If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Keep on top of what's being talked about in our recent discussions and have your say!
Caring for my adult daughter is heartbreaking
I am the sole parent of an adult daughter with JME elipepsy. It started when she was 16 ish but she managed to complete school and University and running a business. In the last 18 months or so she has seriously deteriorated and can no longer work. We have done the consultant thing and he is great but there is nothing more that medication can do. So her hopes, aspirations and dreams have all been shattered and my smart and talented girl can't even cope with a job in a tea room for a few hours a day. Her fits are changing and increasing and I have moved to be nearer her when she needs me. Even her daily living is now chaotic but she tries so very hard it would break your heart. Does anyone out there have anything similar going on. At 61 I am now struggling with the knowledge that I will probably outlive her. The videos were great and I watched them but she is not a child and I have to help without being in charge any more and somehow manage my own emotions.