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Help with pain relief please

susan48susan48 Posts: 2,194Member Disability Gamechanger
hi I have involuntary body movements, unusually my head/neck, shoulders,  arms and sometime my legs.  Iv no control over these.
iv been in a lot of muscle pain due to these twitches/ticks or whatever you want to call them.  
I have tried painkillers, gel and there’s are not working.
my muscles are agongs, can hardly move my head.
Any suggestions to help relieve the pain, please?

thanks

Replies

  • sleepy1sleepy1 Posts: 299Member Pioneering
    Music is a good distraction......these do it for me!  A bit diverse : ) 













  • samm1953samm1953 Posts: 1Member Listener
    Ask your GP for a referal to your local neurology department  who may prescribe muscle relaxants rather than pain killers 
  • susan48susan48 Posts: 2,194Member Disability Gamechanger
    Thank you both,
    i was on clonazepam, high dose at night but gp took me off them as they were not helping.
    sleeping tablets now and still not sleeping and in pain.
    will talk to my gp
    susan
  • [Deleted User][Deleted User] Posts: 1,756 Listener
    The user and all related content has been deleted.
  • BarbiesnemesisBarbiesnemesis Posts: 86Member Pioneering
    @sleepy1 Thank you for sharing the music videos. I love how Janine Jansen plays the violin; she has such a delicate touch. Have you heard her play Lark Ascending by Vaughan-Williams? It is so beautiful. The first video is something I've never seen or heard before and did start to distract me from my pain!
     
  • susan48susan48 Posts: 2,194Member Disability Gamechanger
    Hi Victoriad, 
    nice to hear from you x
    iv tried heat and cold but nothings helping. Might see if my chemist has a TENS machine. 
    Was thinking it’s maybe worse because Iv came off night meds. 
    My body is tense all the time, shoulders up to me ears.

    thanks all for advice 

    susan
  • CockneyRebelCockneyRebel Posts: 5,246Community champion Disability Gamechanger
    As always you should consult your care professionals about pain relief, we cannot give medical advice on the forum

    I suffer from a frozen neck and my wife with chronic arthritis. We both take some serious pain relief including Morphine, Gabapentine, Pregabalin. etc.
    Recently we have use a topical CBD spray, it is not a  magic potion but we have found some relief

    CR
    Be all you can be, make  every day count. Namaste
  • susan48susan48 Posts: 2,194Member Disability Gamechanger
    CR,
    I was really just wanting any advice really 
    I am sick of medications changing and the withdrawals with some are awful so just thought I’d ask for any ideas.
    iv have cbd gel, to be ingested. I actually forgot about it, maybe worth a try though.
    can you get the spray online?

    thanks
    susan
  • CockneyRebelCockneyRebel Posts: 5,246Community champion Disability Gamechanger
    Yes I bought mine through Ebay. Check out any supplier carefully,  and also be aware there are different strengths available. I currently use 1000mg spray, avoid any that contain TCH ( this is the psychoactive part of marijuana )

    CR
    Be all you can be, make  every day count. Namaste
  • susan48susan48 Posts: 2,194Member Disability Gamechanger
    CR ,
    I will try and check them out but it’s a mine field looking for reputable sources of CBD .

    Thanks
    Susan
  • susan48susan48 Posts: 2,194Member Disability Gamechanger
    CR, 
    found the CBD I have, its CBD Raw 300mg.
    Just had some so fingers crossed 

    Thanks
  • [Deleted User][Deleted User] Posts: 1,756 Listener
    The user and all related content has been deleted.
  • susan48susan48 Posts: 2,194Member Disability Gamechanger
    Thanks Victoriad,
    Tryed deep heat and deep freeze,
    thankfully I’m a bit better today

    x
  • DeeNKasparDeeNKaspar Posts: 5Member Listener
    I find it hard to find hard because I am allergic to most painkillers especially the ones to treat chronic pain.  I am so many different medications which includes Bacloofen which is very new so working on seeing if it helps with muscle spasms so far I haven't seen much change but it is early days with it.
  • susan48susan48 Posts: 2,194Member Disability Gamechanger
    @DeeNKaspar

    i hope your new medication helps you, it’s frustrating when your limited as to what you can take
  • DeeNKasparDeeNKaspar Posts: 5Member Listener
    since I have started Baclofen my dry skin on my scalp has got worse and it is sore in places.  
  • whistleswhistles Posts: 1,603Member Disability Gamechanger
    A massage but not without gp consent etc as I don't know your condition.
    I have had Indian Head massage, Reflexology and Craniosacral. Even a pedicure might help, it's relaxing quality time for you to forget pain. 

    The lady said my neck was so tight I could hold up the London Bridge with my head-I do hold any tension in my neck.
    But I have since seen an osteopath at the hospital and he cracked it awesome!! Just the one visit needed and any issues I just pop back which I haven't needed to. Sounded better than bones breaking in a horror. 
    Do not follow me, I don't know where I am going.
  • Annabelle26Annabelle26 Posts: 102Member Courageous
    I have been hearing a lot about CBD just lately & am wondering about trying it.  How well does it work for chronic pain & is it safe to take with other medication.
  • shaziershazier Posts: 82Member Courageous
    Hi susan48 so sorry to hear your in allot of pain,I to have painkillers but they dont work, im on tramadol diazepam and paracetamol, i may a well takes smarties for all the good they do.  Iv tried others to but the side effects for me were awful, i just cant tolerate strong pain med, codeine for me was the worst. I use wheat pads that you stick in the microwave, gives light relief when i first put it on but not for long, tens machine ok but only benefit whilst thats on to.  i was told by a friend to try tigger balm, i wasnt sure which to get so got the white and the red. the white one for me is better than the red, its heats up while its on my backs muscles, I use it allot, i get more reliefe from the tigger balm than any painkillers on my muscles. i use it for my migraines to and headaches, but you have to be careful not to rub your eyes, washs your hand after, it really stings if you get in your eyes, it can stop a severe headache sometimes but not  always and still have to take paracetamol or nurofen. i also buy the gels like ibulieve for joints, i dont find that very helpful but you might. for me the white tigger balm gives me the mot relieve on my muscles and the wheat pad, i sometimes use them together. anything is worth a try. painkillers make me feel sick and dizzy and can actually vomit,  i hate taking them. i hope u get some relief
  • CockneyRebelCockneyRebel Posts: 5,246Community champion Disability Gamechanger
    I have been hearing a lot about CBD just lately & am wondering about trying it.  How well does it work for chronic pain & is it safe to take with other medication.
    There has been some discussion on here regarding CBD. We cannot give medical advice on the forum.
    Google CBD and do your own research, there is plenty of info out there. Then consult your GP and make your own decision

    CR
    Be all you can be, make  every day count. Namaste
  • GizmoTiddlesGizmoTiddles Posts: 127Member Pioneering
    Hi on the subject of CBD I have tried it in all strengths over a very costly time and find it gives little in the way of relief of MY pain or fatigue ,that I can't get on prescription fro my Dr .
      On the other hand ,and in no way implying it is a safe course to take ,then a proper hash brownie (I don't smoke) or weed tea floats my boat and the sooner they make  it legal the better .but I can recommend "Rooibos tea"commonly called Red Bush tea ,buy it in Tesco ,Asda,lidl a and other outlets.Tick Tock is the one I'm just about to make ,it helps me relax a little ,and every little helps ,as they say ,check it out you may like it ,and at a fraction of the cost of CBD
    Regards
    Gizmo
  • MisscleoMisscleo Posts: 580Member Pioneering
    I fancy CBD nothing else works. If anyone finds a SAFE supply im intetested so please let me know
  • GizmoTiddlesGizmoTiddles Posts: 127Member Pioneering
    Hi @Misscleo
    You could try here ,but as I said ,did nothing for me

    https://www.naturalwellnesscbdoil.com/cbd-brothers-oil-complete-review/

    Good luck in a pain relief
    Regards
    Gismo
  • DeeNKasparDeeNKaspar Posts: 5Member Listener
    I have had to come off the Baclofen because my eczema got so much worse.  I have an appointment with my own GP tomorrow to ask about different muscle relaxants and also speak to him about my left leg giving away without warning.  I had a fall 10 days ago when I was going down the stairs as the cat had been locked in the kitchen.  Its done it a few times since.  I am trying to use the stair lift as much as possible but I sill need to exercixe.
  • rosietrosiet Posts: 4Member Listener
    I have fibromyalgia as well as peripheral neuropathy, arthritis & the host of other problems that come with fibro. Two areas are worse for me & that's my eyes & feet. I can barely put a foot onto the floor. I have been hospitalised for 11 days & hardly walked anywhere apart from the toilet yet the foot pain is still as bad. Due to many allergies I'm unable to take the usually prescribed medications for my pain. The only thing that brings a little relief are Butec patches. Unfortunately as they are opiate based, my GP is reluctant to keep me on them long term. I do also use the CBD oil ( cannabis oil) which does relax me enough to help me sleep. Magnesium foot bathes are helpful, as is magnesium spray but only as relaxant. I've no idea where to go from here.
  • debbiedo49debbiedo49 Posts: 2,874Member Disability Gamechanger
    I use a microwave neck warmer and put it on the area its bliss. As well as pain meds.


    I am a fibrowarrior!
  • rosietrosiet Posts: 4Member Listener
    Misscleo said:
    I fancy CBD nothing else works. If anyone finds a SAFE supply im intetested so please let me know

    i have found that the oils supplied by Holland & Barrett are far too weak. I buy mine online from an established company called 'love Oils' ( or something very similar.) I've used them for several orders & recomended them to friends. Their products include a spray for under the tongue which I find very useful. It's not cheap but does seem to help.
    one word of warning, I found as I increased my dosege, I began to feel a bit distant & whoozy. Once I cut back, I'm fine & normally only use one or two doses a day but can add an extra one if needed.
    it's certainly worth experimenting but with care.

  • rosietrosiet Posts: 4Member Listener
    Victoriad said:
    What about using a hot water bottle on the affected area?
    Or climbing into bed warmed by an electric blanket.......I feel more pain in my hands when Im cold........or is it just me?

    Other suggestion is a TENS machine Lloyd’s chemist have them from £10 upwards........always worth a try.

    I use a tens machine most nights on my feet. My consultant insists that it cannot work on problems like fibromyalgia yet I do get relief. My suggestion is to try, but probably only with a basic tens until you know whether it will help you.

  • JBOccyTherapyJBOccyTherapy Posts: 7Member Connected
    TENS, CBD and heat are all great options. You can use TENS in combination with medications and you can get TENS units that do heat too.. I've recently started using topical CBD for my pain and I'm surprised at how well it's working. 

    Another option a lot of people find relief with is Magnesium. Magnesium is really important for muscle function and a lot of my chronic pain patients (me too) find it super effective for easing off spasms and tight muscles. It absorbs just as well topically as it does orally or when injected and putting things on your skin is less likely to interfere with any meds. Lots of people have magnesium salts or epsom salts in a hot bath since heat works well for muscle tension too. 

    I'm currently using topical magnesium + oral low dose baclofen for my own spasms and I honestly think most of the benefit comes from the magnesium!

    If in doubt it's always best to run things past your GP. 
    Jo Southall
    Independent Occupational Therapist | Public Speaker | Accessible Adventurer
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