If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Visual impairment and support

EJS_96EJS_96 Posts: 6Member Listener
Hi

Im Ella and I'm 20, currently studying at university (just finished 2nd year.) Recently, I have noticed the effects of my VI have been making me feel quite down and isolated ( not necessarily physical isolation but more like I'm not feeling like I can participate), what I mean by this is when I'm watching football or rugby (live and on TV) it's difficult for me to keep up with what is happening and other situations. When I was younger I think I was supported by the RNIB and my local councils' VI team, me and sometimes my family would be invited to events where I could meet other children my age who were blind/VI, so I had someone to speak to in a similar situation. My question is, is there any type of peer support for adults? I understand these forums could be one, but maybe support in person also like meeting people etc? I am an independent person I live away from home in term time, etc, it's just sometimes I want to speak to someone who actually understands partly what I'm going through. Any help is much appreciated. 

Replies

  • NystagmiteNystagmite Posts: 609Member Pioneering
    Welcome. I'm also VI and found there's no support at all for adults. There appears to be only support for parents of young children and people 65+.
  • EJS_96EJS_96 Posts: 6Member Listener
    That's frustrating, I found the RNIB helpline info on their website and other helpful tools but I don't think it's what I'm looking for. Not sure how this lack of services can be helped/changed. Most things are done online these days which is good but sometimes it makes me feel isolated also. Has anyone experience this feeling before? 
  • HarpHarp Posts: 68Member Courageous
    Welcome. I'm also VI and found there's no support at all for adults. There appears to be only support for parents of young children and people 65+.
    I have sight problems and learning difficulties. I found the help for people is for the old person in life, and help for people with learning difficulties is for children and young people till they come out of education. If you between them ages, you don't exist.  I been told there is help for adults but you need to find it yourself cus it is seam not to be offered. 
    ANNE ROBINSON (1 VOICE)
    https://www.facebook.com/1Voice.Vision.of.the.heart/
    Everyone has the right to have a say in what ever method they use



  • NystagmiteNystagmite Posts: 609Member Pioneering
    Yes, I've got a learning disability too and was left to it post-diagnosis. (diagnosed as an adult)
  • HarpHarp Posts: 68Member Courageous
    I found many adults with learning siabilities getting diagnois or re-diagnois had to go private cus NHS won't do it. I thought if you was born before a certain time, you should be about to get re-diagnois on the NHS


    ANNE ROBINSON (1 VOICE)
    https://www.facebook.com/1Voice.Vision.of.the.heart/
    Everyone has the right to have a say in what ever method they use



  • mikehughescqmikehughescq Posts: 3,366Member - under moderation Disability Gamechanger
    EJS_96 said:
    Hi

    Im Ella and I'm 20, currently studying at university (just finished 2nd year.) Recently, I have noticed the effects of my VI have been making me feel quite down and isolated ( not necessarily physical isolation but more like I'm not feeling like I can participate), what I mean by this is when I'm watching football or rugby (live and on TV) it's difficult for me to keep up with what is happening and other situations. When I was younger I think I was supported by the RNIB and my local councils' VI team, me and sometimes my family would be invited to events where I could meet other children my age who were blind/VI, so I had someone to speak to in a similar situation. My question is, is there any type of peer support for adults? I understand these forums could be one, but maybe support in person also like meeting people etc? I am an independent person I live away from home in term time, etc, it's just sometimes I want to speak to someone who actually understands partly what I'm going through. Any help is much appreciated. 
    Hi Ella,

    What's your VI? Some feelings are common to all VIs and some are specific to certain conditions.  We could maybe offer some solid support if you felt able to tell us a little more.

    Mike
Sign in or join us to comment.