If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Wheelchair users

TopkittenTopkitten Posts: 912Member Chatterbox
I started to watch the Winter Clothing tips for wheelchair users and it struck me that the person giving them was so much the archetypal view of a wheelchair user. Maybe it is the common situation for such a person to have a lot of mobility from the waist up but for me, and probably others, I just don't fit the type.

My problems and pain are all related to spinal movement, especially bending and twisting. I cannot move a wheelchair in the fashion the lady in the video did as everything I do has to be measured and careful and consequently slow. Going beyond a snails pace causes me so many problems. It also prevents me doing so many things some users can. Sports and anything requiring quick movement are just impossible. Currently even using it causes me too much pain and even when I can use it my grip is suspect due to previous cervical damage and surgery.

I wonder how many others look at people like that lady and think "I wish.........".

It also seems such a shame that the healthy person's view of wheelchair users is so perpetuated by such videos. I find that the assumptions about what I can do with my wheelchair, assuming they even notice me at all, is at such a high level that I can never hope to reach. I find it depresses me at times that somehow it must be my fault I cannot do such things.

TK
I am here to kick ass and chew bubblegum... and I am all out of bubblegum -- They Live 80 something cult film.

Replies

  • CockneyRebelCockneyRebel Posts: 4,888Member, Community champion Brian Blessed
    Hi TK

    For sure the able bodied persons view of a wheelchair user is probably not helped with all the para sport and wheel chair racers, thinking that every user can do these things, when in reality it just isn't so.

    It is not your fault that you cannot do these things, life has dealt you a different hand

    My wife gets annoyed at me when I refuse to remember things in the past. It is of no use to me to go back in time, I don't want to remember what I could do before being trapped in a fire.
    I have to move forward in the best way I can, find new ways to do things and find things to replace what I have lost.
    I seldom see the few friends I have, I don't want their pity, I don't want their help to do the things I can't, if it needs to be done I will find a way.

    Nobody can really understand what we go through and I certainly wouldn't want to put others through it. I am alive which is better than the alternative. I am here for a reason, I don't know what that reason is and I don't need to. I will do my best every day to be the best I can be.

    CR
    Be all you can be, make  every day count. Namaste
  • mossycowmossycow Posts: 460Member, Community champion Chatterbox
    I really understand as in my wheelchair folks assume upper body strength when actually I'm the opposite. It was only one person's video she has made of her position, she can't really comment on others.

    In terms of:

    " wonder how many others look at people like that lady and think "I wish.........".

    That is a dangerous fantasy. We can't judge a person on their best day. We have no idea what she has been through and goes through every day.  So sympathetic at being frustrated at lack of function. I have those days too. Personally I feel we can't judge what the life of others is like and I'm certain that comparing level of disability is so unhelpful. 

    But God, yeah I understand 

    "I'm trying to live like a random poem I read that ended 'to bloom where we are planted"

  • TopkittenTopkitten Posts: 912Member Chatterbox
    @mossycow , I would dearly love to have that sort of mobility on any day. Even my absolutely brilliant and wonderful days fall well short of her actions. I appreciate your point but I cannot think of any disease or condition (including potentially fatal ones) that I wouldn't jump at the chance to swap mine for. At least a lot of others have a chance (however small) of a cure.

    TK
    I am here to kick ass and chew bubblegum... and I am all out of bubblegum -- They Live 80 something cult film.
  • mossycowmossycow Posts: 460Member, Community champion Chatterbox
    Sounds like you're having an awful time @Topkitten (still love that name).

    How's today going? 

    "I'm trying to live like a random poem I read that ended 'to bloom where we are planted"

  • TopkittenTopkitten Posts: 912Member Chatterbox
    Things have been a little better of late though the surgery business is dragging me down a little.

    The chemist is working with me to try to resolve the medication problems and I am slowly adjusting to coping with it better. Still makes things a bit tougher than usual but I am generally more balanced at the moment, Just not looking forward to turning 61 in a couple of weeks and definitely will be on a downer as xmas gets closer.

    TK
    I am here to kick ass and chew bubblegum... and I am all out of bubblegum -- They Live 80 something cult film.
  • ryzykant_travelryzykant_travel Posts: 1Member Listener
    edited August 2018
    Hi guys!
    Do you know if I can get a subsidy for a wheelchair?
    I want to buy a wheelchair at https://blumil.com/shop/.
    I can not find any information about funding.
    The whole price is too high for me ☹


  • Pippa_ScopePippa_Scope Posts: 5,858Member Brian Blessed
    edited August 2018
    Hi @ryzykant_travel, and welcome!

    You could try searching for grants here to see if there are any you could apply for. If you're based in the UK, this NHS page on getting a wheelchair or scooter may also be helpful.
  • ScottBornoScottBorno Posts: 7Member Listener
    Actually my upper body strength is really good and I move about in grass, gravel, etc quite well.  Beach sand, mud and snow/ice shut me down.  I run my chair (easily!) Up a 4" sidewalk curb and run it back down.  My problem is:. I'm breaking the all the time!  I have to buy a new one every year.  I guess their image of "everyday function" differs from mine.  Why can't they make one that lasts?
  • TopkittenTopkitten Posts: 912Member Chatterbox
    @ScottBorno, I certainly found it easier the more I used mine and am sure that with prolonged use it builds up the strength in upper body and arms making it even easier. The difficulties are in the beginning until you get used to it.

    TK
    I am here to kick ass and chew bubblegum... and I am all out of bubblegum -- They Live 80 something cult film.
  • kazzy1kazzy1 Posts: 22Member Listener

    I have issues with sleeves since I self propel. The idiotic things keep getting in the way.

    I also hate the lovely wheelchair wheel flicks we all get from the roads

Sign in or join us to comment.