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Anyone out there whose child suffers from ataxia? Or a mild form of CP that showed in an MRI?

VBennettVBennett Posts: 2Member Listener
edited May 2018 in Cerebral Palsy
Hi there,

 I’m new to the site and I’m glad I’ve found it. Our son has been diagnosed with developmental delays. We’re waiting for blood test results and will possibly need to do an MRI. Gross motor skills and language most affected. However we’ve been told he also had Sensory Processing Disorder and that this affects his behaviour. He’s also hyperactive:( 
hes only 22 months old but we’ve always known there was something not quite right about him. He started to sit unaided at 10 1/2 months. Delayed milestones was then our first red flag. He walked at 18months but he’s still unstable on his feet. The suspicion is that he suffers from ataxia a type of CP in a mild form. 
Physios and community paeds have just watched passively but done no tests or treatment. It wasn’t until we saw a paediatric neurologist privately that we were finally heard. It’s so hard dealing with the unknown. I’m pushing for a formal diagnoses but even the consultant can’t say what it’s wrong with my son. She believes that his problem is developmental rather than neurological though this doesn’t offer much comfort. 
Anyone experiencing this? Anyone out there whose child suffers from ataxia? Or a mild form of CP that showed in an MRI?
TIA for your advice 

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