now been discharged from rhumatology , also dont have lupus anticoaglant ,so have putincomplaint with my health boardas9yrs was told i had it 
    going to change dr as i went there said it hink i got depression to be told take baby steps open curtains walk around the block 

    i have spine bifida and arhtrius but never been told which form ,

    i have always defending our hospital when people moan about waiting list ,its free and people live longer 


  • CockneyRebelCockneyRebel Community champion Posts: 5,259 Disability Gamechanger
    You can request an MR if you can supply good reason for it being late. It could be refused, if it is there is then a way to appeal to the tribunal. Some time we have to fight even if we have nothing left in the tank or this system will beat you down even more

    CR
    Be all you can be, make  every day count. Namaste
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