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Fit note aspergers

harrison1959harrison1959 CourageousPosts: 71Member Courageous
edited April 23 in Autism and Aspergers
My son I had been waiting to see an Aspergers team for 2 years on May 17 after his GP provisionally diagnosed him with probable Aspergers. At first she sent him to an ADHD specialist who thought it was Aspergers. So he was then referred to Aspergers team.

Sadly his GP died and we have just received my sons medical records and we don’t know why but a doctor has now put on his records that they can no longer issue a fit note with probable. We have an appt with surgery but we thinks it DWP who have instructed GP to take this action.because we have a home visit planned for UC and they have accessed his records.

Our son is also diagnosed with severe social anxiety and agoraphobia but his notes only ever had Aspergers except for 1 bizarre time a locum put knee pain on his fit note the nite was only for 2 weeks as his GP was off sick. Fortunately the DWP accepted it phew. 

Can anybody help can DWP force GP to do this and more importantly we’ve waited 2 years for an appt even his Medical practice thought this is terrible.. His GP was sick for 9 months before their death so we had been waiting approx 15 months when she took absence.

The practice have have tried to force the appt and an agency for people with called Life rooms have also tried to help no luck. His recent GPs are all locums and not helpful at all. 


Replies

  • Antonia_ScopeAntonia_Scope Pioneering Posts: 1,783Member Pioneering
    edited April 15
    Welcome to the community @harrison1959 I am sorry to hear this. Have you informed your local council to see if there's any support they can offer? I'll tag in our @SparkleSheffieldAutismAdvisors who may be able to offer you some advice.
  • dolfrogdolfrog Pioneering Posts: 270Member Pioneering
    Unfortunately Aspergers is no longer a clinical diagnosis. Have a look at "A Concise History of Asperger Syndrome: The Short Reign of a Troublesome Diagnosis" you may need to seek a referal for an Autism Spectrum Disorder (ASD) assessment specifically high functioning.
  • harrison1959harrison1959 Courageous Posts: 71Member Courageous
    Hi dolfrog yes we know think it’s since 2013 but he has been getting fit note for dwp for a 2 years  for probable Aspergers off doc and it’s been accepted. Son been referred to an
     Asperger team since April 2017 with no sign of being seen it’s a disgrace. He’s steadily getting worse. Thanks for your comment much appreciated 
  • poppy123456poppy123456 Disability Gamechanger Posts: 13,353Community champion Disability Gamechanger
    HI,

    No, it wouldn't be the DWP that instructed this. When waiting for a work capability assessment it's not the DWP that contact the GP it's the health assessment providers. Also, being unfit for work isn't about a diagnosis. I think it's your son's GP that's refused to give the fit note and you need to speak to his GP when you see them.
  • harrison1959harrison1959 Courageous Posts: 71Member Courageous
    Sorry my mistake I meant health assessment. He got fit note. The new doctor has said because it’s because it’s  ptobable Aspergers they can no longer provide they told us. My son has never seen new doctor when we requested sons medical records we saw it was last entry. We don’t know why he has done this has he been instructed by DWP or health assessment. His own GP of seven years would be horrified this is happening. Sadly she dies last month. This is my last post on the matte. I’m afraid. The only people who know are the health assessment or Gp and they are being awkward and nasty. We have NHS England and CAB involved nothing adds up. Thank for your input and everybody has helped but I get confused with so much conflicting advice  asking to close my account. Don’t take this the wrong way it is not aimed at you, but I believe that some people on here may indeed work for government agancies such as DEP and deliberately put people off. Thank you everybody who has been genuine much appreciated good luck in the future.
  • dolfrogdolfrog Pioneering Posts: 270Member Pioneering
    Hi harrison1959 I understand where you are coming from. the problem in the UK is a lack of adequately trained and qualified NHS health professionals, able and willing to work as part of a multi - disciplineteam to help those who have these types of invisible disabilities. Our family all have a clinical diagnosis of having Auditory Processing Disorders, a listening disability, which currently can be miss diagnosed as being an attnetion disorder and  or autism. Those who have an ASD diagnosis have a multiple set of various underlying conditions such as Sensory Processing Disorders, Developmental Coordination Disorder, ADHD, visual processing disorders, auditory processing disorders, etc. The list is almost endless, as international research continues to unravel the complex issues that combine and can cause ASD. Hopefully you will be able to educate the various support professionals regarding your sons issues. 
  • harrison1959harrison1959 Courageous Posts: 71Member Courageous
    Hi thank you sooo much for your reply I know you can understand the problems we’ve have encountered over the years with all medical and non medical professionals we have been involved with during the lifetime of our 3 children with disabilities and a wife a mental health condition. The problem is now that a lot of people have no compassion any more and refuse or are scared to admit they have made mistakes whether it’s ego or fear of being disciplined or even sued. 
    There is also a sadly diminishing shortage of compassion. Society has started to view people that have children with disabilities as spongers living on at their expense and as such feel they should not complain and accept what there given without the right to demand better when what there being given is sometimes unacceptable. The best people with the best advice and understanding are people who have children with disabilities themselves. Good luck to you and your family and thank you for your words of support. I am no longer posting after today as I was warned that some people on here may not be who they pretend to be. Take care all the best 
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