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UC and LCWRA

earthchild23earthchild23 Member Posts: 23 Connected
edited July 2018 in Universal Credit
I am messaging to generally Enquire about UC an Lcwra element,
I am asking is Lcwra backdated for claimants who was told to move to UC with previous disability elements on income support (IS)? 
I have been awarded the element after 3 months after now I’m july from starting my claim in April, I was entitled to IS as a carer beforehand with full disability premiums as I was entitled to pip and have a child with complex neurological and physical GI difficulties, at the time he was receiving DLA following this I had to do a renewal and lost the MR so I am now awaiting months later for the Tribunal... anyway to cut it short as a IS claimant I received the 8 week carry on to replace the carers through the changes Protection for carers, none of the payments had been changed to UC and I have lost out, I was getting full premiums before on IS but a informal and quite illiterative conversation with a Case manager of UC yesterday informed me that yes my LCwra is counted from April but won’t pay until August with no back pay, again I’ve only received the decision letter on the journal, I was entitled to Esa before but never claimed as I have my sons difficulties so I was advised to do IS and the IS manager I was in contact with said I should transition with protection however they left me with near nothing and the only consistent payment atm is my pip n child benefit. 

Hope some one can help me with my complex claim 

thanks 🤞😊

Replies

  • LiamO_DellLiamO_Dell Member Posts: 1,114 Pioneering
    Hi @earthchild23,

    Welcome to Scope's online community! It's great to have you here.

    I've moved your post over to our Universal Credit category, where @BenefitsTrainingCo may be able to advise.
    Liam
  • earthchild23earthchild23 Member Posts: 23 Connected
  • poppy123456poppy123456 Community champion Posts: 20,054 Disability Gamechanger
    The premiums aren't paid with UC. However there has been news that this may change if you were previously claiming SDP (severe disability premium) that a payment protection could be put into place sometime in the near future.

    Your LCWRA element isn't payable until week 14 of your claim, once this starts you will receive extra money £328 per month. There's no back pay if a decision was made within this time frame.

    If your sons DLA Tribunal is successful you'll also be able to claim the disabled child element of UC. There's also a Carers element that you can claim if your sons DLA Tribunal is successful.  You should however be receiving a child element in with your UC payment and a housing element if you rent your home.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • earthchild23earthchild23 Member Posts: 23 Connected
    Thank you very much 😊
  • earthchild23earthchild23 Member Posts: 23 Connected
    Update 
    I am two years on and still awaiting the SDP payments. 
    It’s a joke when you owe Dwp money they hound you and when they need to pay you they tell you it’s waiting game. And on top of that still awaiting a clear cut diagnosis for my son. 
    Hope everyone is keeping well and safe. 

  • poppy123456poppy123456 Community champion Posts: 20,054 Disability Gamechanger
    That's an insane amount of time to wait. It's not actually the SDP payments that you're owed because they're not paid with UC, it's a transitional protection payment but it's only paid if you've continued to live alone and no one has ever claimed carers allowance or the carers element of UC for looking after you.

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • earthchild23earthchild23 Member Posts: 23 Connected
    Hello @poppy123456 I’ve no idea then because I’ve been Contacting the SDP for over a year! And all they have been saying that I am on the list, do you have the contact number for transitional protection payment because at the time with the pandemic it would be useful. It’s really frustrating and then waiting for my sons DLA and my PIP re assessment even though it’s been extended due to COVID ! after reading how other people have been treated recently on here I am quite worried because my MH and my Sons MH haven’t improved. 
  • poppy123456poppy123456 Community champion Posts: 20,054 Disability Gamechanger
    I'm afraid i don't know the number. I'm assuming your circumstances remain the same as they did 2 years ago, you didn't answer that question.

    Please also remember that when you're on an internet forum, it's only natuaral that you'll mostly only hear the bad stories. If someone's had a decision they're happy with then they have no questions to ask, so we don't hear their story.

    However, since the face to face assessments were suspended, telephone assessments are currently replacing them there's actually been an increase in people claiming successfully, which is fantastic news. In fact, it's been so successful, that telephone assesments may continue for the foreseable.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • earthchild23earthchild23 Member Posts: 23 Connected
    Oh sorry @poppy123456 yes nothing has changed, I have bf and family that help with both mine and my sons care but they don’t live with us or claim any Carers. 

    Yeah it would be nice for a part on the forum where we could share experiences of how our claims were successful and maybe it would reduce the anxieties when facing any contact with the DWP. But it is still wonderful we have this to discuss things. 

    I’m happy to hear it is online as the people who assess you are not really understanding or independently and it’s difficult to go to when you feel you are being interigated (in my experiences). 


  • earthchild23earthchild23 Member Posts: 23 Connected
    Update @poppy123456

    Hope you are well? 
    I’ve contacted the SDP department to enquire about the Transitional Protection Payment, as usual they have said my name is on the list that has been for over 2 years. Ive even asked if there’s anyone I can complain to as they shouldn’t be saying people are protected and there not it’s a right farse! 
    I’m fed up tbh. 


  • poppy123456poppy123456 Community champion Posts: 20,054 Disability Gamechanger
    I'm not too bad thanks. Hope you are well too. I'm sorry this has happened, yet again. Other than contact your local MP i really have no other answers for you.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • earthchild23earthchild23 Member Posts: 23 Connected
    Great! 
    I’m here to update that after two years of nagging for the transitional protection payment I’ve finally been awarded it at the extra amount of £120 per month! There is hope guys keep pushing on. 
    But tonight I’m emotional 😊😳😭🤬🤯🤪..... (PLEASE REMOVE IF NOT ALLOWED)
    I’m now just waiting for the PIP and DLA Review forms to turn up even though we’ve been extended for another 6 months due to the pandemic. But you know things change with DWP. I’ve had a diagnosis of EUPD, OCD Depressive disorder with anxiety and psychosis for nearly 6 years I swear that I don’t want it to define me but some how it still does. I am dreading the assessment and having to explain how it affects me, how it eats away at me, with flashbacks, real lows and real highs then having to live knowing no one really understands you. Then on top of that I have a son who is my world but apparently now has neurological difficulties from one psychologist and then PTSD with anxiety and OCD from another! No one is investigating the issues and just clear cut diagnosing I know I shouldn’t be moaning but it’s actually really difficult having to live with this and watch your child close there self away get frustrated with them selves feel abandoned by his absent abusive father but try and find themselves in this crazy world we live in today! I know I’ve ranted a bit but I need to get it out I truly need to just let my voice be free. As Mental health often cages us in and it’s hard to see a way out where we can be free in happy there is this platform where we can come and release. 
    With this I hope no one else feels afraid to open up and uses scope to share, talk get advice and ask for help when needed. 
    I hope everyone taking  care and still have the strength to push through. ‘rocky roads often lead to beautiful destinations’ chin up and keep going. 😊
  • poppy123456poppy123456 Community champion Posts: 20,054 Disability Gamechanger
    I'm glad it's finally sorted.

    I'm sorry to hear about everything else. It's always difficult when our children are diagnosed with a condition.

    Those forms could arrive anytime, even though the awards have been extended. When you do fill them out you should put as much information as possible about how your conditions affect you. Then add a couple of real life examples for each activity that applies to you. Do the same with the DLA form. Although they are both different benefits, filling out the form is no different.

    The more information you put the better it will be for you. Face to face assessments are still suspended so it's likely to be a telephone assessment.

    If you need any further advice when you do receive them please just post on the community and i'm sure someone will help you further.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Tori_ScopeTori_Scope Administrator Posts: 832 Pioneering
    Hi @earthchild23,

    Really great news on the extra money! I'm so pleased it's finally been sorted.

    You are absolutely allowed to vent on here whenever you need to. As you say, the Scope online community is a safe place for you to release your worries and get some advice and support. I'm sure that others will find that your openness eases their concerns about sharing their experiences on here.

    I'm sorry to hear about the problems you've been having with your mental health, and now your son's mental health. I can appreciate that you don't want these illnesses to define you, but it's perfectly alright to allow yourself to feel however you're feeling, and take some time to care for yourself. Are you accessing any mental health support services for yourself at the moment? Not having a clear diagnosis for your son must be frustrating so hopefully, over time, you, your son, and his mental health team will be able to get to the bottom of what's going on. Keep us updated.

    As always, feel free to post on the community about any worries you might have about welfare entitlements or mental health, and we'll all do our best to support you :)
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  • earthchild23earthchild23 Member Posts: 23 Connected
    Thanks thanks for replying @poppy123456, o hope you are ok and staying safe yeah I find parenting hard with my conditions but I try my best, not everyday I want to wake up, sometimes I just want to lay there. 
    And yes @poppy123456 I am for sure dreading when these forms turn up, they do scare me. At my GP I’m recorded as having severe mental health, well that’s what they screen me under at my mental health reviews.
    I HOPE my is a telephone assessment!! It’s dreadful going to the centre. 

    Hi 👋 @Tori_Scope
    hope you are well thank you for commenting on the thread, also stay safe. 
    I have a support worker called a ISVA that helps me get though parts of what caused my Memtal health and I have the community core psychiatry team but about three years ago the Community Psychiatry Nurse discharged me as I was under the crisis team. I am awaiting counselling from my ISVA team as I’m a survivor of abuse. I don’t like to say victim because it makes me feel like he still owns me. 
    Yes I’d suffered growing up with ADHD and OCD but wasn’t diagnosed until I was 16 and my mood would be eratic, it was hard on my mum. Then when I got the diagnosis I was in a abusive relationship where the mental health disorders started.  If I’m honest I’m awaiting my next breakdown as they just come on and when they do everything goes pear shaped. I’ve had lists of triggers the last year especially when I had CBT but it was too painful to carry on with. 
    At one point I used to have a family support worker who was useless, social services, mental health team Gp , financial advisor and family but it’s all been cut due to funding with social care and nhs, they will only support me when in crisis. 
    I’m still not a 💯 but I’m trying my best everyday, it’s a fight to not give up and live for my son. But I guess half of my sons problems are probably affected by my state of mental health when I’ve been in crisis and seeing the abuse. It’s just so sad that we have to open up about these thing at assessments every so often it’s As if they expect the conditions to just expire with the award dates! 
    But as I’m waiting specialist CAHMS for his emotional needs I may have more look when completing the DLA again. 
    Thanks for listening 👂 to me vent. 
    And thank you for the support @poppy123456 @Tori_Scope sometimes just the reply makes you feel heard. 😀
  • Tori_ScopeTori_Scope Administrator Posts: 832 Pioneering
    Hi @earthchild23 :)

    I'm glad that you've got an IVSA, that sounds like a really good service. You are a survivor for sure. Lots of other survivors find that empowering too. 

    It must have been difficult not being diagnosed until later into your teenage years, I know that a lot of people find that affects them for a long time. I'm sure that many of our other members have experience with ADHD and OCD, so I'll keep an eye out for any relevant threads for you. It's understandable that you'd be concerned about having another dip on your mental health, but I really hope that you're able to access some counselling before that happens. Are you aware of the services you can access in the meantime, if you were to have another breakdown? 

    Yes, mental health services are really underfunded unfortunately. It looks like you do have at least some support in place, though? I know it might not be enough, but hopefully you're on the right track to getting the help you need. 

    I'm glad to hear that you're still trying your best to build a life with your son. I know it's easier said than done, but try not to blame yourself for the problems your son is facing. Going over the same traumatic things at assessments must be exhausting!

    Good luck with CAMHS! I hope they're able to help.

    Of course :) Any time.
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  • Chloe_ScopeChloe_Scope Administrator Posts: 10,075 Scope community team
    Hi @earthchild23, really glad to hear from you. How has today been? :)
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  • earthchild23earthchild23 Member Posts: 23 Connected
    Hi @Tori_Scope it’s been unsettling and hard knowing somethings not right and that I don’t fit like everyone else difficult growing up, but I always knew there was more not just from hearing my mum speak about it but I could feel it.
    The thing is with me they literally can come out of no where like weeks and months after the triggers so I could for instance speak about something in counselling or with my ISVA and then in a few weeks or months I get and feel flashbacks where it’s all very real and I get unwell. Normally whe n I get like this I feel like everything is against me and it’s hard to trust to open up but my MH team have an idea about it from the CBT work I’ve done, even though it’s not completed it’s hard to explain that experience because you remember parts of the breakdown in snippets. 
    Yes the mental health teams are underfunded I’ve been trying to complete psychology degree in spite of my disability  with the OU to at least one day be able to volunteer and give some support to people like me as a therapist. So I do have future aims just this condition can hold me down at times. I’m also hopeful with CAHMS this time around as I’m going to make it Clear I want them to investigate properly not try and fit him into a box’ as they do with assessing ASD or ADHD. 

    Thanks for the reply 😊
  • earthchild23earthchild23 Member Posts: 23 Connected
    Hi @Chloe_Scope 😊 Thankyou for the reply I have been actually ok today I feel a bit at ease so I went to go and get my toe nails painted to feel better it uplifts me and lets me embrace being a mum and survivor, these little acts contribute to our wellbeing and self care even though I really don’t like going out. 
    How are you today? 😊
  • Chloe_ScopeChloe_Scope Administrator Posts: 10,075 Scope community team
    Glad to hear you are doing okay @earthchild23. Self-care is so vital and can help us feel a bit more us!

    I am doing well thanks, hope today goes well. :)
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  • earthchild23earthchild23 Member Posts: 23 Connected
    Hiya @Chloe_Scope
    thw appointment with the consultant was ok, he reassured me to not get worked up and it was on video call so I didn’t have to deal with my fear of going out to hospital. How’s your day been 😊
  • Ross_ScopeRoss_Scope Administrator Posts: 480 Pioneering
    Hi @earthchild23

    I'm glad you were able to have the appointment by video call and it's great that the consultant was reassuring :) 

    Hope you have a lovely weekend
    Online Community Coordinator

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  • earthchild23earthchild23 Member Posts: 23 Connected
    Hi @Ross_Scope
    i hope you are ok? 
    Yes it was reassuring and I find it more comfortable as your in your home and not worried about everything else with this pandemic, I just hope I’m able to get some more information to understand what is happening from the symptoms I’m experiencing. Which will also be helpful when completing my PIP renewal. (When it magically appears)
    😊
  • Ross_ScopeRoss_Scope Administrator Posts: 480 Pioneering
    @earthchild23

    I'm very well thank you for asking :) 

    Absolutely, it's important that people are able to access appointments like this one in a way that they feel comfortable with and I'm glad you were able to do that. 

    Yes I do hope you get more information that helps you understand your symptoms, it mustn't be easy being uncertain about things.
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  • earthchild23earthchild23 Member Posts: 23 Connected
    @Ross_Scope
    yes it certainly is thank you 😊
    and I hope I can answers soon. 
    Hope you’ve had a lovely weekend 
    take care. 

  • Chloe_ScopeChloe_Scope Administrator Posts: 10,075 Scope community team
    Hiya @Chloe_Scope
    thw appointment with the consultant was ok, he reassured me to not get worked up and it was on video call so I didn’t have to deal with my fear of going out to hospital. How’s your day been 😊
    @earthchild23! That must have made it a bit easier. :) 
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