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Spinal stenosis

westonwarriorwestonwarrior Posts: 4Member Listener
edited January 2018 in Neurological conditions
Hi everyone, I am 53 years old with spinal stenosis, I have discs going in the c section of spine but worse is lumbar area. It affects my daily life quite bad but so far the NHS won't do anymore except keep me on medication. It's a daily struggle which has left me suffering clinical depression and insomnia for past 5 years.
Westonwarrior x 

Replies

  • JennysDadJennysDad Posts: 2,308Member, Community champion Chatterbox
    Hello @westonwarrior and welcome to the community.
    I'm sorry to hear of your obviously painful condition and particularly sorry - though, of course, not surprised - to hear that you are struggling with depression also. Depression, at least, is something I'm an authority on :smile: 
    So, you're among friends here. How might we be able to help?
    Very, very best to you,
    Richard
  • westonwarriorwestonwarrior Posts: 4Member Listener
    I'm looking for help and advice how long my spinal stenosis is going to go on for, is there a cure for it. I have an 11 yr old son who is not a happy boy because I am so limited to what I can do. The other big question that docs don' answer is will it get worse because they have supplied me with a wheelchair 
    Westonwarrior x 
  • Pippa_ScopePippa_Scope Posts: 5,267Administrator Scope community team
    Hi @westonwarrior, and welcome to the community! It's great to have you here.

    I'm sorry to hear about your impairments and how they're affecting your life. Do bear in mind that as we're not medical professionals we cannot advise on treatments and cures, and you should always speak to a trained professional about issues or concerns about your condition. 

    However, we do have some other members with spinal stenosis who you might like to chat with, such as @shazza63, @NicolaH and @raedodkinsrudge. Hope this helps!
  • flumpflump Posts: 7Member Listener
    Hi westonwarrior...i too have spinal stenosis, diagnosed in 2014,i have it in my right-side neck & lumbar.  I don't want to dishearten you but I was told mine will only get worse and never get better. I had a discussion taken out if my neck some 20 years ago which started the ball rolling with my stenosis, I now have a spur bone from the operation touching my spinal cord, this leaves me with numbness in my arms & legs plus tingling. I am in constant pain mostly with my lower back although the neck does give me problems also, I'm on the highest dose of tablets.... Apparently! 
    Do try to do as much as the body will let you, make a bucket list of places you want to visit & things you want to do before you are unable to. 
    I'm new on here but will try to get on here daily for any updates etc
    Also I'm interested in any others with this on what medication they take and any other interesting things they receive from the nhs or disability aids etc. 
    Flump
  • feirfeir Posts: 354Member Chatterbox
    I've been admitted to hospital last year the pain was that bad i couldn't move at all, couldn't stand up or anything. 7months later i'm being booked in for my first of two operations, don't know why you've been left to struggle for 5 years? Maybe you're at a stage where it is too advanced and they can't do anything?

    Are you getting help with the depression? i'm getting help with that too and it is helping.

    It doesn't get better no. There's no cure at this time, all they can do is try to prevent it getting worse. They can try to alleviate numbness and weak limbs as well. Like all operations there are some risks and with it being the spine the ops could make things worse also.
  • Clarkie123Clarkie123 Posts: 6Member Listener
    Hi ,I have just been diagnosed with spinal stenosis ,and degeneration,think I am still in shock after years of complaining,and pushing I finally received my MRI ,only to be told by nuero surgeon I am to far gone I not only have cirrhosis of liver nafld,also a tumour in my bike duct I am shocked that I have been in so much pain and now having done all the tests they can't do nothing ,my point is I am on pip and ESA and have just had assment as I now have become more weaker, have I done the right thing I sit and stress as I wait ,surley a illness as destroying as stenosis would automatically qualify for enhanced rate anybody else awaiting the dreaded brown envelope xx
  • AngelDeeAngelDee Posts: 1Member Listener
    Hi everyone I was recently diagnosed with cervical spine stenosis with three places in the neck compressing with spurs and 3 slipped discs in the lower back have been in agony. I’ve been seeing the chiropractor weekly which has greatly eased my symptoms of blurred vision, pins and needles and numbness etc I actually watched this video that was quite useful. Although what he states whatever doctor you go to will be their point of view yes chiropractors are very useful but do remember in some cases surgery is also essential and also pain killers in moderation are also beneficial. Would definitely recommend trying a chiropractor as well. I’m currently on amyltriptiline aswell. https://youtu.be/XwgmzhuTev8
  • Pippa_ScopePippa_Scope Posts: 5,267Administrator Scope community team
    Welcome to the community @AngelDee, and thanks for sharing your experiences with us!
  • Panda70Panda70 Posts: 20Member Whisperer
    Hi westonwarrior, I begged for MRI as I'd been saying a bout something felt really wrong with my spine n legs, finally got MRI in 2017 to be told I have spinal stenosis, facet joint arthritis in my spine  two protruding discs that are pressing on the spinal canal, had new MRI n xray January this year and they found further deteriation, I've been waiting a year now for nerve branch injections as surgery isn't an option due to my other complex medical problems, I feel your frustration as it does limit what you could previously done and with still having a youngster at home it will be difficult for you both, I struggled badly when I had my one year old grandson over to stay but luckily my partner helped out but I don't have him now, the older ones are good as gold but I can't now take them swimming, days out ect , I do find yoga is helping me as I'm joint hypermobile too so if I don't stretch every day my pain is worse but thats me  it might not suit everyone, hope you find something soon  x
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