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Disappointing PIP Report received

ellied2004ellied2004 Posts: 13Member Courageous
edited March 2018 in PIP, DLA and AA
Hi all this is my first time posting, I had my PIP assessment on the 2nd March and recieved my report today. I have fibromyalgia, depression and anxiety. I decided to apply for PIP as I am on long term sick and unable to work with my illness and needed some financal support. When I arrived at the centre they were running late and I had to wait over an hour which sent me into a panic as I only leave the house for appointments that I have to go to and I can't go outside on my own, this meant my assessment was rushed as I needed to get home. At the time I found the assessor to ok and he seemed like he wanted to help get it right. Well after reading the report he has left vital details off also told lies, he mentions a few times that I was able to pass letters to him and could get my coat on and off ok. I never once passed him anything and at no point did I remove my coat. The worst part is he comments throughout saying I didnt look depressed or in pain?? What does depression and  pain look like?? How can he assume that I am not in pain or he knows what is going on inside my head just because he looked at me?

Does anyone have any advice on where I should go from here as basically it's my word against his.

Thankyou

Replies

  • MatildaMatilda Posts: 2,615Member Disability Gamechanger
    Ask DWP for a mandatory reconsideration (MR) and if this is unsuccessful be prepared to go to appeal. 69% of appeals succeed.  Assessors are notorious for lying in their reports.

    Disability Rights UK site has a good guide to all stages and of PIP. 
  • ellied2004ellied2004 Posts: 13Member Courageous
    Thankyou for you reply. I am really shocked, he  even commented that I didn't sweat throughout yet when I arrived he went to shake my hand and I said I won't because my hands were soaking and I was embarrassed. He said I dont look depressed or anxious yet scored me 10 points on mobility as any journey would cause overwhelming psychological stress, so one minute he says I don' have any problems yet on the other I do. It doesn't make any sense 
  • HenryHenry Posts: 66Member Courageous
    Thank u  for sharing.   I  too await my  decision from DWP.
    I have the same disabilities  + IBS. PTSD.    Arthritis.    My  feet burning sensation.  If they fuse the bones in the big toes. I shall be limping the rest of my days.  
    Key  hole surgery on my knees .
    Virtually unable to walk without a stick.  
    I shall  keep u posted on the outcome.
    I am on DLA  middle rate of care and high  rate mobility. 
    Personally.  I am waiting to be shafted. 

    British Veteran 
  • reeniereenie Posts: 16Member Connected
    When I had my pip assessment in February the paperwork said I was legally allowed to record the interview as long as I let them know before my appointment. I didn't chose to record as my medical evidence is quite big and they can't argue  with it. But maybe you could ask for another assessment and state you will be recording because you felt the last assessor didn't write up your report correctly? X
  • ellied2004ellied2004 Posts: 13Member Courageous
    @Henry I have everything crossed for you, hopefully yours will be a better outcome.

    @reenie thankyou for that, I stupidly didn't send any evidence in as I thought they would get that themselves, I have reports that say the opposite of what is said on my assessors Report, maybe sending that in might make a difference 
  • reeniereenie Posts: 16Member Connected
    I sent in every copy from every doctor I have seen since being disabled. My spine was misdiagnosed as fibromyalgia for years so I know how difficult it is too be able to prove the struggles you have under that diagnoses. Dla wouldn't acknowledge my physical problems for years and I didn't have the emotional strength to fight back. Now my spine has given out I have mri's to prove my situation. Part of me wants to get those mri's and send them to the person who didn't believe my physical restrictions were there years ago and say " see told you what was happening to me was in fact happening!" But thankfully pip assessor was good with me this time round and I've been awarded a much better amount. Funny thing though I was assessed I  February but they won't start my pip claim until 4th April. Don't understand this but again don't have it in me emotionally to argue it
  • reeniereenie Posts: 16Member Connected
    edited March 2018
    I had to chase my local hospital to get copies of reports and scans sent to me. My gp was great and printed off a couple of mri scan reports for me too. I didn't get them originally for pip I got them so next time I have to go a+e the doctors can help me quicker as some of symptoms display like stroke symptoms and they spent months looking at my brain instead of my spine despite my requests to look at spine at the same time. But im glad i did get my pile of reports because it made the whole pip application and assessment much easier x
  • ellied2004ellied2004 Posts: 13Member Courageous
    @reenie I swear my pain is more than fibro but so far nothing is showing up my arms are in so much pain, but according to my assessor I'm not in pain
  • ellied2004ellied2004 Posts: 13Member Courageous
    @reenie thank God you got your diagnosis just so you can prove all those people wrong. How come you have to wait till April? I thought it was backdated 
  • reeniereenie Posts: 16Member Connected
    edited March 2018
    Have you asked for mri? The doctors ignored my pain until I physically couldn't lift my left leg and had incontinence issues. That was when they finally did a 2nd mri of my spine back in 2016 which showed my spine damage had worsened. After nearly 8 years of misdiagnosis. My spine specialist wasn't impressed when I told him about my symptoms for years and that the rheumatologist ignored the clear nerve symptoms and should have referred me to him 8 yrs ago. I'm a bit of a mess now because of the wrong medical advice. I would highly recommend you push for more testing x
  • sleepy1sleepy1 Posts: 299Member Pioneering
    Hi @ellied2004, welcome to the Scope forum where you will find lots of useful information and find lots of other people who have also had bad assessments.
    Very good point "what does pain and depression look like??"  Perhaps you should call DWP and ask the decision maker exactly that and include the reply in your MR.

    Nothing shocks me now, my son took me in my wheelchair pushed me about 5 meters at most from the waiting room, I was in a lot of pain and on the verge of a nervous breakdown.  The report came back I came alone self propelled 50 meters from the waiting room to the assessment room and looked well?

    Not saying they all tell leis but the ones that do have a lot to answer for!

    Hope you don't mind me taking your quote  to start a new thread, 

    Best wishes Rosie X
  • ellied2004ellied2004 Posts: 13Member Courageous
    @reenie thankyou  I will definitely keep pushing, I'm only 34 and have a young baby and feel like my illness also affects him as I cant do anything with him, it' such a shame for him.

    @sleepy1 thank you, most of my report focusses on what I looked like, how am I supposed to look, maybe I should of sat in floods of tears and said ow every few seconds, sorry to hear you also had things that were untrue said, we shouldn't have to deal with that on top of everything else... of course I dont mind x
  • JurphJurph Posts: 279Member Pioneering
    Hi @ellied2004

    I have the same - Fibro, Anxiety and Depression.

    I wasn't given a single point. My entire assessment was based on my appearance. I didn't "look tired, anxious or depressed". I too would like to know what I am meant to look like!

    I feel let down by the whole thing. I've just sent my appeal form off so now waiting for the tribunal.
  • reeniereenie Posts: 16Member Connected
    I'm 34 too my youngest is 5. I've been battling misdiagnosis and grumpy officials since my 2nd son was a baby when I was aged 22. It's extremely frustrating isn't it. All I wanted was help to feel better so I could be an active mum again and work but was constantly dismissed because I was too young for spine problems. If they had of done the mri when I was 22 I would have been given the correct medical advice and my spine wouldn't be so screwed now. My first mri was when I was 29 and showed damage but again they were dismissive. Had 3 mri's in 4 years now and every time the results have come back worse so now I've been diagnosed with progressive deterioration of the lower spine. And all they keep saying is " you are too young to have results  like this " which infuriates me as I was quite clear from the start that the pain I experience in my spine has been there since I was 13 from a severe beating with a wooden stick from an adult. 
  • ellied2004ellied2004 Posts: 13Member Courageous
    @Jurph Hiya, so sorry to hear you are having to go through this. The well known saying "don' judge a book by its cover" doesn't seem to apply with PIP. They must have set criteria on what you should look like. My nurse was a mental health one and that is all he seemed to focus on, he wasnt really interested in the chronic pain just said I didn't look in pain. My mum had done my hair for me as she always does if I have to go out, I still had my pjs on under my clothes but still said I was well dressed.

    Did you do the mandatory consideration? Good luck with your appeal. I did get 7 points for daily living and 10 for mobility, I feel it has been done just so I barely miss out on points x
  • ellied2004ellied2004 Posts: 13Member Courageous
    @reenie omg thats awful I'm so sorry and so awful that you have had this dragged out for so long. I hope they can do something to ease the pain for you, living with daily pain is horrendous and I don' know how you have coped doing it for so long x
  • JurphJurph Posts: 279Member Pioneering
    @ellied2004 it's like reading my own problems. Mine was a mental health nurse too. Mine ignored everything. I said I have severe pain 3 days a week and severe fatigue 3 days a week. They took that as one problem, 3 days a week. Therefore, less that 50% of the time!

    I did a mandatory reconsideration. I still scored 0 points.
  • reeniereenie Posts: 16Member Connected
    @ellied2004 my back is permanelty scarred from 10 years of very hot water bottles. I don't like relying on the yacky medications they throw at me. I had to learn to do a bit rest a bit all day long. Now I'm on rest 90% ,10% can do a bit sometimes. Have you had an mri? I would push for one. Wish I had off years ago x
  • ellied2004ellied2004 Posts: 13Member Courageous
    @Jurph that isn't good, pain and fatigue are both completely different things, fatigue is awful especially when you literally cant keep your eyes open its horrible, they should be classed as 2 separate things. Did you send in any evidence?

    @reenie I can't begin to imagine how horrendous that was for you :( good on you though for keeping fighting for a diagnosis, you know your own body. I also hope the person responsible for doing that to you is or has been punished. No I havent had an MRI after xrays the consultant said although I have inflammation he thinks it is fibro x
  • JurphJurph Posts: 279Member Pioneering
    @ellied2004 exactly. I gave them my diagnosis letter from consultant rheumatologist (who discharged me back to the GP for management) and a mental health assessment that recommended high level CBT (a 6 month wait!)

    They photocopied both but then ignored it while making their decision. 

    They didn't contact my GP or rheumatologist.

    To make it worse, my GP retired today so can't ask for evidence from him and it's currently a 6 week wait for an appointment at my GP surgery.
  • sleepy1sleepy1 Posts: 299Member Pioneering
    Lol @ellied2004 ; I am currently doing a PhD in ooh ow ah and can it get any worse (need more practice), failed the do I look like I am depressed and disabled part of the course, on the grounds I was actually still alive, so might need to retake that part sometime in the future.

    Seriously tho give your little man lots of cuddles and don't feel guilty for things you can't do but enjoy the things you can. 
    Don't let those all singing stinky come harassing skating on thin ice dwp judges drag you down.  (wouldn't that make a good show).

    Hugs



  • reeniereenie Posts: 16Member Connected
    @ellied2004 they did the same with me x-ray but no mri. X-ray won't show up disc damage. I plan on putting a long letter of complaint to my hospital because I wouldn't be in such a bad way now if the rheumatologist hadn't of been so dismissive 10 years ago x
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  • JurphJurph Posts: 279Member Pioneering
    Thanks @Victoriad I made an appointment 2 weeks ago but it's not until mid April.

    I've got stacks of medical reports but basically they all say nothing is wrong (I later found out that Fibro doesn't have physical affects a test can show). 

    My rheumatologist said the wanted to see me in 6 months (last June). I still haven't heard anything. I'm asking GP to chase it.
  • becca91becca91 Posts: 12Member Connected
    Hi everyone 
    i think all the assessors like to lie i had my decision back today and was not awarded no care or mobility yet im on a ventilator 

  • WaylayWaylay Posts: 875Member Pioneering
    @becca91That's insane! Mandatory Reconsideration!
  • WaylayWaylay Posts: 875Member Pioneering
    I suffer from chronic pain, anxiety, depression, BPD. My assessor said I showed no signs of pain, depression or anxiety, so I'm cured! Hallelujah. Waiting on Tribunal date.
  • becca91becca91 Posts: 12Member Connected
    @Waylay oh my assessor said no anxiety that i was on my own and that I could manage my medication on my own yet if i have a power cut etc whos goin to wake me up if my ventilator fails 
  • ToffeeToffee Posts: 176Member Pioneering
    Hi all i am  waiting waiting on my assessment letter any day now.. Am wondering what lies they tell on me. This is all so wrong the way people are treated. 
  • CockneyRebelCockneyRebel Posts: 5,246Community champion Disability Gamechanger
    Hi Toffee

    When you do get the report, try not to get hung up on the lies if they have told any. You should concentrate on getting the award you deserve. If you do have issues with the report then you should make a complaint to the assessment provider
    separately  

    CR
    Be all you can be, make  every day count. Namaste
  • whistleswhistles Posts: 1,603Member Disability Gamechanger
    becca91 said:
    @Waylay oh my assessor said no anxiety that i was on my own and that I could manage my medication on my own yet if i have a power cut etc whos goin to wake me up if my ventilator fails 
    This would almost get my mp involved locally. 
    Shocking doesn't really cover it. 
    Reckon even the papers would be interested!
    Do not follow me, I don't know where I am going.
  • becca91becca91 Posts: 12Member Connected
    @whistles ive emailed my mp but no reply as of yet and I know still baffles me to this day 
  • JFK1971JFK1971 Posts: 3Member Listener
    Hi am sorry to hear you have received a report which is far from accurate and honest. I got mine today and it also said i wasn't sweating, didn't look in pain, didnt seem anxious etc. He neglected to report i was in tears on a few occasions, that when severely depressed a friend holds my medication comes to my house to give me it. He also said received no support for my illness even though i have just been referred back into mental health services by my gp. He also repirted himself as carrying out a multitude of physical checks, most of them he didnt !!  Its so distressing reading such nonsense isn't it. IIhave received a total of four points. Up until this i had a lifetime award for dla due to the severity of my physical and mental health..Good luck with your appeal. I will be taking the same route 😧 x
  • becca91becca91 Posts: 12Member Connected
    JFK1971 said:
    Hi am sorry to hear you have received a report which is far from accurate and honest. I got mine today and it also said i wasn't sweating, didn't look in pain, didnt seem anxious etc. He neglected to report i was in tears on a few occasions, that when severely depressed a friend holds my medication comes to my house to give me it. He also said received no support for my illness even though i have just been referred back into mental health services by my gp. He also repirted himself as carrying out a multitude of physical checks, most of them he didnt !!  Its so distressing reading such nonsense isn't it. IIhave received a total of four points. Up until this i had a lifetime award for dla due to the severity of my physical and mental health..Good luck with your appeal. I will be taking the same route 😧 x
    My appeal failed don’t know how as had condition since a baby. They must of miraculously cured me im waiting on my tribunal now. Hope the appeal goes ok for you as its so stressful x
  • dignifieddolldignifieddoll Posts: 52Member Connected
    Makes you wonder thought health professionals take an oath to save lives not shorten them or is only doctors that take an oath .sorry must be brain fog caused by my fibromyalgia  that specialist  says i have but no wait minute  assessor says no fibro must be cured then .!sorry but they do say laughter is best medicine  and thats exactly what assessments are to me at mo a joke !
  • becca91becca91 Posts: 12Member Connected
    Makes you wonder thought health professionals take an oath to save lives not shorten them or is only doctors that take an oath .sorry must be brain fog caused by my fibromyalgia  that specialist  says i have but no wait minute  assessor says no fibro must be cured then .!sorry but they do say laughter is best medicine  and thats exactly what assessments are to me at mo a joke !
    Yes the assessors are a joke im on a ventilator for my breathing yet im miraculously cured would love to know how 
  • poppy60poppy60 Posts: 46Member Connected
    Does it say on report letter how many points you got ?
  • poppy123456poppy123456 Posts: 13,422Community champion Disability Gamechanger
    poppy60 said:
    Does it say on report letter how many points you got ?
    There's boxes with dots or ticks but they're not added up because it's just a recommendation. You need to look at the PIP descriptors and add them up yourself to see what's been recommended.
  • Stunninglady27Stunninglady27 Posts: 36Member Listener
    Does it go with the points you got on report can that be changed I’ve got my report as I asked for it and put them into self pip test and it come up with 17 for daily living and 12 mobility . No decision has been made though I am just wondering if I will get that 
  • justg72justg72 Posts: 173Member Pioneering
    Hi Stunninglady27
    What you score on your self assessment for PIP will mean nothing, its what the HCP scores you when you have your assessment. The decision nearly always goes with what the HCP puts on the report. I have completed the self assessment and I scored enough for enhanced for both. My previous PIP assessments I did score enough for enhanced, my health has not improved and this time I scored 0 for both. I did an MR and my mobility was changed but the daily care wasn't so off to a tribunal I go as I do not agree with the decision they had made. I am now waiting for a date which can be a year or more, it depends on the area you live.
    Good luck and I hope you get the news you want.
  • poppy123456poppy123456 Posts: 13,422Community champion Disability Gamechanger
    Does it go with the points you got on report can that be changed I’ve got my report as I asked for it and put them into self pip test and it come up with 17 for daily living and 12 mobility . No decision has been made though I am just wondering if I will get that 
    Usually they go with the recommendations in the report yes, it's rare to go against it. You will of course have to wait for the decision.
  • Stunninglady27Stunninglady27 Posts: 36Member Listener
    Fab thankyou I really did not expect to get these point tbh I just applied on the off chance although I’m ill thankyou for your reply 
  • Stunninglady27Stunninglady27 Posts: 36Member Listener
    Jiustg73 I’ve got my report I put what the report says into self pip assessment and I had 17 daily living  and 12 mobility 
  • Stunninglady27Stunninglady27 Posts: 36Member Listener
    justg72 said:
    Hi Stunninglady27
    What you score on your self assessment for PIP will mean nothing, its what the HCP scores you when you have your assessment. The decision nearly always goes with what the HCP puts on the report. I have completed the self assessment and I scored enough for enhanced for both. My previous PIP assessments I did score enough for enhanced, my health has not improved and this time I scored 0 for both. I did an MR and my mobility was changed but the daily care wasn't so off to a tribunal I go as I do not agree with the decision they had made. I am now waiting for a date which can be a year or more, it depends on the area you live.
    Good luck and I hope you get the news you want.

  • Stunninglady27Stunninglady27 Posts: 36Member Listener
    I got my report on Monday I only put it in to the self assessment as I scored 17 then 12 for mobility sorry to here you are having to appeal hope you get good need .... I’ve bern waiting since beginning of August shouldn’t be long now for my decision as I had pip home assessment 3 weeks agon
  • hayles123hayles123 Posts: 19Member Listener
    Hi I have received my pip report and all my questions have been answered with an A does this mean I have scored 0
  • poppy123456poppy123456 Posts: 13,422Community champion Disability Gamechanger
    hayles123 said:
    Hi I have received my pip report and all my questions have been answered with an A does this mean I have scored 0
    Hi,

    Yes, i'm afraid that's a recommendation that no points are scored which means no award recommended. They mostly go with the report, it's rare to go against it but you still need to wait for the decision.

    Once the decision is made you have 1 month to request the Mandatory Reconsideration. You need to put the request in writing stating what you disagree with and where you think you should have scored those points and why. Adding 2-3 examples of what happened the last time you attempted that activity.

    I'd advise you to contact a local advice centre near you for help and advice.

  • MotownMotown Posts: 17Member Connected
    Hi ellied2004,
    I fully understand.  I went for an assessment and have had the higher rate of mobility taken away and I am 67!  I gave the healthcare professional additional medical evidence.  I was given 4 points.  I was shattered but I have asked for a Mandatory Reconsideration and have also written to my local MP.
    if you feel injustice go all out to get your award.  The office staff at the DWP are just pen pushers and have no experience regarding medical matters.  The assessments are a joke!
    Good luck.
  • ilovecatsilovecats Posts: 961Member Pioneering
    Thankyou for you reply. I am really shocked, he  even commented that I didn't sweat throughout yet when I arrived he went to shake my hand and I said I won't because my hands were soaking and I was embarrassed. He said I dont look depressed or anxious yet scored me 10 points on mobility as any journey would cause overwhelming psychological stress, so one minute he says I don' have any problems yet on the other I do. It doesn't make any sense 
    Forgive me but he scored you for Activity 11, of which is notoriously hard to prove overwhelming psychological distress and you’re unhappy? Did you score the daily living activities?
  • GeraldGerald Posts: 213Member Pioneering
    Hi ellied2004 welcome to the club I got a copy of my assessment report and after reading it I was looking for the name of the person how had done it and was in shock that it was not ( Hans Christian Andersen ) as it was like a best seller fairy tale I know the next thing will be that assessors are never wrong ever in there life there like a all knowing oracle who can take one look at you know all there is to know about you and your day to day life.
  • madquasimodomadquasimodo Posts: 127Member Courageous
    I do so wish there was some way to get errors put right and sanctions against the DWP, seeing this farce is heart breaking, on my partners first claim was done just after she got out of hospital, the HP was understanding and never gave a musculoskeletal exam, when we requested the report it clearly stated this, when we received the award the DM stated as she had a full musculoskeletal exam and was found fit, MR did not correct this, just plain lies. 
  • MatildaMatilda Posts: 2,615Member Disability Gamechanger
    Many assessment reports are not fit for purpose.  All we can do is appeal.  71% of appeals succeed. I went from standard both components to enhanced both components after appeal.

    Appealing is a hassle but usually worth it in the long run.
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