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Talk about mental health issues that people have with brain injury

ArNoLdChIaRiSuFfErErArNoLdChIaRiSuFfErEr Posts: 10Member Listener
After having had brain surgery it has left me in a lot of pain and with depression. It would be good to talk to someone with these sort of issues so that we can offer support to each other.

Replies

  • Ami2301Ami2301 Posts: 5,774Community champion Disability Gamechanger
    Hi @ArNoLdChIaRiSuFfErEr welcome to the community! I am sure members of our community will be happy to offer support and someone will always be here if you need to talk about anything :)
    You're a fighter. Look at everything you've overcome. Don't give up now!
  • steve51steve51 Posts: 5,861Community champion Disability Gamechanger
    Hi @ArNoLdChIaRiSuFfErEr

    Good morning it’s great to meet you today 😃😃😃

    I am one of the Community Champion’s on here.

    Yes I have also had a “Brain Injury”

    I have also got “Chronic Pain” myself for my “sins”

    Please please let me let me know if there’s anything that I can help you with??  

    @steve51 
  • ArNoLdChIaRiSuFfErErArNoLdChIaRiSuFfErEr Posts: 10Member Listener
    Thankyou for replying to me. Out of all my friends and family I am the only one with Brain Injury and I would like someone to talk to who will understand so that I won’t feel alone at times. 

  • ArNoLdChIaRiSuFfErErArNoLdChIaRiSuFfErEr Posts: 10Member Listener
    Ami2301 said:
    Hi @ArNoLdChIaRiSuFfErEr welcome to the community! I am sure members of our community will be happy to offer support and someone will always be here if you need to talk about anything :)
    Thankyou for replying. I think this website is a very good idea for people with disabilities to offer support to each other.
  • steve51steve51 Posts: 5,861Community champion Disability Gamechanger
    Hi @ArNoLdChIaRiSuFfErEr

    Yes we do become the only one’s in our “family’s & friends” who have had a B/I.

    They all don’t really understand as we become “The Hidden Disables”

    Please let me know if you need any help/support???

    @steve51 
  • ArNoLdChIaRiSuFfErErArNoLdChIaRiSuFfErEr Posts: 10Member Listener
    Thankyou @steve51. Because you look ok people think you are ok. I like doing lots of puzzles and games on my iPad because it makes me think. How do you cope with B/I ? Have you had it for a long time?
    @ ArNoLdChIaRiSuFfErEr
  • Ami2301Ami2301 Posts: 5,774Community champion Disability Gamechanger
    What's your favourite game to play on your iPad @ArNoLdChIaRiSuFfErEr? :)
    You're a fighter. Look at everything you've overcome. Don't give up now!
  • steve51steve51 Posts: 5,861Community champion Disability Gamechanger
    [email protected]

    Yes I had my Stroke in 1998 at the age off 32.

    Things have snowballed ever since.

    I take each day as it comes as one day I feel great and the next 3 are awful.

    @steve51 
  • ArNoLdChIaRiSuFfErErArNoLdChIaRiSuFfErEr Posts: 10Member Listener
    @Ami2301 
    I like playing Word and Colouring by Numbers. Do you like playing games?
  • Ami2301Ami2301 Posts: 5,774Community champion Disability Gamechanger
    I do, I did try colouring by numbers but I got bored Haha! I like tetris style games
    You're a fighter. Look at everything you've overcome. Don't give up now!
  • ArNoLdChIaRiSuFfErErArNoLdChIaRiSuFfErEr Posts: 10Member Listener
    Hi @steve51

    How are you?

    Sorry to hear about your stroke. 

    I have had had brain surgery due to a condition called Arnold Chiari. It is where the brain is too big for the skull which causes lots of neurological problems including chronic head pains every time I coughed, laughed or sneezed. The surgeon had to remove the cerebellum tonsils which has relieved the head pains but have made the other symptoms worse.

     I often laugh at myself which helps. Like you I take each day at a time and try to listen to my body otherwise I have two or three bad days.
  • ArNoLdChIaRiSuFfErErArNoLdChIaRiSuFfErEr Posts: 10Member Listener
    Hi @ Ami230

    How are you today?

    We have just got back home after having dinner at our local nurseries. Am just chilling in the conservatory. My husband is a happy bunny because his favourite football team has won Everton has won 1-0 to Arsenal.
    Hope you’re having a good day.
  • Ami2301Ami2301 Posts: 5,774Community champion Disability Gamechanger
    I am good thank you @ArNoLdChIaRiSuFfErEr how are you? It sounds like you've had a nice day! :)
    You're a fighter. Look at everything you've overcome. Don't give up now!
  • ArNoLdChIaRiSuFfErErArNoLdChIaRiSuFfErEr Posts: 10Member Listener
    Yes I have thanks and it will get better because we will have our grandson staying with us tomorrow till Wednesday for the Easter Holidays. He is our little ray of sunshine @ Ami2301. Have you been on this website page for long? 
  • Ami2301Ami2301 Posts: 5,774Community champion Disability Gamechanger
    Oh bless! I'm sure you all will have a lovely time :) I have been a member of the community since February 2018 but had to take 3-4 months out as I was very poorly but I am in much better health now and I love being here so much!
    You're a fighter. Look at everything you've overcome. Don't give up now!
  • steve51steve51 Posts: 5,861Community champion Disability Gamechanger
    Hi @ArNoLdChIaRiSuFfErEr

    I’m not to bad today thanks.

    How are you doing?????

    Wow I had the Stroke in my Cerebellum.

    It was caused by a “AVM”

    This is a cluster of abnormal blood vessels.

    This has effected both sides of my body.

    I no longer have a “good side” anymore 

    @steve51 
  • ArNoLdChIaRiSuFfErErArNoLdChIaRiSuFfErEr Posts: 10Member Listener
    @steve51
    Oh my gosh. I can relate to what you’re probably going through. Do you get depression with it? My right side was affected with pain. The neurologist said it is as if I have had a stroke. My brain has reprogrammed itself since surgery. . I love going out with friends and family and meeting other people. Although I have to pace myself otherwise I will have at least two or three bad days.

    Are you in a wheelchair too? I hope you have got a good support network? 
  • steve51steve51 Posts: 5,861Community champion Disability Gamechanger
    Hi @ArNoLdChIaRiSuFfErEr

    That’s Great!!!! 

    My Stroke in1998 took out my left side.

    And I have had many operations/tests since.

    I had Radiation Treatment in 2005 that gave me “Chronic Pain” down my right side.

    “Not Good”

    I don’t think “Glue & Radiation” is a great mix.

    @steve51 

  • ArNoLdChIaRiSuFfErErArNoLdChIaRiSuFfErEr Posts: 10Member Listener
    Hi @steve51

    How are you today? We had our grandson staying with us this past couple of days as it is the Easter holidays. We took him to Clacton on Tuesday and yesterday we took him to Norfolk for the steam engines. He is great fun to have around. I am chilling now as much as we enjoy having him it is very tiring. 
    Take care.
  • steve51steve51 Posts: 5,861Community champion Disability Gamechanger
    Hi @ArNoLdChIaRiSuFfErEr

    It has been a lovely day here today I have cut the front lawn this afternoon.

    I am very shattered now so time to chill and watch the football.

    Boy will I pay for it tomorrow. Never mind it is looking great!!!!!

    How has your day been?????

    @steve51 
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