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How many of us have memory problems

whistleswhistles Posts: 1,603Member Brian Blessed
How do you prove this on the benefit forms?

Mine got dismissed despite it being part of my condition. This was explained in section 2 and section 5 and throughout what happens without help and why I need prompting.

It's invisible. The assessor did a cognitive test and I only remembered one two words in the wrong place.  I struggled to count backwards in sevens. But I have no impairments. If that's normal for everyone life really is ****  :) 
But from a pip point of view is it because it's just not bad enough to be a given a point in the first place? My memory is changeable. Good and bad days. 
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  • NystagmiteNystagmite Posts: 610Member Chatterbox
    I do. They didn't do a memory test and decided I didn't have memory issues. Memory issues / cognitive difficulties are a common side effect of the medication I'm on.

    Like you, it's changeable. I had it last week where I couldn't remember which button to press on my coffee machine. A machine I use almost every single day. And then there's the days where I can't remember what I did with my keys. The keys I put in my pocket 2 minutes ago. And then there's walking out the door, getting half way down the road only to realise I forgot to take my medication.

    But I don't know how I can prove any of that. I live alone; so it's not like I have my parents checking if I've taken my mediation or I've got my keys. They only know about the latter when I've turned up at theirs to ask for the spare key.
  • whistleswhistles Posts: 1,603Member Brian Blessed
    I thought I solved the keys issue. I have a device for the spare outside that needs a code number. 
    If you can remember the number you can get in. 

    If they ignore what's written and explained and decide in that hour you are fine, then I don't see how anyone can prove otherwise. 
    Locking yourself out is just consisted a hassle, not a risk. 

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  • lillybellelillybelle Posts: 455Member Chatterbox
    My short term memory is terrible. But then again having upto 20 absent seizures a day plus petit mal as well. Medication that causes memory loss and fatigue . You would think the proof is enough.
    but oh no. Because I could remember what type of school I went to, spoke normally in a normal tone plus spoke to my family daily (who obviously are used to me forgetting what I was or am talking about )
    There is nothing wrong I could talk without being prompted and remember things without being prompted
    what more eviedence can I give?
    thats if I can remember the answer!
  • deb74deb74 Posts: 207Member Chatterbox
    i have hydrochephalus and my short term memory is really bad but it was completely ignored by the pip assessor. i also have problems with my speech but because i do remember somethings and my speech is ok some of the time it was not taken into consideration.
  • lillybellelillybelle Posts: 455Member Chatterbox
    Are you appealing?
  • charlenecharlene Posts: 555Member Chatterbox
    I lost a set of car keys, in my home, within the first week of having my car.  That was over 3 years ago, and I have never found them since.  Like you Whistles, I had problems counting back in 7's, only got down to 80 and lost it all. Failed to spell the word world backward end, the assessor in her notes said I had spelt it backwards. Couldn't recall the 3 words she repeated to me and still can't, hey ho, it's great to know my memory is fine!
    When the going gets tough, the tough get going.
  • charlenecharlene Posts: 555Member Chatterbox
    I locked myself out of my house and couldn't get in!  A neighbor across the road came to help me and in the end I got in, bit the damage to the door was so severe, I had to buy a new door.  Did leave a key in the front garden, just in case I got locked out again, but guess what I don't know where I put it!,,
    When the going gets tough, the tough get going.
  • NystagmiteNystagmite Posts: 610Member Chatterbox
    deb74 said:
    i have hydrochephalus and my short term memory is really bad but it was completely ignored by the pip assessor. i also have problems with my speech but because i do remember somethings and my speech is ok some of the time it was not taken into consideration.
    They claimed I don't have problems with my speech either. I've lost count the amount of times I've been told "we can't find you on the system" when giving my date of birth because someone's heard April as October. Or as was last night, I was asked something and all my mum heard was "thanks" and had to ask if I'd said yes or no. I'm forever having to repeat myself too.

    I don't, unlike some people, have a strong accent.

    Part of the argument with me having no memory issues was because I know how my life long disabilities affect me.
  • whistleswhistles Posts: 1,603Member Brian Blessed
    It is actually a comfort to know the are others out there with memory issues. It's not just me or you. 
    I do keep a notebook because I find I have got into the habit of using it, though just because it's got the shopping list, doesn't mean its going to be remembered.

    My £1 what change have you got question relies on you remembering what you wanted to buy. If someone distracts me that's it. Though to be fair that could be another product such as chocolate! 
    I don't do online shopping because I worry if i don't use my brain it will just wither away. My memory will be worse  not used. Plus I do feel going out daily is important for the fresh air.
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  • charlenecharlene Posts: 555Member Chatterbox
    I  just try my best to limit mistakes due to bad memory.  I no longer do any motorway driving, after getting lost coming home from a friends.

    i had driven up to Manchester just fine, mind u, one motorway runs into another.  On my home I  got lost and landed up in Ellesmere Port Liverpool.  Thankfully, 2 young workmen took pity on me, and they were heading for the same mottorway I needed to get home and said for me to follow them.  This I did and thankfully, although many hours late I arrived home.  So  forevear after No Motorway driving for me!
    When the going gets tough, the tough get going.
  • janejrjanejr Posts: 98Member Chatterbox
    I was given the keys to my new home a week before I was due to move in . Yes I lost them before even before i got back to my old flat and spent a week looking for them. I had to have all the locks changed. Moving nearly gave me a break down because I couldn't remember things. I ended up slipping a disk and had a bad case of shingles at the same time. My bad memory makes me anxious and being anxious makes memory worse. Can't remember appointments and turned up for a hospital appointment a month early. Madness
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  • whistleswhistles Posts: 1,603Member Brian Blessed
    I think when I get older it will be blamed on my age. 
    I did get told I have insight into my condition so can keep myself safe.

    You only need to gas the house once before you get banned from cooking again!!!

    But I am interested in whether certain foods could help. I take vit D and C daily at the moment. But I would rather find something to eat. 
    Any fruits boost memory? 
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  • charlenecharlene Posts: 555Member Chatterbox
    I don't mind it if I forget I'v bought tomato ketchup and land up with 4 or 5 in the cupboard. Or when emptying some cupboards have found a microwave still in its box, and other goodies.  

    I get upset when I turn up for appointments a month and week early. Or the best one I had paid was paying  for my groceries in Sainburys, decided to speak to the Pharmasist about an illness, only then tried to go back through the pay desk putting my bags of groceries back on the belt, and tried to pay again.  Of course an Atos Assessor would say, I haven't a memory problem!
    When the going gets tough, the tough get going.
  • whistleswhistles Posts: 1,603Member Brian Blessed
    Thanks. 
    Does it mean jigsaw puzzles. I might be a bit thick for crosswords. Maybe I could start with the simple ones. 

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  • lillybellelillybelle Posts: 455Member Chatterbox
    We can laugh about it as much as we want to, and I honestly do.
    usually because I feel stupid and embarrassed when I’m trying to have a conversation and forget what the hell the conversation was about plus what I’m saying.

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  • whistleswhistles Posts: 1,603Member Brian Blessed
    I do have some corkers and yes we would go mad if we couldn't laugh about it. 
    But none of the above fits in these descriptors and that's all they are bothered about.

    It's a pain to forget the programme you were watching because the adverts came on. Solution. Avoid the channels with excessive adverts. I said I watch films in the assessment to avoid that. But that didn't fit those descriptors. 
    We agreed it wasn't safe for me cook though, but the rest is fine because it's perry much zero risk. 
    Forgetting an appointment doesn't happen, I get taken. 
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  • NystagmiteNystagmite Posts: 610Member Chatterbox
    whistles said:

    It's a pain to forget the programme you were watching because the adverts came on. Solution. Avoid the channels with excessive adverts. I said I watch films in the assessment to avoid that. But that didn't fit those descriptors. 
    I forget what I'm watching too. Or forget what's happened. But because it's on as background noise, (I have tinnitus too) I have no difficulties concentrating, apparently.

    As for appointments - my GP surgery and hospital always text me the day before.
  • charlenecharlene Posts: 555Member Chatterbox
     One day I was out and a friend came dashing over to me, saying Carole, Carole you car is rolling down the road!!  Thank goodness the piece of road I was parked on was relatively flat. My car had rolled backwardds about 20 odd  feet and came to a stand still. Thankfully, no cars were around so no damage  was done except  to my confidence!!! I had got out the car, and not applied the brake.  
    When the going gets tough, the tough get going.
  • whistleswhistles Posts: 1,603Member Brian Blessed
    I wouldn't be safe driving on the roads.
    I'm guessing with your memory being this bad @charlene you have given up driving.
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  • charlenecharlene Posts: 555Member Chatterbox
    Wonderful to hear that Vicoriaid, so many poor souls, wouldn't  survive all that. My daughter was sectioned twice and spent 7 months in a closed door mental hospital.  I love her dearly, but often weep for what life has dished up for her. She to is very brave like you.
    When the going gets tough, the tough get going.
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  • whistleswhistles Posts: 1,603Member Brian Blessed
    Because I have only just got my award, I have unwanted debris in my head that focused on the can't do. 
    You do feel as if you shouldn't have any sort of life beyond the garden gate. 

    I can't remember when I last went on the train. That sounds fun. Do they still have people you can buy the ticket from or is all modern and you just get on the train? 

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  • wildlifewildlife Posts: 1,124Member Chatterbox
    @I do and I failed the tests but my assessor solved that quite easily by lying about the results. MOH has to remind me about everything unless I write it down. It happens as soon as I leave a room and start doing something else I completely forget what I was doing before. Last week I put my electric blanket on in the afternoon intending to have a lie down. Then got distracted. When I got into bed it was red hot so I accused MOH of trying to burn me. When he said he didn't put it on I said well I didn't meaning in the last half hour. Then as the discussion went on realization dawned. It had been on full for 6 hours. Now my assessor remarked I had no medical evidence for this but having asked my GP to send me for tests she said the distress it would cause me to know I had a problem and that currently there is no cure would out way any good in having tests. I can understand that but it doesn't fit with the PIP process. I even have a good reason for this in the before and after a head injury in a bad car crash I had. So I have no cognitive impairment according to my assessor.     
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  • whistleswhistles Posts: 1,603Member Brian Blessed
    This is partially my issue. Did my gp feel I would improve or not.
    Now if not I have a nice bucket list I have already made start on. I'm doing it anyway. 

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  • thespicemanthespiceman Posts: 2,331Member, Community champion Brian Blessed
    Hello good evening every body.  I had a well documented addiction history which as effected my memory.

    I have to recognise the best solution for me is to write anything I wish to do in my diary.

    I have lost the amount of things I have lost or done.  Senior moments most weeks.

    Have reminders all the time.  Make a plan for shopping stock list.  As the supermarkets do.

    Plan each time have a pen with you to use to tick off items.

    There are things you can do, have a good well balanced diet.

    There are foods that may boost memory function.  These are only suggestions.

    Olive oil, oily fish ,walnuts  avocados.  There are lots of theories and research needs to be carried out.  Super foods that can be claimed or may boost memory problems.

    These include spinach, strawberries and blueberries.

    Look at things that stimulate you like puzzles, crosswords.

    Music is one and moving a round keeping active.

    Hope any of this helps
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  • sleepy1sleepy1 Posts: 299Member Chatterbox
    Some very funny stories which has give me a good laugh so many thanks.  

    I have many of my own but will tell you one that happened to my son instead. 
    He had not long moved to a new flat and late one night he was woken by a woman knocking on his door asking to speak to someone he had never heard of, she said oh I must have the wrong flat but do you mind if I use your bathroom as I am desperate, he let her in to use the bathroom and after a long time she came out holding a bottle of shower gel saying this doesn't taste very nice I'm not impressed.

    As he tried to usher her towards his front door she told him I am very tired now your going to have to go and shoved him outside.  Thankfully I had a spare key!




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  • sleepy1sleepy1 Posts: 299Member Chatterbox
    @Victoriad, yes I think he has learnt a few things from that experience!........Buy some better shower gel I said just in case another random connoisseur pops around in the middle of the night to test it ; ))


  • whistleswhistles Posts: 1,603Member Brian Blessed
    I can make my friend a cup of tea. We're you not having one. Don't know i can't remember now. 
    That's common. But again not important, just lifes little pot holes.
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  • whistleswhistles Posts: 1,603Member Brian Blessed
    Victoriad said:
    Good evening @thespiceman
    Welcome to our evening chat.

    Hello @whistles
    Got a brainwave perhaps we could ALL chip in and purchase our respective GPs a crystal ball?..........
    Have you seen the price of them.  :)
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  • NystagmiteNystagmite Posts: 610Member Chatterbox
    I used to make shopping lists when I went shopping and forget said list! I no longer make them. But I have a habit of either forgetting to buy milk and bread or buying too much...
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  • thespicemanthespiceman Posts: 2,331Member, Community champion Brian Blessed
    Hello @Nystagmite Good morning how are you?  I have to make shopping lists because I have gone twice in a week.

    Bought the same stuff as well.  Also ideas like stock take good to know where and when you need to buy stuff.

    I forgotten lists but main big reason is my all time favourite story.  I with a friend at the time who went a round a big store no list.  Kid in a Candy shop went mad.  Ended up buying BOGOF and all the deals.  I come to till when my price in my head.  Good at estimates.  His well broke the till.  Rang out of bags.  Steam coming his head amount of money.  He had spent.

    Turning me the look and pleas.  Had to empty trolley putting stuff back.  Every body getting irate behind us.  I would have paid some of it but he was annoying and always made fun of me and my lists.  Now the tables turned on him.

    Nobody wants that do they ?

  • whistleswhistles Posts: 1,603Member Brian Blessed
    So the next question is, how many of you with memory issues were awarded any points because of it?


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  • NystagmiteNystagmite Posts: 610Member Chatterbox
    whistles said:
    So the next question is, how many of you with memory issues were awarded any points because of it?


    I was awarded none. It was claimed I have no memory problems. I ended up with a brain injury at 11 and hit my head again last year. Yes, there's proof of both and the after effects of the latter due to the vertigo. But I can't prove I have memory difficulties. But it's also a medication side effect. But again, I've got no proof of that. I never mentioned it because it's not overly serious and my GP can't do anything. 
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  • whistleswhistles Posts: 1,603Member Brian Blessed
    I wouldn't agree and i would be te against it. 
    People die from being tasered. Don't start me off there, another subject for another day!
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  • charlenecharlene Posts: 555Member Chatterbox
    I don't know, I can't remember. Joking but actually serious, I had to check NIL POINTS!
    When the going gets tough, the tough get going.
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  • whistleswhistles Posts: 1,603Member Brian Blessed
    There really isn't any point in doing an MR for me because it's all in relation to my not remembering/ forgetting etc. I scored 4 for care purely on the safety.
    Pip has forgotten to include this as a problem. :) 

    As for treacle I used to eat golden syrup out the tin.  :*
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  • whistleswhistles Posts: 1,603Member Brian Blessed
    Victoriad said:
    Hi @whistles
    just wondering were you awarded care due to the safety issues .......say for example, leaving gas cooker on and forgetting........


    It was cooking and washing, element of risk.
    Everything is low risk so no points. 
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  • susan48susan48 Posts: 2,014Member Brian Blessed
    Victoriad,
    your on great form tonight again, you definitely brighten the day.

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  • susan48susan48 Posts: 2,014Member Brian Blessed
    Victoriad,
    your hilarious
  • susan48susan48 Posts: 2,014Member Brian Blessed
    Again half my posts gone!!

    chocolate, bribe him 
    i bet he secretly enjoys it

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  • susan48susan48 Posts: 2,014Member Brian Blessed
    Victoriad,
    make your hubbies a large one .

    will have a look.
    enjoy your program 
    x
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  • susan48susan48 Posts: 2,014Member Brian Blessed
    Oops, 
    well on the up side your other half has an extra 30 minutes of man tv


  • whistleswhistles Posts: 1,603Member Brian Blessed
    Just boosted my memory.
    Accidently ripped up my award letter plus assessment report. 
    Spent some time putting test puzzle back together.
    It got mixed up with the junk mail.
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  • whistleswhistles Posts: 1,603Member Brian Blessed
    Trust me to do that. It all looks the same. 
    Do not follow me, I don't know where I am going.
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  • NystagmiteNystagmite Posts: 610Member Chatterbox
    I have a habit of only remembering my medication once I'm out the door. Despite me saying this in my assessment, it was decided I have no difficulties with my medication.

    But how do I prove it? I live alone.
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