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Finding it difficult to do a full time job

AHugganAHuggan Posts: 2Member Listener
edited December 2018 in Employment
Hello, I have Parkinson's disease. I was diagnosed 5 years ago and with the help of medication have been able to continue work but I am know finding it more difficult to do a full time job which is also stressful and mentally challenging. It would be good to hear from anyone that is in a similar situation.   

Replies

  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @AHuggan

    Welcome it’s great to meet you today!!!!!!!!

    Yes I have been through the same situation as you.

    I will be very very happy 😃 in golng through things with you if that would be helpful???
  • Richard_ScopeRichard_Scope Posts: 1,717Administrator Scope community team
    Welcome to Scope's community! It's great to have you here.  Just to get you started we have a How To Guide here, you can see all the latest posts here, jump in and get involved and don't worry we are a friendly bunch!  
    If you need anything, just let us know.


    Scope
    Specialist Information Officer - Cerebral Palsy
  • Pippa_ScopePippa_Scope Posts: 5,856Member Disability Gamechanger
    Hi @AHuggan, and a warm welcome to the community!

    Thanks for sharing this with us, and sorry to hear that you're struggling. I wonder if you've considered discussing reasonable adjustments with your employer?
  • helen73helen73 Posts: 8Member Listener
    Hi @AHuggan nice to meet you 😁

    I'm sorry to hear that you're struggling with working. I'm going through similar situation.  I'm currently in my 2nd attempt at working fulltime since Dec last year (started this job in October) and am currently signed off work again! as there's been no adjustments put in place to help me.
    I attempted working without adjustments as they kept saying that I had to as their was no alternative and that "these things take time" but after approximately 6/7 weeks my body went into a flare up and my pain levels went crazy none of my meds are really helping as it's either be a zombie and sleep or be in agony. It's so frustrating when your desperate to work it helps me feel less depressed about everything especially financially as need the money or could end up losing our home and my partners income alone just isn't enough. 
    I've made an application to access to work they've now been and done assessment but I've now missed out on so much training. I totally understand how your feeling have you asked for any help from your employer?  What about reduced hours? Or maybe application to access to work they pay for adjustments to purchased to help you do your job and hopefully be able to stay in work.

    Hope you're doing Ok 


  • jonny1jonny1 Posts: 15Member Listener
    Are you still currently with the same employer, I finished work just recently not that I really wanted to especially at 39 but retired under I’ll health but can still so a bit of work , it was very stressful not nowing if I was able to keep paying the mortgage I have two kids and was the only worker in the house but in the end worked out fine .but there are different avenues you can go down such as reduced hours may be less work but with the same pay ,but you’d be best to get a union involved and really push them to help you also put everything in writing to your employer and keep a copy you’ll never know when you’ll need it again 
  • AHugganAHuggan Posts: 2Member Listener
    Sorry haven't been online for a bit, just been reading through the replies and its good to hear I'm not alone in this situation. I find it very frustrating that even though the law says we should be given help when at all possible, in the end it comes down to the dissension of one or two people. I have managed to get some adjustment (1  day working from home and to get a lift share) but I am made to feel like I am lazy. The daft thing is other people in the company get more flexible working and it seems to be down to their line manager. I did try to change jobs recently, applying for a position that did offer flexible working as part of the standard package but I wouldn't be entitled to it until I had completed my 6 month probation. In the end the hole thing got me so stressed that my Parkinson's  symptoms got worse. I turned the job offer down and now feel trapped which doesn't help.
  • jonny1jonny1 Posts: 15Member Listener
    Have you sat down with your employer and explained what your going through and the problems you have also you would be best to either send them an email or in writing at least you have proof that you have explained to them you adjustments needed once you have written to them the adjustment needed they by law need to act on it I think 6 weeks and if they fail it’s a greievence then still if they don’t its court join a union or ask Acas
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