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Does anyone else here suffer and live with this painfull swelling in legs and feet ?


  • Pippa_ScopePippa_Scope Posts: 5,856Member Disability Gamechanger
    Hi @kward4666, I'm sorry you haven't found anybody else with this yet. Would you like to tell us some more about your own experiences?
  • RainbowJoRainbowJo Posts: 77Member Courageous
    @kward4666 i have this. currently its in the top of both my legs the rest went down having my feet up 24/7 while in hospital. but the tops wont go down. 

    i was diagnosed last year and put on a list to seen but the wait is a good year. 

    hope ur legs/feet r not too bad. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~

  • nikkifnikkif Posts: 34Member Courageous
    I suffer with it as well as may Turner syndrome in my left leg. The pain is excruciating some days I can barely walk and my leg swells so much I feel like the skin might burst. Some days it gets so bad I have to drag myself to the toilet using the wall as support. 
  • GarzaGarza Posts: 59Member Courageous
    i am paraplegic so dont get the pain, but i get severe swelling, I have been advised to rest with the legs prone as much as possible and moisturise the  a few times a day, also have things like compression or bandaging been mentioned to assist, not sure if paracetamol or similar would help with the pain at all 

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