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My daughter (14) has a condition called CRPS - complex regional pain syndrome
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Joflan
Community member Posts: 2 Listener
My daughter (14) is debilitated by a condition called CRPS - complex regional pain syndrome. it is affecting all four limbs and her back. I too am disabled. I have degenerative disc disease which greatly affects my mobility. a condition called NEAD - non epileptic seizures - which may be the onset of MS! I have a husband and two other children aged 11 and 9. Any one out there with a similar story? happy to chat
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Hi @Joflan.
It's great to have you onboard I do hope that we can help ???
Yes I have got CRPS "self diagnosed"
I have got "many many" more problems as well.
There seems to be very very little known here in Birmingham.
I think that I have done the "full monty" but still no good ????
Ealier this year I had an appointment at the CRPS Hospital in Bristol which was a waste of time to be honest.
Please please let me know if I can help you ???
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