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My son has Spina Bifida
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darren89
Community member Posts: 1 Listener
Hi I’ve just found out my son as sb my missis is 5 month pregnant and it is a servey case I would like to get sum info and hear from ppl who has or dealing with this plz cos I just dnt want the doctors to influence me thanks
Comments
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Hello, I don’t have sb but I have fnd which has a lot of similar symptoms.. what is your son struggling with in particular, I’d like to reassure you if I can. Sounds like life’s very complicated for you at the moment but please be assured that we, as human beings, can get through way more than we realise.
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Hi @darren89Welcome to our community and good to meet you. Am I correct in thinking your son lives with Spina Bifida? We have lots of members of the community who will be keen to help. Also here is the link to the Spina Bifida charity. I hope that helps?
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Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Hi @darren89, and welcome!
It's great that you're searching for information and making sure you're as well prepared as possible. Do check out the Spinal Bifida charity linked above by Richard, and if we can be of any further assistance, do let us know. -
Welcome to the community!!
My son has Spina Bifida as well. His particular type was spotted during a routine scan. This group can answer questions and give good advice as well- https://community.babycenter.com/groups/a3825/spina_bifida_kids
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