If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Appealing my DLA to PIP decision
Options
nikknack
Community member Posts: 3 Listener
Hi, I'm new to this forum. Like a lot of the users I have been invited to apply for Pip after 11 years on DLA where I had highest rates for care and mobility for life.
My F2F was a joke. The nurse who did my assessment wrote so many untruths I could have used it for a novel.
I have degenerative disc disease, widespread arthritis, scoliosis, kyphosis, peripheral sensory neuropathy caused by chemotherapy and antiphospholipid syndrome. I constantly stumble,trip and have a significant fall on average every 10 days. I am in constant severe pain which limits my life drastically. Like everyone else here I would give up my allowances in a heartbeat if it meant I could live an independent, pain free life Disability is not a choice but this system makes it feel like it!
I have been awarded standard rate for daily living and nothing for mobility.
I have put in for my mandatory reconsideration but do not hold out any hope, but will appeal as i am now effectively housebound.
In the report it said I walked 12 meters and sat with great difficulty. Managed most of the physical stuff but not without pain or difficulty. She said I had good grip because I could write my name- I dropped the pen and had to readjust my grip as well.. Also said because I can use crutches means I have good grip. Said I used my crutches lightly, I almost fell on entering the centre because there was a ramp which I did not see, it was not highlighted, without my crutches I would have fallen and cost the NHS another load of money.
The ironic thing is i used to be a nurse and I keep getting job offers to be a PIP assessor, £41,000 basic, free healthcare plus other incentives but if you are sick or disabled this government tries to remove as many as possible from receiving help.
I am sorry for the long post but just thought it might help others to see that there is nothing that we do that is wrong, it's the system that is not fit for purpose. I used to fill in these forms for people and had people turned down who were quadriplegic with severe learning disabilities. It sucks but keep going, 70% are winning their appeals.
My F2F was a joke. The nurse who did my assessment wrote so many untruths I could have used it for a novel.
I have degenerative disc disease, widespread arthritis, scoliosis, kyphosis, peripheral sensory neuropathy caused by chemotherapy and antiphospholipid syndrome. I constantly stumble,trip and have a significant fall on average every 10 days. I am in constant severe pain which limits my life drastically. Like everyone else here I would give up my allowances in a heartbeat if it meant I could live an independent, pain free life Disability is not a choice but this system makes it feel like it!
I have been awarded standard rate for daily living and nothing for mobility.
I have put in for my mandatory reconsideration but do not hold out any hope, but will appeal as i am now effectively housebound.
In the report it said I walked 12 meters and sat with great difficulty. Managed most of the physical stuff but not without pain or difficulty. She said I had good grip because I could write my name- I dropped the pen and had to readjust my grip as well.. Also said because I can use crutches means I have good grip. Said I used my crutches lightly, I almost fell on entering the centre because there was a ramp which I did not see, it was not highlighted, without my crutches I would have fallen and cost the NHS another load of money.
The ironic thing is i used to be a nurse and I keep getting job offers to be a PIP assessor, £41,000 basic, free healthcare plus other incentives but if you are sick or disabled this government tries to remove as many as possible from receiving help.
I am sorry for the long post but just thought it might help others to see that there is nothing that we do that is wrong, it's the system that is not fit for purpose. I used to fill in these forms for people and had people turned down who were quadriplegic with severe learning disabilities. It sucks but keep going, 70% are winning their appeals.
Comments
-
Hi @nikknack
Welcome it’s great to meet you today!!!!
Don’t worry about your post you like many members have “long & growling” experience’s with there “pip’s”
We have got “info & advice” here on our site if you are interested???? -
Hi @nikknackThanks for sharing your experience, I am sorry to hear it wasnt a good one. Good luck on appealing the decision, let us know if you need any support or information and do let us know how you get on.
Scope
Senior online community officer
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 777 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 738 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 825 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.