If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Having difficulties logging in or resetting your password?


Please email [email protected]

Our Community Guidelines and How To Guide

Adam_ScopeAdam_Scope Posts: 164Member Pioneering
edited February 15 in Welcomes and introductions
If you need to have a look through our How To Guide that talks you through the ins and outs of the Scope online community, or if you want to read the Community Guidelines, you can access them by going to the Community Guidelines Page here. 

Thanks for being part of the community :)

Replies

  • Antonia_ScopeAntonia_Scope Posts: 1,783Member Pioneering
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Adam_Scope

    Many Thanks 🙏🙏
  • AnkyieSponAnkyieSpon Posts: 137Community champion Pioneering
    Thank you 
    Tina 
    (Ankyie Spon)
    I'm a Pain Warrior
  • loulabellloulabell Posts: 4Member Listener
    Hi my name is Louise 
  • ShareenShareen Posts: 5Member Connected
    Hi, my name is Shareen and I am not very clever with computers.
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Shareen

    Good Afternoon!!!!!!

    Please please let me know if there’s anything that I can help you with (pc’s)

    @steve51 
  • SeanchaiSeanchai Posts: 172Member Pioneering
    edited March 6
    What a lovely caring letter you have posted Shareen......maybe you should send a copy to your MP....and other MP,s as well. The only thing I can say is " why did the ruling party get voted into power again when we all know what they are like . It's like turkies voting for Christmas.  I feel exactly as you do Shareen . Thank you for taking the time to write this . I hope everybody remembers what a mess society is in , homeless people , people using food banks,  young people who cannot get work , the stabbings ect.....Thank God I am on my way out of this world and not coming into it . We were told by a certain politician that there is no such thing as as communities.  Its 'man mind thyself 'as far as I can see . That same politician made a split in society by selling off good social housing stock ....divide and conquer was her want .....and it worked . Now the young cannot get social housing and buying privately is way beyond most people.
    Good luck for your future Shareen ....I have quite a few health problems myself and I am also now completely deaf ( apart from tinnitus and menieres ) My tinnitus is a jet engine in my ear 24/7 ...and my Menieres makes me so dizzy It  makes the world spin and in turn causes vomiting ....thankfully I have not been dizzy for over a week now ....May your God go with you .
  • ShareenShareen Posts: 5Member Connected
    Bless you Seanchal. My daughter in London is stuck up flights of stairs in a one bedroomed small flat with a baby, a 6 year old and a partner with COPD. The tiny amount I fought and won for her anxiety and panic attacks was stopped and the other daughter took out mortgage on flat that needs huge repairs with no central heating in Birmingham and has no money left to get this after bills, she is a sweet young woman of 30. My son has spent past 18 years as a handyman but now bloated from medication side effects, gets no benefit, and is currently a care taker of a finca in Mallorca, spending hours alone hearing voices and seeing things, he has no home to return to here in UK. What a mess this greedy government has made of the poorer sections of UK society helped by the media. I will chant your hearing problems and tinnitus dizziness improve, we only have prayer left now. Nam Myoho Renge Kyo. I don't know how to do the heart or any emojis but send you all my love for health, wealth and happiness. xx
  • SeanchaiSeanchai Posts: 172Member Pioneering
    Thank you Shareen .....We have got people who care about other's ...but it's not a community it used to be . I also have COPD and use a nebuliser  Shareen ....but I live in a village in the hills of Scotland . Thank God I do not have to venture into the town or cities often , as each time I went to the town or city the fumes made me unwell ....I could not get a breath . 
    Yep, it's terrible the way people are treated by the government and my wife missed the pension by three weeks when she was sixty...and will not get the pension at her 65th birthday , she will have to wait until I turn 66 in two years time.  The government saved billions and billions of pounds when theybehifted the pension age ...plus they made billions of pounds by the people that continued working and paying tax for another five years ....what happened to the " equality " the government go on about ? What about the " We are all in this together " ...I feel so sad that this is what the UK has come to . No care for disabled jo dare for the homeless, no care for the starving ....even children are affected by this government's stance .  The gap between rich and poor is widening but it's all down to how we vote . ....and much of the suffering is inflicted , by the way people voted last time .I hope everyone has learned their lessons and vote for ordinary people who are not born with a silver spoon in their mouth .
    I hope you and your family keep better in the future ...i know how hard it can be ...i will pray for you and your family .
  • ShareenShareen Posts: 5Member Connected
    You are spot on, the people mustn't listen to the lies and vote instead for those who help the poor and sick and homeless etc.  All the media adverts don't help, along with everyone wanting to be famous, they should make the poor, the sick, the homeless famous instead, and show more of the rubbish strewn streets, the animals and sea life dying from all our waste and the under funded and over worked social care system, mentally ill people thrown back on streets after being in mental hospitals and prisons, a national disgrace. If you can't look after your own people in a country why are we accepting more people?  I am mixed race and have friends of all nationalities with my Buddhist organisation but if there is no social housing for our own people why even accept and hand it first to people coming in?  This government is so blinkered it hasn't a clue, they wine and dine at taxpayers expense and then stop the disabled, the mentally ill, the homeless, the pensioners, the single and double parents and children's money while meeting round a table drinking champagne. They laugh at us and talk the talk but do nothing once they get in power, abusing their positions of power to judge and punish poor citizens. Their friends run the tabloids and internet I am sure to whip up hatred and ignore suffering dying homeless people.  If it doesn't come back to them in this lifetime I am sure it will in the next.  I never could do posts and could write a book about the injustice that I see daily here in the UK. You take care and your wife. xx
  • SeanchaiSeanchai Posts: 172Member Pioneering
    Thank you Shareen ....yes indeed , my family were immigrants from Ireland , so I am for immigrants being admitted to the UK.  ....but....that's after our own people are looked after first. No wonder every immigrant wants to come to the UK ...The government tells lies about the amount of people sleeping rough and the amount of people using food banks.   I know London is bad but we have our share in Scotland ...although our first minister us arresting those problems . I know a woman who has a house in London and she has 470 spare rooms...and she and her family dine on the finest banquets...the family are on benefits as well . She has other huge houses that she uses at other times and the one she has in Scotland lies empty for most ot the year . Yep, it's an unfair world Shareen ...Namo Buddhaya , my friend .xx
  • ShareenShareen Posts: 5Member Connected
    Yes I agree, my father came from India and was Anglo Indian because his great grandfather was from Ireland, he spoke Urdu and English but hardly spoke to us as children and worked all hours as a nurse, he came after India's independence and had been in the RAMC of the British Army in India. My mother also had Irish ancestry and her name was Kathleen, she also had been in the WAAF during the second world war and later worked as a GPO telephonist, we lived all over the place and I was born in the East End of London in the fifties, not a good time to be mixed race even though my skin was white, my brother and sister had dark skin, black hair and brown eyes. I am all for immigration so long as everyone is respectful I see no problem. But I lived in a housing co-op in South East London for 26 years and in 2003 it started having dozens of Cameroonian men turn up and they started taking over, the 10 person houses which were designed in the 70's for students and had a shared kitchen and bathroom and basically you just got a locked bedroom, so for ! person, basically started having up to 4 Cameroonian men in them until the place got infested by cockroaches etc all these men up to 40 living in one house. The council did nothing because they said it was private land. Then these men got in power by intimidating other co-op members by being aggressive, until people stopped going to meetings. By 2008 and after I had been told by one of these men who had taken over our co-op office that held all our records and had sacked our co-op worker, that when I died my two daughters would not be allowed to live in the house we shared when I died, I had had enough. They were racist even to other Africans telling a Nigerian woman she would never get a room in the co-op. The hippie feeling of loving all and peace and understanding had died. I was so lucky my sister managed to get me a flat with Colchester Council but I felt the whole area had changed by then.  Having disabilities helped me rehouse but what about my poor neighbours still stuck there? I found out a Cameroonian family of 10 moved into my 3 bed home once I had gone. There has to be a watch on people and surely the millions on social housing waiting lists should come first. It is policy to give the housing to refugees first so I understand the nation's fury over immigration. I also understand the plight of the refugees. If they stopped bombing their homes we would not have refugees in the first place. God Bless.
  • clare_1clare_1 Posts: 101Member Courageous
  • SeanchaiSeanchai Posts: 172Member Pioneering
    edited March 11
    Maybe if Britain would stop selling arms then things would be a little better ....of course Britain says that if they don,t do it then somebody else will ....that to me is no argument for selling arms to anyone . 
  • mpazzmpazz Posts: 4Member Listener
    Hi 👋🏽 my name is MPazz, but you can call me Mazz🤗
  • Murphy1926Murphy1926 Posts: 36Member Listener
    Hello everyone.im new and also not very good with internet.
  • Rebecca_de_WinterRebecca_de_Winter Posts: 19Member Connected
    Hi everyone, I'm new, disabled and a carer for my husband who has HSP. :)
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Murphy1926

    Welcome to our online community/family.

    I am one off a number off “Community Champion’s “ on here.

    We are all here to help anyone that might need any help or support.

    Please please let me know if there’s anything that I can help you with ????

    @steve51 
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Rebecca_de_Winter

    Good Morning & Welcome 🙏🙏

    Please please let me know if I can help you around???

    @steve51 




  • Murphy1926Murphy1926 Posts: 36Member Listener
    Hi and thanks Steve 51.
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Murphy1926

    You are more than welcome my friend.

    @steve51 
  • Rebecca_de_WinterRebecca_de_Winter Posts: 19Member Connected
    Hi Steve51

    thanks for the welcome, sorry for the late reply - I was in hospital this morning having nerves burnt out in my spine  :/ shocking, as in electrically! Resting up now though.

    Rebecca_de_Winter
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Rebecca_de_Winter

    Thanks for your post & don’t worry about the delay.

    How has the treatment gone????

    I have never come across this before on my desperate journey to reduce my pain levels.

    I do hope that everything is okay today ????

    @steve51 

  • Rebecca_de_WinterRebecca_de_Winter Posts: 19Member Connected
    Hi Steve51'

    I am feeling okayish, a bit fragile, but nothing I can't cope with. They always have problems with my lumbar spine as my fractured pelvis and spine have sacrilised together so it is hard to get a needle to what should be the S1 disc space. 
    I had needles from L4 To S1 all connected up to a machine which then burned the nerve roots away. The pain from this procedure was moderate to severe and at one stage my right foot was burning and felt like it was going to explode, but that only lasted some seconds.
    Hopefully when this is all settled down I should have less pain.

    Rebecca_de_Winter
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Rebecca_de_Winter

    Many thanks, how are you this morning???

    Sorry but how is your pain levels today???

    I have never heard of this procedure before.

    What part off the country do you live??

     @steve51 
  • Rebecca_de_WinterRebecca_de_Winter Posts: 19Member Connected
    Hi Steve51,

    How are you doing? I hope the sun is shining where you are, I am in the north.

    My lumbar spine feels reasonable this morning 🤞thanks. Unfortunately my neck is the problem now. 

    I had an anterior cervical discectomy in January to replace discs C6 and C7. The op must’ve been more complex than expected as instead of a cage at the back and plate at the front, I have these plus two steel rods from the front of my neck anchored in my skull 💀my husband says I only need the red eye and I’d be the Terminator! Anyway unfortunately replacing the discs nudged disc C5 out, so I have to have the same op again. It’s caused pain across my shoulders plus pain and weakness down my left arm - and I’m left handed.

    I have a pre op assessment on Friday then I should get the op within two months. It took me six weeks just to get my voice back last time as the ‘go in’ through the front and move the larynx etc. out of the way.

    what can’t be enjoyed must be endured 🤗.

    Rebecca_de_Winter


  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Rebecca_de_Winter

    Unfortunately the weather is up & down at present.

    I do hope that everything is ok with you today????

    @steve51 
  • Rebecca_de_WinterRebecca_de_Winter Posts: 19Member Connected
    Hi Steve51,

    just had one heck of a shock! 😱 A sound like aliens landing at the back of the house, scared the beJayzus out of us! It was the blooming washing machine! Sounded like the bearings had gone, but it has taken all the electronics with it! Can’t complain, it must be over 20 years old!

    Rebecca_de_Winter
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Rebecca_de_Winter

    I am very very sorry to hear about your aliens 👽 👽👽

    It’s gone very cold 🥶 

    I am staying in the house in the warm.

    My cat has gone the same idea.

    She is sat on my lap currently.

    @steve51 
  • Rebecca_de_WinterRebecca_de_Winter Posts: 19Member Connected
    I think @steve51,

    It is still sunny here, just as well since the stuff from the washing machine was still quite wet when they needed pegging on the line. The new machine arrives tomorrow - one expense we could have well done without😟. Still I can’t be going down to the river to pound them on the rocks 🤣.
    How are you anyway apart from being cold? I love cats! We had to have our lovely cat Samson put to sleep last year and we miss him dearly, but he was our last cat there would be no replacing him.

    @Rebecca_de_Winter
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Rebecca_de_Winter

    No the washing machine is unfortunately on the list of very important things that we have around our homes 

    I am starting to warm up now thanks 😃😃

    @steve51 

  • benjamintolmerbenjamintolmer Posts: 28Member Connected
    If you need to have a look through our How To Guide that talks you through the ins and outs of the Scope online community, or if you want to read the Community Guidelines, you can access them by going to the Community Guidelines Page here. 

    Thanks for being part of the community :)
    Thanks for the guidelines. o:)
  • Me118Me118 Posts: 3Member Listener
    Hello x new to All This. For years iv bern ill  only just found out i could claim and receive disabled allowance help because I have a small personal income sent off the first set of paperwork for Pip Waiting for the second lock to come now been a couple of weeks
    Wish me luck
  • Ami2301Ami2301 Posts: 5,812Community champion Disability Gamechanger
    Hi @Me118 welcome to the community! Good luck and let us know if you need any further help :)
    You're a fighter. Look at everything you've overcome. Don't give up now!
  • Me118Me118 Posts: 3Member Listener
  • 1961hoppy1961hoppy Posts: 3Member Listener
    Hi I’m a new member but I went to my f2f assessment but it wasn’t half a bad as I thought it would be the hc professional say he was going to recommend that I get enchaned mobility and that I should have had a home vistas any one else been told this
  • HarryfilsHarryfils Posts: 14Member Connected
    edited May 23
    I have been trying to introduce myself to the community, but am not being given the option to do so. I am also struggling to open pages and even typing this is proving difficult as the site is running very slow, on top of which I keep getting error messages. has the site been hacked by government agents in an attempt to sabotage my attempts to use this site?
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Harryfils

    Welcome to our online community/family.

    I am very very sorry to hear about your current problems.

    I am one of the Community Champion’s.

    Yes I would be more  than happy in helping/supporting “you in & around”

    @steve51 

  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Me118

    Good Morning it’s great to meet you this morning.

    I am one of the Community Champion’s here at Scope.

    Please please let me know if there’s anything that I can help you with?????

    @steve51 
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @1961hoppy

    Welcome & Good Morning.

    I’m one of the Community Champion’s here at Scope.

    We are all here to “Help & Support” any new members.

    @steve51 
  • lillyannelillyanne Posts: 1Member Listener
    Hi im new on here .thanks for accepting  me ,,can someone tell me how i can get a social worker for my 20 yr old grandson thats living with me plz
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @lillyanne

    Good Afternoon!!!!

    You would be best to speak to your/grandsons “GP” 

    They should be able to point you in the right direction l

    Please please let me know if there’s any problems 😃😃😃

    @steve51 
  • jolewjolew Posts: 23Member Courageous
    Hi, I joined this evening. I have been searching google most of today for a local art group for the disabled, with no luck! I couldn’t even find any type of disabled group near me. Scope came up in one of my searches and I decided to join. 
  • Connie00Connie00 Posts: 246Member, Community champion Pioneering

    Hello @jolew

    My Name is Connie00

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    Welcome to the Community.

     

    Sometimes it can be very frustrating finding groups for the disabled.

    We are very pleased you have joined our community

     

    if we can be of any further help to you please let us know.

     

    Have a good day

     

    @connie00

     


  • GettinOldeGettinOlde Posts: 495Member Pioneering
    edited June 22
    I have read the Community Guidelines but it seems to be lacking some information, particularly regarding certain forum functionality, e.g.
    • How do I use Saved Drafts?
    • Why can't I see a link to 'My drafts' in my profile page?
    • How do I create a forum 'signature'?
    • Where do I find the different smileys/emojis that I see others using?
    • How do I Private Message someone?
    • Can I contact an administrator/moderator by PM?
    ... etc., etc..
    You get the picture? :wink:
    Thank you kindly.
    Resident joker - not to be taken too seriously ¯\_(ツ)_/¯
  • rajeshroyalrajeshroyal Posts: 2Member Listener
  • Adrian_ScopeAdrian_Scope Posts: 4,540Administrator Scope community team
    I have read the Community Guidelines but it seems to be lacking some information, particularly regarding certain forum functionality, e.g.
    • How do I use Saved Drafts?
    • Why can't I see a link to 'My drafts' in my profile page?
    • How do I create a forum 'signature'?
    • Where do I find the different smileys/emojis that I see others using?
    • How do I Private Message someone?
    • Can I contact an administrator/moderator by PM?
    ... etc., etc..
    You get the picture? :wink:
    Thank you kindly.
    Hi @GettinOlde 
    Sorry you've had to figure out some of these yourself. Perhaps we can look at putting together a basic guide to the use of some of these functions.

    You can find the saved drafts here - https://community.scope.org.uk/drafts
    Once you save a comment as a draft, it'll appear there.

    Many of our members access the community via mobile device, which of course allows them to use their device's own extensive range of emojis.

    We tend to recommend contacting an administrator/moderator via email ([email protected])
    Senior Online Community Officer
    Scope
  • Adrian_ScopeAdrian_Scope Posts: 4,540Administrator Scope community team
    Welcome to the community @rajeshroyal.
    Senior Online Community Officer
    Scope
  • AilsAils Posts: 1,217Community champion Disability Gamechanger
    Hi @rajeshroyal and welcome to the Community.  It is nice to meet you.  Please let us know if we can be of any help to you.  All the best.  :smile:
  • blessedblessed Posts: 2Member Listener
    Hiya
    My name is blessed so happy to join thank you 
  • Adrian_ScopeAdrian_Scope Posts: 4,540Administrator Scope community team
    Welcome to the community @blessed. How are you doing?
    Senior Online Community Officer
    Scope
  • AilsAils Posts: 1,217Community champion Disability Gamechanger
    Hi @blessed and welcome to the Community.  It is nice to meet you.  Please let us know if there is anything we can do to help you.  :smile:
  • Tammyjane33Tammyjane33 Posts: 373Member, Community champion Pioneering
    Hi everyone I'm Tammy, I have recently joined this lovely online community as a community champion and I'm enjoying getting to know alot of different people from all over. What was your reason for joining us here at scope? Come say hello. :) I hope everyone is safe and well. 
  • skiptonladyskiptonlady Posts: 4Member Listener
    Hello, I'm Annie's Mum, she has  got CRPS in her leg and it is spreading downwards, I wish I knew what to say or do to comfort her. I feel at a loss about the benefit system and the hoops you have to jump through, only last week she was told that she needs to pull herself together! when will they get it? The mental anguish it causes her turns into agonising physical pain.  I look forward to chatting with you.
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @skiptonlady

    Good Afternoon & Welcome 🙏🙏

    I am one off the “Community Champion’s” here at Scope.

    Yes I would be very very happy in helping where I can.

    I am currently in the “Mandatory Reconsideration  Stage”

    U’mmmm very very interesting indeed.

    @steve51 
  • AilsAils Posts: 1,217Community champion Disability Gamechanger
    Hi @skiptonlady and welcome to the Community.  It is nice to meet you.  Yes, the benefit system is a minefield!  Please let us know if we can be of any support to you.  All the best.  :smile:
  • romanywoman5romanywoman5 Posts: 1Member Listener
    Hi I'm new but also old 
  • jackie005jackie005 Posts: 25Member Courageous
    Hi to everyone, hoping this is where I introduce myself. I've just joined the site, I'm very familiar with both SCOPE and the M.E. Association as my adult son has mild Cerebral Palsy and some learning difficulties and my adult foster son (23 yrs old) is diagnosed with M.E. but I had his bloods tested in Germany early last year which showed him to be positive for both Lyme disease and the horrendous co-infection of Bartonella. The NHS Lyme test is notoriously unreliable and as expected his NHS Lyme test came back negative so NHS will not treat him or investigate and as my only income is my state pension I cannot afford private treatment. He is very, very ill with lots of mental health issues, we have had to go through the mental health route who are now saying that it's anger issues and he has to learn to control his anger which is impossible as he has no control whatsoever over his impulses caused by the Bartonella. .At my wits end, have been for many years. 
  • jackie005jackie005 Posts: 25Member Courageous
  • GettinOldeGettinOlde Posts: 495Member Pioneering
    This might be a good  place for you to post your findings ...
    :)
    Resident joker - not to be taken too seriously ¯\_(ツ)_/¯
  • jackie005jackie005 Posts: 25Member Courageous
    Many thanks, I'm having problems how to access and which which communities will be best for me..
  • GettinOldeGettinOlde Posts: 495Member Pioneering
    jackie005 said:
    Many thanks, I'm having problems how to access and which which communities will be best for me..
    The site does take a little getting used to, particularly if you are using a mobile device.
    Let me know if I can help you any further - and if I can't I'm sure someone else will be able to. :)
    Resident joker - not to be taken too seriously ¯\_(ツ)_/¯
  • AilsAils Posts: 1,217Community champion Disability Gamechanger
    Hi @romanywoman5 and @jackie005 and welcome to the Commmunity.  It is nice to meet you both. Please let us know if we can be of any help to you.  All the best.  :smile:
  • DianegraceDianegrace Posts: 1Member Listener
    Hi my name is Diane grace and I’m new to this lovely site 
  • AilsAils Posts: 1,217Community champion Disability Gamechanger
    Hi @Dianegrace and welcome to the Community.  How are you today?  It is nice to meet you.  If there is anything we can help you with at all then please just let us know.  All the best.  :smile:
  • Adrian_ScopeAdrian_Scope Posts: 4,540Administrator Scope community team
    Hi @Dianegrace and welcome to the community. Really glad you've found us. :smile:
    Senior Online Community Officer
    Scope
  • kev64kev64 Posts: 2Member Listener
    Hello all I'm kev64 I have Ankylosing Spondylitis diagnosed 34 years ago suffered since I was a child. I am no1 face on faces of Ankylosing  Spondylitis web site.
  • GettinOldeGettinOlde Posts: 495Member Pioneering
    Hi @kev64
    Just a hello from the no1 trouble maker. :D
    Resident joker - not to be taken too seriously ¯\_(ツ)_/¯
  • AilsAils Posts: 1,217Community champion Disability Gamechanger
    Hi @kev64 and welcome to the Community.  It is nice to meet you and thanks for sharing with us.  I'm sure you will meet other members of the Community who share similar health issues to you.  I hope you enjoy your time on the forum and meet some new friends.  If there is anything we can help you with then please just let us know.  All the best.   :)
  • Lilypad1Lilypad1 Posts: 1Member Listener
    Hello, I am new to the community. I have two children with Asperger's and I find it hard to cope sometimes! Daughter in her twenties living at  home, and son 11. Currently trying to work out how best to help them...
  • paineverydaypaineveryday Posts: 9Member Listener
    Hi, 
    Lilypad1 I'm new to the community too. It's great too feel welcomed. So welcome
  • Daviesheeley1Daviesheeley1 Posts: 1Member Listener
    Hi everyone I'm Adel from Durham 
  • paineverydaypaineveryday Posts: 9Member Listener
    Hi, Adel I'm new too. I live in N.Ireland.😊
  • AilsAils Posts: 1,217Community champion Disability Gamechanger
    Hi @Lilypad1, @paineveryday and @Daviesheeley1 and welcome to the Community all of you!  It is nice to meet you and thank you for sharing with us.  I hope you enjoy your time on the forum as it is a great place to share and meet new friends.  I hope you are all well today and having a nice day so far.  If there is anything we can help/support you with then please just let us know.  All the best.   :)
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @paineveryday

    Welcome to our Online Community/Family.

    How are things in “N Ireland” today???

    I love your “username name” 

    It hits home with me “big time”

    @steve51 
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Lilypad1 @Daviesheeley1

    It’s great to meet you both.

    Please please let me know if there’s anything that I can help/support you with??

    @steve51 
  • MaimarshMaimarsh Posts: 7Member Listener
    Hi i'm new to site just saying hello
  • paffuto10paffuto10 Posts: 388Member Pioneering
    @Maimarsh

    Hi and welcome, make yourself at home  :)
  • mike62mike62 Posts: 22Member Courageous
    Hi all I joined a few days ago. I'm Mike 62 with two sons. I've had mild cp on my left side since birth, foreceps I think, giving drop foot and about 12mm (1/2 inch) shorter leg. But I have been able to be full time employed. 
  • AilsAils Posts: 1,217Community champion Disability Gamechanger
    Hi @Maimarsh and @mike62 and welcome both of you to the Community.  It is nice to meet you.  How are you today?  I hope you are both having a nice weekend.  It is nice to have you on board and I hope you enjoy your time with us.  You will find the Community to be a great, supportive space with lots of lovely people on here.  I'm sure you will meet some new friends on the forum too.  Please fee free to look around the site and join in any discussions you are interested in.  If there is anything we can help/support you with then please just give us a shout.  Looking forward to seeing you both on the Community.  All the best.  :smiley:
  • MaimarshMaimarsh Posts: 7Member Listener
    Hi joined yesterday so glad even if it's just for chat lost my partner in august finding in hard mentally and financially so if anyone got advice what I can claim would be helpful as my partner use to deal with it all they have put me on universal credit plus I get disability pip payment when all bills are paid left with 50 pounds a week
  • AilsAils Posts: 1,217Community champion Disability Gamechanger
    Really sorry to hear of your loss, @Maimarsh.  It must be a really difficult time for you, but please be assured that everyone is here to support you.  So feel free to chat anytime as there will always be someone here to listen.  With regards to your own finances, some of our members or one of the Community Team maybe best to advise you.  I will tag in one of our members, @poppy123456, who is very knowledgeable in this field, to see if she can be of help to you.  Please keep in touch and let us know how you are getting on.  
  • steve51steve51 Posts: 5,883Community champion Disability Gamechanger
    Hi @Maimarsh

    Good Afternoon & Welcome.!!!!

    I am one of the Community Champion’s here at Scope.

    I’m very very sorry to hear about the loss of your partner.

    We have got some great info/advice on Benefit’s.

    I would be more than happy in going through it with you if that would be helpful????

    There is a “Benefit Calculator” that will give you a good idea of what “Benefits” are available for you at present.

    Please please let me know if this will be okay & we can get the “ball rolling” straightaway.

    @steve51 
  • MaimarshMaimarsh Posts: 7Member Listener
    Hi Megan I have just lost my partner of 13 years to cancer he did all financial side now on my own no body makes it easy to put claims in for yourself I'm not grieving to good beside myself and have the hassle with benefits e.g. Universal credit 
  • buckbeakbuckbeak Posts: 2Member Listener
    Hi. My user name is Buckbeak. In real life i am a 52y old woman with SPMS. Lots of fatigue, brain fog abd balance probs. Bling in one eye. 
    Just bought myself s new super active wheelchair, as I’m ambulatory but now tortured by the fact that it is d****ned hard to use. Any advice anyone? Please?
  • buckbeakbuckbeak Posts: 2Member Listener
    I meant blind, not bling!
  • mamof1mamof1 Posts: 1Member Listener
    Hi, I’m a Mum of a 17yr old daughter. I have many disabilities/problems. 
    My G.P is injecting my knee on the 16th Dec & I’m not looking forward to it - I think it’s either a cortisone injection or a steroid ( not sure ) 
    I’d love to hear from anyone who has had this done & what to expect afterwards please 😀
    Many Thanks
    Tracy x
  • VOBVOB Posts: 43Member Pioneering
    Hi, mamof1,
     Although I  have not  had injections in my knee I have had ultrasound  guided injections to the insides of my feet. Unfortunately it didn't work. The pain was really bad when the needles were inserted and wiggled around to find the exact position to inject. I just bit on my fist. I had anasthetic and cortisone given together.
    I don't think it will be that bad though having the injections in your knees because the skin is thicker.
    Good luck with the treatment.
Sign in or join us to comment.