NICE Published Guidelines for Adults with Cerebral Palsy
Cerebral palsy in adults: the care you should expect
Cerebral palsy is a lifelong condition caused by a problem developing in a baby’s brain around the time of birth. It mainly affects muscles and movement but can also affect how people see, hear, communicate, understand and think. Everyone with cerebral palsy is affected differently – symptoms vary widely and the effects can range from minor problems to severe disability. Most people with cerebral palsy live well into adulthood and many have independent and active lives. Although the brain injury that causes cerebral palsy does not get worse over time, its effects on the body change, so people often need different care and support as they grow older.
We want this guideline to make a difference to adults with cerebral palsy and their families by making sure:
- your care and support always fits your needs and the things you want to achieve
- you’re offered regular check-ups with your care team
- you know how to get more help when you want it, or if your needs change
- a good range of specialist support is available locally to provide your care.
Making decisions together
Decisions about treatment and care are best when they are made together. Your health and care professionals should give you clear information, talk with you about your options and listen carefully to your views and concerns.
To help you make decisions, think about:
- What matters most to you – what do you want to get out of any therapy or treatment?
- What are you most worried about – are there risks or downsides to treatments that worry you more than others?
- What happens if you don’t want to have a particular treatment or therapy?
Specialist Information Officer - Cerebral Palsy