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Does anyone here have dystonia oromandibular?
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angel56
Community member Posts: 4 Listener
dystonia oromandibular.Does anyone else have this disability..?thanks/
Comments
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Hi @angel56
Welcome to the community, sorry you havent had more of a response about this. Can you tell us a bit more about it?
There is some info here on the Dystonia Society website.Scope
Senior online community officer -
Hi @angel56, how are you doing?
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Hello pippa thanks for asking ive been really ill of late but am having loads of tests done to check stuff out.bye carollx
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Sorry to hear you've not been well @angel56, and wishing you all the best for your upcoming tests. Do let us know how you get on and if we can be of any assistance!
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Hi @angel56
I know the last post here is from January, but I'm hoping you're still in touch so that I can ask if you have contacted the Dystonia Society, at https://www.dystonia.org.uk. Among other things, they too seem to have an online community.
Warmest best wishes to you,
Richard -
Hi the Dystonia Society are really helpful they have been excellent with me i suffer from Cervical Dystonia. I have spoken to them and they are doing a letter for me to send to DWP for my MR.
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