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Ehlers Danlos and "witch fingers"

siobhan1siobhan1 Posts: 53Member Talkative
Hi everyone

Just after some advice as I can't find much online except for "ulnar radiation" which is fingers starting to bend outwards. I have what I believe is a "radial deviation". This is a ohoto of when I hold my hands in the same position and try to push the fingers together...My middle finger on my right hand is now bent towards my thumb so much that it's painful to move it back to its normal place with my other hand and I can't move it on it's own freely... it's trying to push the index finger inwards as well and constantly pushing against it hurts... My little finger in on the same hand is pushing outwards due to the swelling at the joints.

It's happened gradually and my doctor said it's arthritis from the joint hypermobility and to stop using a computer mouse etc. Just wondering if ring splints would help with this? I'm looking for some nice looking ones... all the ones I can find are cheap nickel ones that look like they would rub on my hands... does anyone have any recommendations for brands that are either silicone or plastic in non garish colours?

I've been tested for rheumatoid (negative) but xrays and blood tests show fluid and inflammation on the joints which is assumed from hyperextension. I wear wrist splints already to partial benefit. Does anyone think this is normal? The pain is bothering me and if it gets worse obviously how it looks isn't too nice. Please don't delete my photo... I have sought medical advice and I'm not after a diagnosis :)

Thanks 

Replies

  • Jean_ScopeJean_Scope Posts: 526Member, Helpline, Community advisor Chatterbox
    Hi @siobhan1

    I'm wondering if @JBOccyTherapy has anything she can add I believe she has expertise in these matters.

    Best Wishes
    Jean

    Jean Merrilees BSc MRCOT

    Information Specialist - Enabling Environments

    Scope

    You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist

  • topshoestopshoes Posts: 443Member Chatterbox
    Hi @siobhan1 ; yes mine are like that to, mine are going towards my little fingers , thought it was arthritis all this time .  
  • Pippa_ScopePippa_Scope Posts: 5,239Administrator Scope community team
    Thanks for sharing this with us @siobhan1, hopefully @JBOccyTherapy and our other members will be able to share their experiences!
  • JBOccyTherapyJBOccyTherapy Posts: 7Member Whisperer
    Aloha, thanks for the tag @Jean_Scope . I'm an Occupational Therapist with hEDS. Have you seen a hand therapist? I think its worth asking for a referral. If you're starting to get deviation off then exercises to strengthen the weak areas could help. They would also be able to measure you for splints. Splinting may or may not be of any use, most splints on the market focus on the joints of your fingers, thumb or wrist. There isn't much out there that splints the knuckle joint where your fingers join your hand. You may find a buddy splint useful to keep your wandering little finger tethered to the adjacent ring finger though. Splinting alone isn't going to 100% solve your problem. With your combination of conditions joint protection is really important. Avoid any position that warps your hands, try to find alternative ways to open bottles, turn taps and pull on shoes. It's really important to pay attention to how you're using your hands. 

    Splinting wise, Oval8 is the most common brand, I have silver versions of those from Ring Splints by Zomile. There are also a load of splint-preneurs turning up on etsy! 

    If it helps ease your mind a little, I would honestly say your hands aren't that wonky. The vast majority of adults will have some degree of wonky from old injuries, habits, how they hold pens or age related damage. The more important factor is how it's effecting you. GP should be able to sort a hand therapy referral :) 

    Jo Southall
    Independent Occupational Therapist | Public Speaker | Accessible Adventurer
  • siobhan1siobhan1 Posts: 53Member Talkative
    Aloha, thanks for the tag @Jean_Scope . I'm an Occupational Therapist with hEDS. Have you seen a hand therapist? I think its worth asking for a referral. If you're starting to get deviation off then exercises to strengthen the weak areas could help. They would also be able to measure you for splints. Splinting may or may not be of any use, most splints on the market focus on the joints of your fingers, thumb or wrist. There isn't much out there that splints the knuckle joint where your fingers join your hand. You may find a buddy splint useful to keep your wandering little finger tethered to the adjacent ring finger though. Splinting alone isn't going to 100% solve your problem. With your combination of conditions joint protection is really important. Avoid any position that warps your hands, try to find alternative ways to open bottles, turn taps and pull on shoes. It's really important to pay attention to how you're using your hands. 

    Splinting wise, Oval8 is the most common brand, I have silver versions of those from Ring Splints by Zomile. There are also a load of splint-preneurs turning up on etsy! 

    If it helps ease your mind a little, I would honestly say your hands aren't that wonky. The vast majority of adults will have some degree of wonky from old injuries, habits, how they hold pens or age related damage. The more important factor is how it's effecting you. GP should be able to sort a hand therapy referral :) 

    :smile: thank you so much for your advice. Next time I see my GP I'll ask about a referral :) I of a not too bad at the moment but it's painful and I don't want it to get worse 
  • JBOccyTherapyJBOccyTherapy Posts: 7Member Whisperer
    Happy to help @siobhan1 good luck and please do let me know how you get on :) in the short term (especially during the cold-hands season) some compression gloves might help too. Imak do some lovely soft grey ones! 
    Jo Southall
    Independent Occupational Therapist | Public Speaker | Accessible Adventurer
  • Jean_ScopeJean_Scope Posts: 526Member, Helpline, Community advisor Chatterbox
    Hi Jo @JBOccyTherapy

    Many thanks for responding to me tagging you into this conversation, once again you have provided valuable advice.

    Best Wishes
    Jean

    Jean Merrilees BSc MRCOT

    Information Specialist - Enabling Environments

    Scope

    You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist

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