I'm not sure if I have cerebral palsy — Scope | Disability forum
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I'm not sure if I have cerebral palsy

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lissie
lissie Community member Posts: 4 Listener
edited April 2021 in Cerebral palsy
When I was younger I got diagnosed with poor motor skills and poor gross skills they were originally going to diagnose me with cerebral palsy as my mum has got it and my nanny said it was hertridary so they didn't diagnose me I am now 20 and my leg muscles get incredibly tight when I walk and I suffer from hip pain which had been put down to loose hip muscles my arms also get tired quickly and I struggle to swim cos my arms get really tired I also have pains in my arms I struggle to walk downstairs without holding on to the bannister and I sometimes struggle to walk upstairs I have had physiotherapy and the physio said my calves were tight and my hip muscles was loose I also have really weak ankles and they sprain easily I also have flat feet and struggle to do a full rotation with my ankles  i also struggle with writing as my hands tigthen up and gets achey after ten minutes of writing if anyone can help me out I will be extremely greatful thank you 

Comments

  • Richard_Scope
    Richard_Scope Posts: 3,650 Scope online community team
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    Hi @lissie
    Nice to meet you! I am not aware that Cerebral Palsy is hereditary. Some of the things that you describe could potentially be indicators of having a condition such as cerebral palsy (cp) but not necessarily so. I think the important point here is that you have concerns and you sound as if you need those concerns addressing by an appropriate person. It would not be appropriate for me to speculate if you have cp but I would suggest that you express them to your GP. 

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    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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