Care for my daughter to live independently

ha5el47

Hi Everyone,I have brought up my daughter who has learning disabilities and serious anxiety problems for many years now.I have found that there is no where near enough help,there is help but it's very minimal.Although she has matured physically as someone without disability, emotionally and psychologically she has not matured to functioning fully as an adult.For the last 12years she has lived in her own flat but still needs a lot of support.She has carers coming in to help and she is perpetually on the phone to me.She could do with more input from carers but is afforded only a limited time,9hrs a week.I realise that others are experiencing pretty much the same even for those even worse placed than my daughter, with physical and/or learning disabilities.My daughter is now in her mid-forties.

steve51

Hi @ha5el47

Good Evening it’s great to meet you today.

I am one of the “Community Champions” here on our site.

Here’s some info for you below.

https://www.scope.org.uk/support/disabled-adults

https://www.scope.org.uk/support/disabled-people/ageing

https://www.scope.org.uk/Support/Disabled-people/local-advice

Please please let me know if you require any further help/support????

Pippa_Alumni

Hi @ha5el47, and a warm welcome to the community!

Thanks for sharing this with us, it must be a tough situation on you all and it certainly sounds as though you'd benefit from some extra assistance. This isn't my area of expertise, but I wonder if @Zoe_Scope can offer any guidance? 

[Deleted User]

Hi @ha5el47, 

You could contact the adult social care team and ask for a review of your daughters care package explaining that the support she is getting does not meet her needs and that without additional support there is a significant risk to her emotional, psychological and physical well being . See our guide to getting the best out of your assessment https://www.scope.org.uk/support/disabled-people/social-care/assessments . 

Maintaining relationships, participation in recreation, meaningful activity and accessing the community are all identified as an important elements of wellbeing both within the care act and statutory guidance, although many people I speak to tell me that they are having difficulties obtaining adequate support in these areas.

I would be happy to have a chat with you to find out a bit more about your daughters situation and to give further advice about how to challenge the current budget she has been allocated and other sources of support. Email helpline@scope.org.uk with your phone number and I can call you when the helpline reopens on Monday.

Best Wishes,

Zoe

Scope helpline