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Fibromyalgia for nearly 20 years - i want my old life back!

emma_polandemma_poland Posts: 2Member Listener
edited April 2018 in Invisible impairments
I have suffered with Fibromyalgia for nearly 20 years which has progressed to me now no longer being able to work, I have extreme pain and fatigue and feel my life no longer belongs to me. I have to have my meds put in a blister pack by the pharmacist so I don’t get mixed up. Basically I want my old life back!


  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @emma_poland

    Good Evening & Welcome to our online community/family.

    I have also got chronic pain down my right side 24/7.

    I have had this since 2005 unfortunately. 

    Are you taking any meds to help or on any treatment’s??

    I’m on loads & I have had to take early retirement from a job that I really “LOVED”

    Please please let me know if I can help/support you in anyway?????
  • emma_polandemma_poland Posts: 2Member Listener
    Hi Steve, thanks for the message. My medication is endless.                           
     I also have to have a B12 injection every 3 months and take extra vitamins and minerals!

     I also had to give up a job I loved and had done 3 years on coursework after doing the job for 15 years to become a teacher
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @emma_poland

    No Probs it’s my Pleasure.

    Here’s my meds:

    Pregabaline 600mg (Daily)

    Oxcarbazapine 300mg (Daily)

    Amantadine 100mg (Daily)

    Amytriptlyine 150mg (Nighty)

    Transtec Patches 25mg every 4 day’s.

    Yes I had a job for over 10+yrs whiched I loved so so much.

    This was something else that I was told that I would never do again following my Stroke in 1998 at the age of 32.

    How are you doing today if you don’t mind???   
  • CockneyRebelCockneyRebel Posts: 5,250Community champion Disability Gamechanger
    Oi Steve

    Leave some meds for the rest of us :)

    Be all you can be, make  every day count. Namaste
  • debbiedo49debbiedo49 Posts: 2,902Member Disability Gamechanger
    I am a fibro warrior !💜♏️
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @CockneyRebel

    Yes I think that you can here me “rattling” along now a days!!!!!! 
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