If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Fibromyalgia and sensory seeking- anybody else?
Options
butterflyalike1
Community member Posts: 3 Listener
Hello everyone I am new to the forum and recently discovered a name for my illness with fibromyalgia. Hope to speak with some of you!
Comments
-
One thing I have noticed with my fibromyalgia is that when I am physically not doing great, and having a flare, sometimes my brain wants to work up as much as it can. Take in more information, noise. Does anybody else have this? How do you counteract these?
-
butterflyalike1 said:One thing I have noticed with my fibromyalgia is that when I am physically not doing great, and having a flare, sometimes my brain wants to work up as much as it can. Take in more information, noise. Does anybody else have this? How do you counteract these?
-
Hi @butterflyalike1, and welcome!
Thanks for sharing this, that's a really interesting way of describing your fibromyalgia symptoms. We have lots of community members with fibromyalgia, so hopefully you'll be able to connect with others soon. -
I've had Fibro since 2013. I find just trying to get through a day is hard work. I woke up with pain everywhere but as the day goes on it becomes an awful ache that won't go away no matter how many painkillers I take. I get too tired with it.
-
Hi I was finally diagnosed a few years ago it's a long process. I have fibro and ME/ CFS. I sympathise with you just getting the diagnosis was a herculean journey. I have sensitivity/aversion to light and noise and from others I have spoken to this is quite a common symptom. I was asked what my symptoms were by a friend and had to stop after seven or eight as her eyes were glazing over. I don't get all the symptoms all the time but I have some of them most of the time if that makes sense. But pain and fatigue are constant. How do you feel you are treated by GPs?
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.