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DLA to PIP - autism, ADHD, sleep apnea

Robin2013
Robin2013 Community member Posts: 2 Listener
edited April 2018 in PIP, DLA, and AA
I'm new to this site. Please can any one advice me on a pip application.  I have just received a letter from the dwp regarding a change from Disability living allowance to pip form. Could any one advice me or know if they have got pip for having autism adhd and sleep acnia? I would be really grateful for some advice. 

Comments

  • CockneyRebel
    CockneyRebel Community member Posts: 5,209 Disability Gamechanger
    Hi Robin and welcome

    Things to know about PIP

    Get face to face advice from CAB, welfare rights or similar whenever possible

    DLA and PIP use different criteria for awards

    Just because you had DLA indefinately does not guarantee you will qualify for PIP

    When making the initial phone call ask for your DLA to be taken into consideration if applicable

    When you receive your PIP2 form you can ask for an extension of two weeks to complete and return it if need be.

    It is important to understand the points system, descriptors and criteria for an award Have a look at the B&W self test

    http://www.mybenefitsandwork.co.uk/pip/indexxx.php

    PIP is about how your condition affect your functionality. The "HOW"
    Medical evidence is only usefull to explain the "WHY. On its own, medical evidence will not win you an award
    Only send relevant medical evidence. More is not always better. HCP's and DM's will not spend time combing through your edition of War and Peace to find the facts.

    Most claimants will be required to attend a f2f assessment, usually at a centre.

    If you are unable to attend a centre and need a home visit, you will normally require a GP's letter stating explicitly that you cannot attend a centre and why. There must be no ambiguity.

    When you receive an appointment date you can rearrange it once only, you must then attend the new appointment

    Failure to attend will result in your file being returned to the DWP and your claim maybe closed.

    When you do attend the assessment you may take a companion for support.

    Make no special effort, be yourself

    Take your medication as prescribed

    Most people with long term conditions have learned to manage and conceal their condition. On the day you must become "disabled" for the assessor to see the real you, otherwise an incorrect assessment is likely.
    I am in no way suggesting that anyone should put on an act and pretend to be worse than they are, many people are already stressed, but at the same time it will not help if the claimant " Puts on a brave face" as my gran used to say

    If you have a home visit, the assessor is just the same as any visitor , they do not have the right to look around your home.

    If possible have a companion with you

    Keep to your normal routine. If at the appointed time you are normaly still in bed or not dressed, then, if you are comfortable, there is no reason to alter that.

    You decide which room the assessment takes place in
    Assessors may arrive early or late so be ready. Have your ID and medication list to hand.

    The assessor will be observing everything you do from the start, how you sit, stand, walk, handle items such as bags and coats.

    Don't expect them to answer many questions, they have an agenda and will want to stick to it.

    If you have a companion they can take notes.

    After the assessment you should ring the DWP and ask for a copy of the report, but wait for 3-4 days for them to receive it. Do not be fobbed off, you are entitled to it no matter what the phone jockey tells you.

    When you receive the report it will give you an indication of your possible award it is a recommendation only, it is the DM that makes the decision and it may differ.

    When you receive the decision letter, you have a month from the date on the letter to ask for a mandatory reconsideration, no extension is normally given. You can do so by phone and or letter.

    If you have received an award the decision letter will tell you what it is, how much and from when.
    If it is a new claim it will be dated from the day of the first phone call. If a change from DLA then it should be dated the day after your DLA stops. If it is a review then it should be a continuation with any back date if a higher award is given

    Look for both the end date and the "We will contact you after " date. Reviews are usually carried out a year before the end date. Some shorter awards have an end date and you will have to reapply.

    Some useful links

    https://www.gov.uk/government/public...ment-providers
     
    https://www.citizensadvice.org.uk/be...nd-carers/pip/

    https://www.rethink.org/resources/p

    CR

    Be all you can be, make  every day count. Namaste
  • steve51
    steve51 Community member Posts: 7,153 Disability Gamechanger
    Hi @Robin2013

    A very very big welcome to you this morning.

    It’s Great to meet you today.

    Please please have a good look around the info from @CockneyRebel

    If you require further help/support please let me know !!!!!!!
  • Robin2013
    Robin2013 Community member Posts: 2 Listener
    Hi, Cockneyrebel. Thank you so much for your information you have provided to me. I am very nervous and anxious about the whole thing from Do a to pip. It's a big thing for me to try and sort it out. As you don't know me I am having trouble sleeping at the moment so I am feeling extremley tired as I have sleep acnia but the mask I have to wear I'm arligic to it as it's latex. I haven't had it that long as I was only diagnosed  not that long ago. I am taking medication for my adhd as well. With my autism I suffer with crowds of people and don't like to mix or comunicate a lot of the time. I like my own space and I don't like change. I struggle a lot with change. I would like to say thank you once again and will keep you posted as to the pip out come. If I do get stuck at any point is it ok to message you? I look forward to your reply back.  
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
    Hi @Robin2013, welcome to the community!

    You've had some great advice from CR, and please do feel free to keep us updated and ask any questions- we'll advise wherever we can. You may also find this Citizens' Advice guidance on filling in the PIP form to be helpful!
  • CockneyRebel
    CockneyRebel Community member Posts: 5,209 Disability Gamechanger
    Hi Robin

    Please feel free to ask me any questions, will do my best to help

    CR
    Be all you can be, make  every day count. Namaste

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