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Talking about CP
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han156
Community member Posts: 9 Connected
I have mild CP- left side hemiplegia, and I don't know about anybody else, but I find it quite tricky explaining that to people when asked. Does anybody have any tips on talking to people about CP and explaining how it affects them in a way that is easy to understand for those who have no experience of it?
Comments
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Hello @han156
Trying to explain your cp to somebody who has very little or no experience of it can be tricky. I tend to try to keep it as basic as possible, I explain that I was oxygen deprived at birth and it has affected my arms and legs. Their response to that is usually a good guide as to whether you should go into more detail. Here is an interesting solution, that may not be for everybody.
https://blog.scope.org.uk/2013/02/12/harrys-cards/?_ga=2.241136259.187000956.1520852134-683246689.1520587137
What part do you find particularly tricky?
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Hi :-) I suppose the situations I find the most tricky are where I have to ask for help that people do not expect me to need. For example if I buy two drinks at a bar, I can only carry one of them at a time back to the table so would have to ask for assistance. I know I shouldn't have to justify asking for help, but I find that because it's not glaringly obvious that I need it, people can be reluctant to give it without explanation.
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Sorry @speedincaesar, I thought I had tagged you in that reply but I don’t think I did it properly!
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Hi @han156
No problem! I can see how the situation you have described could be a little tricky. I use a wheelchair so my potential need for help is very obvious. I do still have a well-rehearsed script though as I mentioned. I have included a link to our Invisible Impairments discussion. There are some really useful tips from others in the Community. https://community.scope.org.uk/categories/invisible-impairments
Stay in touch, let me know how you get on.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
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