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Has anyone else with CP (which affects their speech) ever had problems with their jaw?
heidibuckell
Community member, CP Network Posts: 9 Courageous
Hi - I've just joined this forum, I should have done it sooner, like most things but due to always being busy with work it never got done - at the moment I am off work for a week so have more time
Since about June 2016 I have been having problems with my jaw, initially it just locked which was annoying but something which I could cope with and then from last Sept onwards it has become much much worse and the hospital specialist advised me to go onto to soft diet - which I have
I am having problems trying to get to the bottom of it and am now waiting to see a Neurologist to see whether it may be spasms
Has anyone else with CP (which affects their speech) ever had problems with their jaw, it almost coincided with me joining a ROCK choir which I have regrettably now given up until I get this sorted - surely singing has not caused this?
Best wishes
Heidi
Since about June 2016 I have been having problems with my jaw, initially it just locked which was annoying but something which I could cope with and then from last Sept onwards it has become much much worse and the hospital specialist advised me to go onto to soft diet - which I have
I am having problems trying to get to the bottom of it and am now waiting to see a Neurologist to see whether it may be spasms
Has anyone else with CP (which affects their speech) ever had problems with their jaw, it almost coincided with me joining a ROCK choir which I have regrettably now given up until I get this sorted - surely singing has not caused this?
Best wishes
Heidi
Comments
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Hi @heidibuckell I have asked on twitter for you and will send on any responses
Scope
Senior online community officer -
Hi Heidi
You could have TMJ there is some evidence to suggest that TMJ dysfunction can be more likely with Cerebral Palsy because of the muscle imbalance.
General information on TMJ - Does this sound like your symptoms
https://www.nidcr.nih.gov/oralhealth/Topics/TMJ/TMJDisorders.htm
Have you seen a dentist about this? As if it is TMJ they can help you manage this and even make a night guard that will relax the muscles in your jaw whilst you sleep.
Hope it helps
Best -
Dear Stayce
Thank you so much for your reply, I did wonder whether TMJ is more prevalent in people with CP. Re the idea of the mouth guard, I did ask my dentist (who is fully aware of my current problem) but she has decided not to give me one. I do have a Neurology appointment in Feb so I may mention it to the Neurologist -
I was very interested to read your post as I actually had jaw surgery last May (I have mild CP- left side hemiplegia) My symptoms were very similar to yours, and following an x-ray and bone scan it was discovered that I had an active growth centre in my left jaw joint. Most likely caused by the event at birth which caused my CP. The surgery was to remove the growth centre and it's been loads better since. I'm not sure if you have the same problem, but if you are still struggling to get to the bottom of it, it might be worth asking the question :-)
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Go and see a dentist and ask for a guard for your teeth while you sleep. I need one. My dentist says I have a very strong bite (I may even grind, not sure) it will help save your teeth. I have lost bottom back teeth from damage of clenching my jaw and teeth. The guard has stopped anymore damage.
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