Undiagnosed and rare conditions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Community updates

• Read over some of our recent discussions and have your say!

• Upload a new profile picture and give your profile a personal touch.

• Get the latest information on issues relating to coronavirus.


Does anyone else here suffer and live with this painfull swelling in legs and feet ?


  • Pippa_ScopePippa_Scope Member Posts: 5,856 Disability Gamechanger
    Hi @kward4666, I'm sorry you haven't found anybody else with this yet. Would you like to tell us some more about your own experiences?
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @kward4666 i have this. currently its in the top of both my legs the rest went down having my feet up 24/7 while in hospital. but the tops wont go down. 

    i was diagnosed last year and put on a list to seen but the wait is a good year. 

    hope ur legs/feet r not too bad. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~

  • nikkifnikkif Member Posts: 43 Courageous
    I suffer with it as well as may Turner syndrome in my left leg. The pain is excruciating some days I can barely walk and my leg swells so much I feel like the skin might burst. Some days it gets so bad I have to drag myself to the toilet using the wall as support. 
  • GarzaGarza Member Posts: 68 Courageous
    i am paraplegic so dont get the pain, but i get severe swelling, I have been advised to rest with the legs prone as much as possible and moisturise the  a few times a day, also have things like compression or bandaging been mentioned to assist, not sure if paracetamol or similar would help with the pain at all 

Sign in or join us to comment.