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I have spina bifida and became self employed as I was labelled unreliable
I have spina bifida and hydrocephalus. I have long since given up trying to find a job as an 'employed' person due to the variability of my condition. Some days I am completely ' grounded' by pain or lack of sensation. Other days I am mostly ok, but need to rest every four hours or so due to poor sleep patterns caused by pain. I became self-employed about 20 years ago as I was labelled 'unreliable' due to poor timekeeping / attendance when I was most in pain. In this way I can manage my work without constantly having to take lots of (fairly unhelpful) drugs.