Dealing with chronic pain
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Chronic pain disorder

Hi every one iv just been told iv got chronic pain disorder is there any help out there for me

Replies

  • CockneyRebelCockneyRebel Community champion Posts: 5,259 Disability Gamechanger
    hi catherinerichards

    Yes there is help but you will probably have to fight for what works for you.
    Work with your GP, try and get a referal to a pain management clinic

    CR
    Be all you can be, make  every day count. Namaste
  • cathiecathie Member Posts: 143 Courageous
    To be honest since having injections it's far worsened my pain not sure what they have done but even every strong pain killer 15 mg of morphine patches I can not cope with any thing two mins standing walking from one room to the other movement choirs all unbearable pain  not sure what to do next but can't carry on every day unbearable complete ly disabled an already injured body.. felt dismissed for having touch pain for Dr to cope with put on dealing with ur 0ain program was.nt like this before course of pain clinic  injections  in spine
    Only me .. cathie..
  • mossycowmossycow Community champion Posts: 486 Pioneering
    Hi Cathie, 

    It's hard, really hard a life with chronic pain. But it is doable and it is a life worth fighting for. 

    So sorry to hear, pain is so shite isn't it.. 

    It sounds life you're at the start of it all and there is help out there. 

    I can't stand more than 10 seconds or so and am now using a wheelchair outside the house. At the time (4 years ago) it felt like a big step but it has given me a lot more back. When I sit I have less pain so using wheelchair has made some things much better. 

    It's taking time...  But gradually am making my home easier to live in. 

    It's F ING hard. And I've hard many times where I don't understand why life is like this.. ..But there have also been amazing times I'm glad to have been here for. 

    Medication..  Took me about 2 years to sort out my basic medication.... And I recently adapted it again. But again, worth the effort. 

    Did you get pain clinic referral? 


    "I'm trying to live like a random poem I read that ended 'to bloom where we are planted"

  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    I almost passed out with fatigue and pain today after being out on essential excursions on my feet. Try my best to do one activity per day but sometimes it’s more because I can’t change it. It really has a knock on effect. 
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • littleruthie123littleruthie123 Member Posts: 477 Pioneering
    Hi Cathy .sorry to hear you are also in the chronic pain team..for me personally going from being  healthy fit youngish female ,loved work socialising .if found trying too an almost opposite life very hard and mostly frustrating .after breast cancer aggressive treatment ,etc been left like a different person..I've stopped  boxing classes too mindful movement,mad notes out too struggling past nine o'clock .but I'm grateful I'm here even at a completely different pace .fianances and benefit system has been so stressful .but I find it very helpful speaking too others on support networks.saying no too lots of things and trying too be kind too myself .it really is the smallest of things that can help .its good too no your not alone xx
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