If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Sleep

lozzer25lozzer25 Posts: 89Member Courageous
Does anybody have sleep issues I go to sleep but I am constantly moving during the night due to being unable to get comfortable always wake up with tight shoulders and neck feels like I've got two rocks on either side every day from the moment I wake up to the moment I go to bed never wake up refreshed and my 2o clock im dog tired and tend to fall asleep tried different sleeping positions nothing works I am 32 years of age and have mild spastic diplegia and upper limb dyspraxia any information would be greatly received ps.awaiting botox for my left leg hoping this is the magic cure to stop all ailments 

Replies

  • susan48susan48 Posts: 2,187Member Disability Gamechanger
    Hi @lozzer25 I too have sleep problems. It effects every part of your life if your constantly shattered. Have you seen your GP regarding this problem?
    I went to mine as I hadn’t slept a whole night of restful sleep in about a year. I have MH problems.
    My GP gave me sleeping tablets but even with these I don’t sleep properly. 

    I hopeyou you can get help with this and also that your Botox works 
  • lozzer25lozzer25 Posts: 89Member Courageous
    susan48 said:
    Hi @lozzer25 I too have sleep problems. It effects every part of your life if your constantly shattered. Have you seen your GP regarding this problem?
    I went to mine as I hadn’t slept a whole night of restful sleep in about a year. I have MH problems.
    My GP gave me sleeping tablets but even with these I don’t sleep properly. 

    I hopeyou you can get help with this and also that your Botox works 
    Thank you susan ive never brought up the subject as I don't want to take sleeping tablets I just hope this botox works been waiting since April x
  • nicebootsniceboots Posts: 195Member Pioneering
    Hi @lozzer25 I have spastic diplegia and occasionally have issues with sleep,what really helps me is taking baclofen before bed and first thing in the morning. It takes the edge off the tightness and discomfort. I also wear a leg gaiter on my worse leg which helps stop my hamstrings tightening up and my leg pulling into uncomfortable positions, so I move less at night. Botox has helped me in the past, although that was alongside casting and then day and night splints.
  • lozzer25lozzer25 Posts: 89Member Courageous
    Thanks niceboots I don't use any splints I mentioned it once but they said I would end up breaking it I take baclofen at night but it doesn't do anything I can go to sleep but constantly wake up because I'm uncomfortable I flop about like a fish at night and when I wake up I have constant tension in my neck and shoulders daily it never waivers always there I've tried exercises to try and combat the stiffness but nothing helps x
  • nicebootsniceboots Posts: 195Member Pioneering
    Have you spoken to your doctor? My gp adjusted the night time dose of my baclofen to help me relax better at night. 
  • lozzer25lozzer25 Posts: 89Member Courageous
    I was on 90mg but it did nothing for my sleep I'm seeing a psychologist they go on about mindfulness alot and anxiety but it's not going to sleep that's the problem I can go to sleep but constantly wake up because I'm uncomfortable 
  • Chloe_ScopeChloe_Scope Posts: 3,350Administrator Scope community team
    I too found that baclofen helps me to relax when I sleep. I have also been prescribed melatonin in the past. There are various options the GP can go down. It is also possible to get referred to a sleep specialist who can look at positioning. It may be that a sleep system would allow you to stay in a position that was better for your body and therefore reduce the amount of times you wake up 
    Chloe
    Online Community Officer
Sign in or join us to comment.