If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Fibromyalgia could it be something else

Hey all,
Ive got Fibromyalgia, Depression, Social Anxiety, JHS and three herniated discs.
Now the Fibromyalgia is getting worse. The pain, my mobility and the numbness.
Im back and forth with my GP. Who are usually helpful.
My spinal consultant is also helpful, but Im starting to wonder a few things about my treatments.
If you have Fibro take all the meds and do pain management stuff (pacing and mindfulness etc) should it really be getting worse?
I have a flare up of symptoms and with each flare up I dont fully recover. So Im wondering how do I talk to my GP about it? My consultant just gave me more pregablin. Im really questioning the Fibromyalgia diagnosis TBH.
Also has anyone been diagnosed with Fibromyalgia and its turned out to be something else?
I appericate any feedback and any thoughts around this. Thank you x
Ive got Fibromyalgia, Depression, Social Anxiety, JHS and three herniated discs.
Now the Fibromyalgia is getting worse. The pain, my mobility and the numbness.
Im back and forth with my GP. Who are usually helpful.
My spinal consultant is also helpful, but Im starting to wonder a few things about my treatments.
If you have Fibro take all the meds and do pain management stuff (pacing and mindfulness etc) should it really be getting worse?
I have a flare up of symptoms and with each flare up I dont fully recover. So Im wondering how do I talk to my GP about it? My consultant just gave me more pregablin. Im really questioning the Fibromyalgia diagnosis TBH.
Also has anyone been diagnosed with Fibromyalgia and its turned out to be something else?
I appericate any feedback and any thoughts around this. Thank you x
" If in doubt, Freak em out" - Sharon Needles
Replies
When you get a diagnosis it usually means the GP has exhausted all other medical conditions with the same symptoms so if he has concluded that you have Fibromyalgia i doubt it is something else
Im sorry to hear that you are struggling with fibromyalgia, there is lots of self help information on the NHS website about living with fibro:
Your GP, or another healthcare professional treating you, can offer advice and support about making these changes part of your everyday life.
There are organisations to support people with fibromyalgia that may also be able to offer advice. Visit UK Fibromyalgia's support group section for a list of support groups across the country. You may also find it helpful to talk to other people with fibromyalgia on this online community.
Below are some tips that may help relieve symptoms of fibromyalgia.
Exercise
As fatigue (extreme tiredness) and pain are two of the main symptoms of fibromyalgia, you may find that you're not able to exercise as much as you'd like. However, an exercise programme specially suited to your condition can help you manage your symptoms and improve your overall health.
Your GP or physiotherapist (healthcare professional trained in using physical techniques to promote healing) can design you a personal exercise programme, which is likely to involve a mixture of aerobic and strengthening exercises.
Relaxation
If you have fibromyalgia, it's important to regularly take time to relax or practice relaxation techniques. Stress can make your symptoms worse or cause them to flare up more often. It could also increase your chances of developing depression.
Better sleeping habits
Fibromyalgia can make it difficult to fall asleep or stay asleep (known as insomnia). If you have problems sleeping, it may help to:
Senior online community officer
That said, if you genuinely feel there might be something else then it is your right to ask for a rereferral back to the rheumatologist to have things reviewed. Dont suffer in silence. Good luck