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Pip review

susankaysusankay Posts: 19Member Whisperer
Hello. This is my first post. Dwp recieved my ar1 form 2nd august. I phoned them 3 weeks ago and my form was with the DM. I have heard nothing since. Any ideas as to how long they take
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Replies

  • SaracenSaracen Posts: 63Member Talkative
    Have u had an assessment?
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    Most people have face to face assessments even for reviews. Have you had one of these? If so then there's no timescales to decisions, it depends on backlog in your area.
  • susankaysusankay Posts: 19Member Whisperer
    No I haven’t had an assessment
  • susankaysusankay Posts: 19Member Whisperer
    8 weeks seems a long time to wait for an apointment
  • JO2907JO2907 Posts: 19Member Whisperer
    Hi susankay sorry to but in on your post, but i am in the same situation as you at the moment. Can you help me? I sent my pip review form back 3 wks ago, did they let you know they had received it or not? because i'm worrying now that is hasn't got there!!. Thank you Jo2907
  • susankaysusankay Posts: 19Member Whisperer
    I have never had any communication from them. Give them a ring and they will tell you the date they received your form. That’s what I did. Some people get text messages from them but I never have. 
  • JO2907JO2907 Posts: 19Member Whisperer
    Thank you for your reply. I've never received anything from them previously either. Have you heard anything from them yet?. I'm just wondering how long the wait is this year!!
  • susankaysusankay Posts: 19Member Whisperer
    It’s 9 weeks now. Will be 10 weeks on Thursday since they recieved it. 
  • debbiedo49debbiedo49 Posts: 2,328Member Brian Blessed
    You are in for long haul unfortunately 


    I am a fibrowarrior!
  • JO2907JO2907 Posts: 19Member Whisperer
    I suppose it depends on backlog in each area especially now there suppose to be reviewing all the people who have been underpaid in the past. I'm in Leeds, but 10 wks is a long time, thought you might have had a letter for a f2f appt or decision by now. Please update this post when you do and Good Luck!!
  • YadnadYadnad Posts: 2,286Member Brian Blessed
    Made more difficult for the claimant because of the DWP moving staff around to various other benefits to prop them up. 
    I would hate to guess what the staffing levels are like now in terms of numbers, excluding agency staff, when compared to 10/15 years ago bearing in mind the extra work load increasing year on year.
    As an example and why I jumped ship and retired from the Civil Service earlier than I intended. Pre 2008 in my department of 52 investigators and support staff we had a work load maximum of 12 new cases a month to investigate and clear. By 2009 the department reduced the number of staff down to 24 and investigators were then expected to take on and clear 24 cases a month. That was me gone! 

    It is much like the young lad trying to plug the leaks in the dam using only his fingers and toes.
  • JO2907JO2907 Posts: 19Member Whisperer
    Hi Yadnad Very True your last Statement. None of us Claimants have a Clue what goes on behind the DWP walls. Thank you for your insight it was Very Informative. At least while i'm waiting for the duration they are still paying me, so i can at least save a bit more money until they send me for a f2f. I have to think that way otherwise i would have a Nervous Breakdown!!
  • Heidi415Heidi415 Posts: 22Member Whisperer
    Hi I am in a similar situation to you. DWP received my AR1 form on Tuesday 7th August and I have yet to receive an assessment date or award. The only communication I have had was a text a few days after sending the form to say they had received it. Do you think it is taking longer than usual because every claim has to be looked at again due to the mental health and journey planning change? I know they say it can take up to 16 weeks but this hasn't been my experience in the past. I am driving myself mad worrying about it, second guessing what is happening.
  • JO2907JO2907 Posts: 19Member Whisperer
    Hi Heidi your Lucky i haven't even received a text to say theyv'e received my form, so i'm praying they have. I think that Reviews will be taking longer as i read somewhere that there dealing with people they Refused it down to Mental Health first, but who knows for definite?. I don't even know if they will Review my case as i currently get Standard rate for Mobility and can't take a journey so according to new ruling should get Enhanced. But i'm same as you driving myself mad with worry not knowing what's happening!!
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    The changes to following and planning a journey won't apply to everyone and it doesn't mean you'll be awarded Enhanced mobility, it totally depends on how your conditions affect you.

    There's not timescales to decisions or assessment waiting times. The 16 week guide is just a guide and means nothing. It could be much longer than this. Expect a face to face assessment whether it's a review or first claim because most people have them.
  • JO2907JO2907 Posts: 19Member Whisperer
    Hi Poppy i'm not Expecting to get Enhanced was just thinking with me being reviewed now they might look at it again with a view to the New Ruling.
    I am also Expecting another f2f as well.
    I posted to try and find out how long people are waiting roughly for a f2f from sending there Review Form in. But thank you for your input.
  • sarah50sarah50 Posts: 118Member Chatterbox
    @JO2907 hi in my case I had my review form at the beginning of May had my f2f in mid June. The decision was made on the 19th September but I didn't receive that letter until the 27th. But as has been said there seems to be a wide variation around the country.
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    JO2907 said:
    Hi Poppy i'm not Expecting to get Enhanced was just thinking with me being reviewed now they might look at it again with a view to the New Ruling.

    Yes they will because that's what they do for a review, they reassess you. Waiting times for assessments vary across the country, depending on backlog in your area.
  • Heidi415Heidi415 Posts: 22Member Whisperer
    Thank you for replying. I fully expect to have a face to face assessment as I did with a previous renewal. I didn't realise the 16 weeks was only a guide. I do not expect to hear back til at least the end of November. The DWP have stated they are prioritising claims that were disallowed over claims already in receipt of awards which is understandable. We are lucky that at least we will still receive payments, it is just hard living in limbo. I have found this renewal far more stressful than my initial claim or first renewal. I was just trying to gage how long people are waiting in between sending off the forms and having the assessment.
  • JO2907JO2907 Posts: 19Member Whisperer
    @sarah50 thank you very much. So you waited roughly 6 wks till f2f, but like you say there is a wide variation around the Country. As @susanRay has been waiting 9 weeks and still waiting. If anyone from Leeds is waiting after sending there Review form, i would be Very Greatful to hear from them then i'll have a better idea. But thank you to Everyone who has Responded!!
  • JO2907JO2907 Posts: 19Member Whisperer
    @Heidi415 this is my 1st renewal but knew that a f2f would def be happening lol. Like you i think there prioritising the people that were refused the 1st time. But where still getting paid but doesn't make it any easier with the worrying. Your right i find this renewal worse than my initial claim, i think its because where left in limbo. From a couple of posts it seems from 6wk to 9wk and longer depending what Area you live, so god knows. All we can do is keep updating our posts i think till we hear anything, that way it will give us some insight rather than None At All!!
  • sarah50sarah50 Posts: 118Member Chatterbox
    Well my reassessment didn't go well I have been denied pip and because of their stupid postal system and the time limits that are imposed on us but not them, they work to guidelines that they don't have to stick to, I have had to apply for a mandatory reconsideration. Without the benefit of my report. I now have a copy of the report and it varies from inaccurate to down right lie. I don't expect DWP to change their decision based on the MR and I've got no clue how long it will take for that decision to come through but I will be taking it to tribunal again no idea how long that will take but someone I know here in the southwest waited 9 months. My pip has stopped altogether as of the 19th the date of the decision. Happy days debt here I come.
  • sophella8sophella8 Posts: 7Member Listener
    I have recently been awarded PIP and the whole process took 13 weeks until i recieved a decision its one of them where you have to be very patient 
  • JO2907JO2907 Posts: 19Member Whisperer
    @sarah50 really sorry to hear that you got denied pip. Was this a Review of your Original Claim?. 
  • sarah50sarah50 Posts: 118Member Chatterbox
    @Jo2907 hi it was a review, I was originally awarded pip until Feb 19 but in May 18 they sent me a review form as I said they stopped it on 19 Sept. So award length doesn't mean that much either does it. So angry with the whole process at the moment 😠
  • sarah50sarah50 Posts: 118Member Chatterbox
    @sophella8 hi your claim was very quickly sorted did you get any help with your claim?
  • JO2907JO2907 Posts: 19Member Whisperer
    @sarah50 Jesus no the award length obviously doesn't mean nothing at all. I can only imagine how angry you are😣😣. If you don't mind me asking, what are your Problems?
  • livonialivonia Posts: 45Member Whisperer
    I applied April decision in July . I’m still waiting on esa review decision also submitted in April 
  • SaracenSaracen Posts: 63Member Talkative
    Hi all 
    This is my wait so far im in south wales .
    Recieved my review form 4th april, I asked for a three week extension because cab were doing it for me , had my f2f in early august they recieved my assessors report 21st, phoned and had a copy the following day wow couldnt believe it came that quick ,
    According to assessors report he gave me 13 points care and 18 mobility . Phone on numerous occasions still no decision yet but have been told by Dwp at least I got some money coming in .
    Its been 7 weeks since they 6 months from start hope this helps some of you good luck.
  • sarah50sarah50 Posts: 118Member Chatterbox
    @JO2097 hi, no I don't mind I have Fibromyalgia and chronic fatigue syndrome along with the resulting depression from having such a reduced life.
  • JO2907JO2907 Posts: 19Member Whisperer
    @sarah50 thank you for replying. I have had Severe Depression for years and just been diagnosed with Fibromalgia and IBS, so i know how it effects you. After your Outcome i'm not holding out any hope at all Now!!. Please keep me updated of how you get on with your MR etc, because i'm sure i will be in the same boat shortly and any tips would help. Message me anytime if you want to talk about anything.
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    PIP isn't awarded based on a diagnosis, it's about how your conditions affect you daily and you can't compare 2 people because we're all affected differently even if we have the same conditions. I claim PIP for fibro and other conditions because of they way i'm affected by them. Lots of other people claim PIP without any problems for fibro and mental health conditions. Good luck with your claim.
  • sarah50sarah50 Posts: 118Member Chatterbox
    @JO2097 try not to worry as poppy said it is about how your conditions affect your daily life not your diagnoses. You can only go through the process and respond accordingly.
  • YadnadYadnad Posts: 2,286Member Brian Blessed
    JO2907 said:
    @sarah50 thank you for replying. I have had Severe Depression for years and just been diagnosed with Fibromalgia and IBS, so i know how it effects you. After your Outcome i'm not holding out any hope at all Now!!. Please keep me updated of how you get on with your MR etc, because i'm sure i will be in the same boat shortly and any tips would help. Message me anytime if you want to talk about anything.
    Main disabling condition for people in receipt of PIP (normal rules):  
    634,000 (36%) were recorded with ‘Psychiatric disorders’ (which includes ‘Mixed anxiety and depressive disorders’ and ‘Mood disorders’).  
    372,000 (21%) were recorded with ‘Musculoskeletal disease (general)’ (which includes ‘Osteoarthritis’). 


    Taken from DWP stats

    A total of 57% of all claimants with an award  will have either Psychiatric disorders or Musculoskeletal disease
  • sarah50sarah50 Posts: 118Member Chatterbox
    @JO2097 Fibromyalgia is classed as a chronic pain condition for pip,
  • medwaymummedwaymum Posts: 9Member Whisperer
    edited October 8
    It can take a very long time and as others say no case is the same but I would always phone them if you have not heard and appeal straight away if they dont get back to you also everyone has an assessment, I have found they often put wrong things about people and you need to put this in an appeal ,depression does effect your life big time, I hope you get it eventually. 
  • JO2907JO2907 Posts: 19Member Whisperer
    @Yadnad Thank you Yet Again for your Valueable Information. I'm Definitely more Inclined to Listen to Your Input as i'm Sure with you having Worked for the Civil Service you have the EXACT Insight and Information that people NEED, rather than people who just think they know Everything because they've been Awarded it!!. Thank you
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    sarah50 said:
    @JO2097 Fibromyalgia is classed as a chronic pain condition for pip,
    PIP isn't awarded based on a diagnosis, it totally depends how those conditions affect you daily. Everyone is different and you can't compare 2 people.
  • JO2907JO2907 Posts: 19Member Whisperer
    @poppy123456 yes we already know that its based on how your condition affects you daily as youv'e already said on your previous post. I think i'll just be leaving it to the person who's job it is to Assess me and Yadnad's Valuable Advice thanks.
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    edited October 8
    Yadnad's valuable advice... not being nasty here but this persons PIP claim was refused and the information he gave you was just stats from the internet...
  • JO2907JO2907 Posts: 19Member Whisperer
    Sorry do you work for the DWP?
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    No! I claim PIP and ESA myself and my daughter claims PIP also. Thank you!
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    Before this gets out of hand i'll end it here but wish you good luck with your claim.
  • JO2907JO2907 Posts: 19Member Whisperer
    Yes I also Claim PIP and ESA. So like i say i'll listen to the Advice I Find Valueable. Thank You!!
  • debbiedo49debbiedo49 Posts: 2,328Member Brian Blessed
    @JO2907 please treat others on here with respect as we are all here to help each other. This is a forum where we speak through our own experiences and nobody claims to be experts or work for dwp. @poppy123456 is only trying to help and if you look on other topics she does same. If you don't like the advice don't take the advice. Your choice. 


    I am a fibrowarrior!
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    @debbiedo49 thank you very much! Much appreciated, i was only trying to help. Seems like we can't please everyone.
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    JO2907 said:
    Yes I also Claim PIP and ESA. So like i say i'll listen to the Advice I Find Valueable. Thank You!!
    I find your comments rather hurtful and uncalled for. I was only trying to help and never said anything bad or disrespectful to you.
  • JO2907JO2907 Posts: 19Member Whisperer
    Really Sorry if i've Offended Anyone it wasn't my Intention. But like @debbiedo49 has said its my Choice which Advice I Choose to take i think. Thank you
  • tru88letru88le Posts: 27Member Whisperer
    sarah50 said:
    Well my reassessment didn't go well I have been denied pip and because of their stupid postal system and the time limits that are imposed on us but not them, they work to guidelines that they don't have to stick to, I have had to apply for a mandatory reconsideration. Without the benefit of my report. I now have a copy of the report and it varies from inaccurate to down right lie. I don't expect DWP to change their decision based on the MR and I've got no clue how long it will take for that decision to come through but I will be taking it to tribunal again no idea how long that will take but someone I know here in the southwest waited 9 months. My pip has stopped altogether as of the 19th the date of the decision. Happy days debt here I come.
    From initial decision to second tribunal assuming the first tribunal goes wrong for some reason it was two and a half years for us and ended today with  enhanced care and mobility award. Double win
    Over £10000 due
  • Firefly123Firefly123 Posts: 219Member Chatterbox
    It seems to be a postcode lottery wish us all luck coz there seems no clear rules even when you fit their criteria 
  • Government_needs_reformGovernment_needs_reform Posts: 510Member Chatterbox
    Yadnad's valuable advice... not being nasty here but this persons PIP claim was refused and the information he gave you was just stats from the internet...
    @poppy123456 I can agree with this one too. He has not once but twice, no it was three times and he will tell us himself...😷 I'm keeping my trap shut lol....💤


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    Please stop with personal digs and use respect.


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    Stop the migration and rollout of Universal Credit and replace it with a fairer system
    _____________________________
    We must act NOW before it's to late and many more will suffer
    Universal Credit is harsher on people both in and out of work, and some families could end up £200 a month worse off.
    The Mirror are demanding a halt to the expansion of UC and for a review to take place. We say there are three options:
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    Sign our petition to stop the rollout of Universal Credit across Britain and to replace it with a fairer system.
    Please Sign the Mirror's petition in the link below
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    👍🏻


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  • YadnadYadnad Posts: 2,286Member Brian Blessed
    edited October 9
    Yadnad's valuable advice... not being nasty here but this persons PIP claim was refused and the information he gave you was just stats from the internet...
    @poppy123456 I can agree with this one too. He has not once but twice, no it was three times and he will tell us himself...😷 I'm keeping my trap shut lol....💤
    Absolutely and why? Because I received no advice or help from anybody in completing the claim forms or attending the face to face assessment because there were no agencies locally to give that help unlike yourself that had the availability of multiple agencies  where you shopped around looking for the best advice source.

    The way I had to work the claims was by trial and error.

    The first two failures were changed at MR stage from 0 points to enhanced care & mobility!
  • tru88letru88le Posts: 27Member Whisperer
    I don't think your illness itself or your symptoms matter much it seems to be about how or if you can manage or need help.
    That's why people with one leg or no legs sometimes get declned, it's because despite everything they say they can manage just about and that will scupper the claim.
    If you can manage that's that.
    If you  need help to manage that will help your claim.
    They don't care if you barely scrape through alone.
    It's what help you need.
    Don't know how this became a row.
    In my experience claims fail because they don't get enough proof with the application, the more the better, if people put as much effort into the beginning as the appeals they would fare better.
    I was guilty of this too, just gave names of docs etc, didn't give health visits and appointments receipts for proof of travel etc costs, nurse appointments, incidents and problems you had and when and where.  there's so much more you can send them at the start  and then they rely less on the damn f2f who just lie, I don't know why but they do.


  • susankaysusankay Posts: 19Member Whisperer
    Well it will be ten weeks tomorrow since DWP received my AR1 form. I thought this was to make the review process quicker. I will up date you all when i finally hear something from them. Best of luck to you all with your claims.
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    There's still backlogs and that adds to the time.
  • sarah50sarah50 Posts: 118Member Chatterbox
    @tru88le you are probably right but I knew nothing of the PiP system before I was Obliged to rely on it. Nobody from the DWP lets you know what to do, it's here's the form get it back to us by..... My original claim went through fairly smoothly. I had no idea my reassessment was going to be this hard, I mistakenly believed that because my condition hasn't changed I would be treated in the same way as I was before. After reading some of the experiences on here I should not have been so naïve. But the process is hard enough now my health is declining I have to do all the phoning and running round gathering stuff to prove I'm not a liar. It even said in the report that they had six pieces of evidence but only considered four so even if you supply the evidence they ignore the bits they don't want to look at.
  • tru88letru88le Posts: 27Member Whisperer
    One thing that messed us up was this: we let them turn 'can't do it' into 'can do it with prompting'.
    That fact alone caused us two and a half years of hell for one poinr.
    If yr unsure they understood ask to see what they wrote.



  • sarah50sarah50 Posts: 118Member Chatterbox
    @tru88le I totally agree I was struggling at f2f and now months on reading the report HCP wrote she has done exactly that, I remember her repeatedly asking certain questions in different ways to try to get at a particular answer, in most of the descriptors she has written that I reported no particular problems doing this activity. . . . Well I did or I wouldn't have been there renewing my pip, I would have said when I got the form that things were better. Everything I said has been twisted. Now I feel I need to be a benefits expert and a legal expert and find a load of strength that I just don't have. Never been very forceful at getting my needs across, I feel people either try to understand or they don't and I just don't push things. You almost have to aggressively persue your claim with a tenacity I'm just not used to. X
  • YadnadYadnad Posts: 2,286Member Brian Blessed
    sarah50 said:
    . Now I feel I need to be a benefits expert and a legal expert and find a load of strength that I just don't have. Never been very forceful at getting my needs across, I feel people either try to understand or they don't and I just don't push things. You almost have to aggressively persue your claim with a tenacity I'm just not used to. X
    More and more people are just giving up with the whole thing. If it was just an assessment and then a Tribunal to get to the right answer, but the process is never ending. You probably have less than 2 years in between these assessments etc. The sheer scale of what is expected of the individual is beyond a joke. Who really should be expected to prove and re-prove their entitlement every couple of years?
  • tru88letru88le Posts: 27Member Whisperer
    sarah50 said:
    @tru88le I totally agree I was struggling at f2f and now months on reading the report HCP wrote she has done exactly that, I remember her repeatedly asking certain questions in different ways to try to get at a particular answer, in most of the descriptors she has written that I reported no particular problems doing this activity. . . . Well I did or I wouldn't have been there renewing my pip, I would have said when I got the form that things were better. Everything I said has been twisted. Now I feel I need to be a benefits expert and a legal expert and find a load of strength that I just don't have. Never been very forceful at getting my needs across, I feel people either try to understand or they don't and I just don't push things. You almost have to aggressively persue your claim with a tenacity I'm just not used to. X
    At least you know your enemy now.
    I think it's part of the process now tbh, you have to navigate the manipulation and untruths of the assessors to reach the tribunal where you will finally be heard by humans with no vested interest beyond being fair.
    Use the time to fine tune your reasons and resist the urge to waste time on the unfairness of the early process. :-)


  • sarah50sarah50 Posts: 118Member Chatterbox
    Thankyou @Yanad Thankyou @tru88le head going into tailspin, I need to forget about it for a bit and just wait for MR decision, regain some strength and plan the next battle 😵
  • susankaysusankay Posts: 19Member Whisperer
    Text message today saying they had received my review form. 10 weeks after getting it!!! My oh my. Waiting now for f2f appointment. They surely make us work for this small but essential benefit. 
  • susankaysusankay Posts: 19Member Whisperer
    Text message today saying they had received my review form. 10 weeks after getting it!!! My oh my. Waiting now for f2f appointment. They surely make us work for this small but essential benefit. 
  • Heidi415Heidi415 Posts: 22Member Whisperer
    Hi everyone. @susankay my PIP review was done at a similar time to yours. DWP recieved my AR1 form on the 7th August and yesterday I recieved my award without a face to face assessment. I hope you receive yours soon if you haven't already. I am in the Midlands
  • sarah50sarah50 Posts: 118Member Chatterbox
    @Heidi415 oh well done I bet you are very relieved. My MR decision arrived on Saturday and they have turned me down again, but have used even less of the evidence in the reconsideration. Completely cherry picked from an already inaccurate and heavily biased report, they have completely ignored evidence supplied by my GP. Which I have had to get from my GP because despite asking DWP to send me all the evidence they used to make the decision they still haven't. GRRR!
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    It's rare for the decision to change at MR stage as only 17% of them do. Most have to take it to Tribunal. Very often it's just copy and paste from the original decision.

    Evidence from a GP isn't the greatest evidence unless it's specifically states exactly how your conditions affect you and most GPs won't know this, unless you tell them how you're affected.

    Once the Tribunal accept your appeal you'll receive the bundle, inside this there will be everything that you sent DWP.
  • sarah50sarah50 Posts: 118Member Chatterbox
    The form was sent to the GP by Atos and he clearly states I have difficulty with most daily tasks but if GP evidence isn't good evidence and I'm not on meds and I don't have a specialist and I've told them everything I can about how my condition affects me and so has my husband who cares for me. I don't know what other evidence there is. I rarely go out, I don't have an employer. I have a couple of close friends but nobody apart from my husband see's me unless I'm feeling up to going out. Whether anyone believes this or not the decision is based purely on a report which contains complete lies. The exact opposite of the answers I gave, my husband was there witness to it.
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    Did it state what difficulties you have and why? Just stating you have difficulties with most daily tasks isn't specific enough for evidence. As you're now at Tribunal stage a detailed letter from your husband stating exactly how your conditions affect you against those descriptors will carry more weight than a letter as vague as that from a GP. Good luck.
  • sarah50sarah50 Posts: 118Member Chatterbox
  • YadnadYadnad Posts: 2,286Member Brian Blessed
    a detailed letter from your husband stating exactly how your conditions affect you against those descriptors will carry more weight than a letter as vague as that from a GP.
    As you know I am on a shed load of medication and lodged my GP's evidence (summarizing the reports he holds from tests carried out to a full Social Services OT assessment) which clearly indicates the descriptors I meet. Unfortunately the DWP gave little or no weight to it as it was between 5 & 6 years old.

    With you saying the above to Sarah, maybe I missed out on the crux of the matter - have my wife write a comprehensive statement (well she would sign it) on how my life is and the impact it has both on me and her?
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    @Yadnad you know it would have carried more weight as a certain person with a lot of knowledge on these forums keeps pointing it out.
  • Heidi415Heidi415 Posts: 22Member Whisperer
    @sarah50 Thank you. Yes it is such a relief and I was actually surprised by the outcome. I have had experience with an assessor who lied and completely ignored what was said so you have my sympathy. I have been to a tribunal before and I found it less intimidating than the assessment. I suppose because there are three people judging it, it felt fairer and also I had a better opportunity to say what I disagreed with. Good luck 
  • YadnadYadnad Posts: 2,286Member Brian Blessed
    @Yadnad you know it would have carried more weight as a certain person with a lot of knowledge on these forums keeps pointing it out. 

    No matter what anybody says, the evidence that I sent in would/should have out weighed any letter drafted by me and signed by my wife.

    To even think that it would is like suggesting that the claimant is better off getting a letter of that nature (whether it is true or not). It's an open invitation to fraud.
  • debbiedo49debbiedo49 Posts: 2,328Member Brian Blessed
    sarah50 said:
    @JO2097 Fibromyalgia is classed as a chronic pain condition for pip,
    PIP isn't awarded based on a diagnosis, it totally depends how those conditions affect you daily. Everyone is different and you can't compare 2 people.
    I think what they mean is fibromyalgia comes under the umbrella of chronic pain for th purposes of pip. Some health professionals say chronic pain rather than fibromyalgia as there is lack of knowledge for fibromyalgia or they see it as a symptom not a condition. It's six of one and half a dozen of the other. There are specific symptoms of fibromyalgia that can be common in some sufferers, that's why it's called fibromyalgia and I think that's where you can compare two people. Where it may be different is how it affects one person to another most of the time. 


    I am a fibrowarrior!
  • debbiedo49debbiedo49 Posts: 2,328Member Brian Blessed
    Yadnad said:
    @Yadnad you know it would have carried more weight as a certain person with a lot of knowledge on these forums keeps pointing it out. 

    No matter what anybody says, the evidence that I sent in would/should have out weighed any letter drafted by me and signed by my wife.

    To even think that it would is like suggesting that the claimant is better off getting a letter of that nature (whether it is true or not). It's an open invitation to fraud.
    @Yadnad I hope you know it's unhelpful of you to suggest you or anyone else should be or is committing fraud and I think you are being extremely unhelpful on a forum that's trying to help people. What help do you require? 


    I am a fibrowarrior!
  • YadnadYadnad Posts: 2,286Member Brian Blessed
    edited October 28
    Absolutely Poppy. Some of my medical issues would probably see the majority of other sufferers climbing the wall with pain and getting deeply depressed with it. In fact those are the two most common symptoms. For me, I work through it and take plenty of pain relief. 
    We have the same disease yet it depends on the individual how they deal with it. Nothing in my mind compares with the pain and shock of getting two 9mm bullets in my body - now that is bloody painful!
  • sarah50sarah50 Posts: 118Member Chatterbox
    @Yanad I tend to agree with you, the idea that a letter from my husband should carry more weight than an unbiased professional is astounding even though he does know more about my daily circumstances. Mind you the assessment done by a nurse with no experience of my condition has also carried more weight than anything my doctor said, I agree that the doctor wasn't very specific with the answers on the form but why did they pay £40.20p for it if the decision maker wasn't going to use it as evidence in the decision.
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    sarah50 said:
    @JO2097 Fibromyalgia is classed as a chronic pain condition for pip,
    PIP isn't awarded based on a diagnosis, it totally depends how those conditions affect you daily. Everyone is different and you can't compare 2 people.
    I think what they mean is fibromyalgia comes under the umbrella of chronic pain for th purposes of pip. Some health professionals say chronic pain rather than fibromyalgia as there is lack of knowledge for fibromyalgia or they see it as a symptom not a condition. It's six of one and half a dozen of the other. There are specific symptoms of fibromyalgia that can be common in some sufferers, that's why it's called fibromyalgia and I think that's where you can compare two people. Where it may be different is how it affects one person to another most of the time. 
    Having suffered with fibromyalgia myself for over 7 years i know exactly what it is. I also know enough to state that even with fibro. you'll never get 2 people the same.
  • susankaysusankay Posts: 19Member Whisperer
    12 weeks since DWP received my Ar1 still no f2f apointment. I know I’m still getting my pip award but the wait is terrible just want assessment out of the way
  • topshoestopshoes Posts: 437Member Chatterbox
    edited October 28
    Hi @susankay yes it is not nice waiting for things like this to be done and over with  , try not to worry 
  • TardisTardis Posts: 148Member Chatterbox
    Have you tried phoning the assessment company for your area (Capita or IAS)?  They might be able to tell you why it is taking so long for them to do an assessment.
  • sarah50sarah50 Posts: 118Member Chatterbox
    @susankay I agree the wait is horrible, like waiting for the axe to fall, however if you are still receiving your pip at the moment don't worry about how long it's taking. From my experience if the decision is wrong you will be looking at a very long fight with no money. If you are able try to put some aside between now and the eventual decision just in case.
  • TardisTardis Posts: 148Member Chatterbox
    I realise I didn't read your OP correctly.  The DWP said the form was with the decision maker several weeks ago, and you haven't had a face to face assessment.  So it looks like they might have done a paper based assessment and you are caught up in the general backlog with decision making.  You could try calling the DWP again to see whether anything has changed.  If they have done a paper based assessment there should be a report from that and you can ask for a copy.
  • Heidi415Heidi415 Posts: 22Member Whisperer
    Hi @susankay It was you I was hoping to contact. There was a difference of only 5 days between the DWP receiving our AR1 forms so I have been following this thread waiting for an update from you to give me a rough idea of the timescales. I am unsure of your location but I am in the Midlands and it is Capita doing the assessments.

     I hope you receive an award or an assessment date very soon. The not knowing what is happening with your claim is agonising. You feel like life is on hold and you cannot plan for the future. I completely understand your distress at not receiving any update. If I can help in anyway, please let me know, and please keep me updated via this post. I think it will genuinely help people searching for help with their renewal. Good luck
  • Heidi415Heidi415 Posts: 22Member Whisperer
    Sorry I forgot to mention @sarah50's idea is excellent if you are able to. I was unable to save anything but I did cut back on everything and paid off as much of my debts as I could.
  • debbiedo49debbiedo49 Posts: 2,328Member Brian Blessed
    sarah50 said:
    @JO2097 Fibromyalgia is classed as a chronic pain condition for pip,
    PIP isn't awarded based on a diagnosis, it totally depends how those conditions affect you daily. Everyone is different and you can't compare 2 people.
    I think what they mean is fibromyalgia comes under the umbrella of chronic pain for th purposes of pip. Some health professionals say chronic pain rather than fibromyalgia as there is lack of knowledge for fibromyalgia or they see it as a symptom not a condition. It's six of one and half a dozen of the other. There are specific symptoms of fibromyalgia that can be common in some sufferers, that's why it's called fibromyalgia and I think that's where you can compare two people. Where it may be different is how it affects one person to another most of the time. 
    Having suffered with fibromyalgia myself for over 7 years i know exactly what it is. I also know enough to state that even with fibro. you'll never get 2 people the same.
    You must be right then


    I am a fibrowarrior!
  • susankaysusankay Posts: 19Member Whisperer
    Hi @Heidi415 I am in Essex which is Atos area. I was told the last time I rang DWP that I could wait up to 18 weeks to hear anything. My claim is a simple one I only get the mobility aspect of pip. 
  • YadnadYadnad Posts: 2,286Member Brian Blessed
    edited October 29




     :


    @Yadnad I hope you know it's unhelpful of you to suggest you or anyone else should be or is committing fraud and I think you are being extremely unhelpful on a forum that's trying to help people. What help do you require? 

    I have never suggested to anyone that they should carry out benefit fraud.
     If you re-read my post a little more carefully you will see that I was identifying an area that could be used fraudulently. Much better to point this out than to ignore it. In fact I hope that someone tells the DWP of this possibility.

    To suggest that a 'letter' written by the claimant but purporting to come from someone else (husband/wife etc) would be treated with more weight than a report from a GP/OT etc. is plainly wrong.
     
    Help for me? Well as I have said before if someone wants to take on my PIP claim and deal with the appeal then they have my blessing, or maybe fill out a claim form for Attendance Allowance which seems a doubtful exercise and deal with submission of it.

  • TardisTardis Posts: 148Member Chatterbox
    I thought you had already tried to claim AA and been turned down?  And surely you are out of time with your PIP appeal?  I expect the DWP are well aware of how fraudulent evidence could be manufactured.  And if you go down that route, I hope they throw the book at you.
  • debbiedo49debbiedo49 Posts: 2,328Member Brian Blessed
    Yadnad said:




     :


    @Yadnad I hope you know it's unhelpful of you to suggest you or anyone else should be or is committing fraud and I think you are being extremely unhelpful on a forum that's trying to help people. What help do you require? 

    I have never suggested to anyone that they should carry out benefit fraud.
     If you re-read my post a little more carefully you will see that I was identifying an area that could be used fraudulently. Much better to point this out than to ignore it. In fact I hope that someone tells the DWP of this possibility.

    To suggest that a 'letter' written by the claimant but purporting to come from someone else (husband/wife etc) would be treated with more weight than a report from a GP/OT etc. is plainly wrong.
     
    Help for me? Well as I have said before if someone wants to take on my PIP claim and deal with the appeal then they have my blessing, or maybe fill out a claim form for Attendance Allowance which seems a doubtful exercise and deal with submission of it.

    Sounds like a plan



    I am a fibrowarrior!
  • poppy123456poppy123456 Posts: 4,880Member, Community champion Brian Blessed
    Yadnad said:




     :





    To suggest that a 'letter' written by the claimant but purporting to come from someone else (husband/wife etc) would be treated with more weight than a report from a GP/OT etc. is plainly wrong.
     
    Who suggested that? What i said was that a letter from a partner stating how your conditions affect you against the PIP descriptors will carry more weight than a letter from a GP that knows absolutely nothing about how your conditions affect you.

    In fact a letter from your GP is one of the things on the list that they don't want to see. Including future appointment letters and information from the internet that explains a condition.
  • YadnadYadnad Posts: 2,286Member Brian Blessed
    Tardis said:
    I thought you had already tried to claim AA and been turned down?  And surely you are out of time with your PIP appeal?  I expect the DWP are well aware of how fraudulent evidence could be manufactured.  And if you go down that route, I hope they throw the book at you.
    No, I have never claimed AA simply because based on the criteria I will not fit it.
    Yes I am still in time - it's less than 13 months since the date of the MR decision.
    No, I would never suggest or carry out any fraudulent act to gain a benefit payment. In fact I am the other way inclined that if I don't think I am entitled I won't make a claim unlike some that put in claims even without assessing their own entitlement first - claim they say, they can only say no.
  • TardisTardis Posts: 148Member Chatterbox
    Well, how about appealing that PIP claim?  There is a CAB in Canterbury, have you spoken to them?
  • YadnadYadnad Posts: 2,286Member Brian Blessed
    Yadnad said:




     :




    Who suggested that? What i said was that a letter from a partner stating how your conditions affect you against the PIP descriptors will carry more weight than a letter from a GP that knows absolutely nothing about how your conditions affect you.

    In fact a letter from your GP is one of the things on the list that they don't want to see. Including future appointment letters and information from the internet that explains a condition.
    Exactly and you seem to be missing the point. You are assuming that every claimant is as honest as you and I are.

    For a start a partner is/could be biased and if there is an inkling that if he/she wrote a letter that would carry more weight than a medical report then the chances are that they will do so. The problem that the case manager must have is to judge how much truth is there in that impact statement?
    Is it possible that it is a fabrication? possibly. Are there elements of exaggeration involved? Maybe.
    Should the case manager just accept it at face value? I would hope not, I certainly wouldn't.
    There are some that will do what they have to do to gain any advantage.

    To openly suggest that such a letter is to be treated as good evidence is open to those that would want to use that system for other means.
  • TardisTardis Posts: 148Member Chatterbox
    @yadnad; Surely the point (which you seem to be missing) is that this is a support forum.  It doesn't come across as remotely supportive when you keep implying that all successful claimants are fraudulent.
  • YadnadYadnad Posts: 2,286Member Brian Blessed
    edited October 30
    Tardis said:
    @yadnad; Surely the point (which you seem to be missing) is that this is a support forum.  It doesn't come across as remotely supportive when you keep implying that all successful claimants are fraudulent.
    I'm not suggesting that they are ALL fraudulent. I have not said so.
    But given what has been said about the value placed on a letter from a partner surely there is scope for it to be abused by some?
    If I was so inclined and knew the value of a letter such as that, would I consider asking my wife to draft such a letter in such a way that it described the impact and addressed the correct descriptors in the hope that I might get a good PIP award even thought that half the contents were a complete exaggeration?

    Surely and getting away from this 'dubious' evidence should more not be made of evidence from say an OT or physiotherapist? At least it will be independent and unlikely to be biased.

    In fact the Department of Transport banned the use of GP letters of support to be used as prime evidence in applications for a Blue Badge for the same reason as they were deemed likely to be biased in favour of the applicant.
    Much more effort has now been placed on independent reports assessing the impact directly. Should not the DWP be following that same route in asking the claimant to supply this type of evidence?
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